Gavin and I are at Dr.  Reynolds office for a follow up.  Dr.  Reynolds is Gavin's primary psychiatrist and someone on our short list of trustables.  We haven't seen Dr.  Reynolds since Gavin's immune system problems were discovered.  So that means basically all of the new neurological issues are on the agenda today. I don't think any medication changes are likely. However,  one thing Dr. Glazer stressed was just how dangerous and even life threatening Gavin taking Clozapine is. Clozapine is the antipsychotic that Gavin has been on for most of this year. He has been on every other antipsychotic there is and they stopped working.  Clozapine was a last resort. The big concern over Clozapine is that it can destroy the immune system by killing off the white blood…

I'm at the pediatrician..again...with Elliott.  He just can't seem to get better. Now he has a really nasty cough and the antibiotics have given him,  um,  tummy issues. Those tummy issues have led to some accidents that are also keeping Elliott home from school. We have also had to break out his rescue inhaler a few times since yesterday. Daddy is going on very little sleep over the past 2 weeks. So Daddy really needs everyone to feel before he goes plum loco. - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click…

I have 3 sickies total today,  Lizze,  Emmett and Elliott. Ironically and thankfully, Gavin,  the child with no immune system of his own is the one not sick. Crap...I'll be right back..I need to go knock on wood. I really hope everyone feels better soon cause I'm not feeling so hot.  I don't usually get sick.  Typically,  I fight it off without much problem.  However,  when I do get sick I usually end up in the hospital.  I call feel my body fighting this off but I'm pretty darn worn out.  So daddy will be in need of some time off at some point. Anyway,  while checking on my sickies today I thought they all looked so cute and peaceful. Thought I would share. - Lost and Tired Posted by…

Emmett and Elliott are both sick,  either again or still...not sure which. Elliott has developed the cough that Emmett has had.  Emmett's cough has gotten a little worse. Lizze had an appointment with the neurologist,  who then sent her to another unplanned appointment. My job this morning was taking care of my little sickies.  Despite the battles this morning,  they finally settled into some quite time on the couch using their Android4Autism devices. Elliott actually prefers this to his DSi anymore. It's the one thing they agreed on this morning. Well they also agreed on watching Sid the science kid.  I'll take what I can get..  Little victories.  Plus they are so adorable.... ;-)   I want to thank Scotty Brown from Android Activist for catching the typo. Apparently when…

I'm sitting with Elliott sleeping next to me on the couch (nightmares) and feeling guilty. I hate dead time because all I do is think and analyze the things that have recently occurred.  Tonight is one of those nights. Lizze goes to bed very early everyday because she can't physically go on. So I spend most nights alone with my thoughts,  writing.  However, sometimes I think a bit to much and doesn't always end well. Tonight is one of those nights where I feel incredibly guilty.  I feel guilty for not having more patience with Gavin. He just talks nonstop and constantly repeats himself and after awhile it gets to me. He tries so hard and deserves better from me.  All I can say is that I'm human and can only…

Something I never shared with all of you is that the Goo Goo Dolls are my all time favorite band. John Rzeznik is a fantastic singer and musician. So the other day I stumbled upon this and I wanted to share. I think this is absolutely amazing. I have no idea why it only has 500 views but I hope to change that. I think this is an amazing tribute to Autism..... The words are incredible.....   Check it out and let me know what you think. I get goose bumps...... [youtube width="320" height="240"]http://www.youtube.com/watch?v=LTdWaB9yH_U[/youtube]                                                                        "I'm Still Here" I am…

So Emmett has devised a cunning new way to keep me from leaving the house without him in tow. He runs up and makes me stop so that he can stand with both feet on my foot.  This is supposed to stop me from being able to move,  at least without taking him with me.  He's just so stinkin' adorable.  - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

I have been documenting our journey with Gavin. This journey has recently taken a dramatic turn towards the more complicated. For those of you that are new to this blog and subsequently our story, and here is the cliff notes version. Gavin was diagnosed with Aspergers in 2005. However, since then, the he has experienced continual regression. Its been a slower process but we have reached a point where it's pretty obvious something is wrong. About 2 months ago we discovered that Gavin had basically no immune system and now needs monthly infusions in order to keep from getting sick. We also found out that he has lost his reflexes as well. We have been everywhere in search of help, including the Cleveland Clinic and Akron Children's Hospital. However, despite…