As many of you know, Gavin is dealing with something quite profound. No one has been able to explain it outside of saying it's some type of degenerative neurological disorder. He has been losing muscle control. Since January, he has lost his reflexes. Within the past month it was discovered that Gavin can't move his tongue in an upward direction. This it to blame for part of the speech regression. It has been recommended that he has a swallow study done to make sure he is having issues swallowing. However, recently, Gavin's grade are starting to fall, quite significantly. This is getting to become a much more serious problem. Our next step is to see a very special doctor at Akron Children's Hospital. If you have ever watched the show…

Sometimes I just wish everything would come to a screeching hault. I get so tired of all the commotion, fighting, screaming and whining. I truly love my family but sometimes I just need a break. Do any of you ever feel this way? I think it's only human to feel this way, however, that doesn't take the guilt away. Special needs parenting can be such a double edged sword at times. It can be extremely frustrating at times. Not only do you feel the frustration but also guilt for being frustrated with your child in the first place. I mean, afterall, it's not their fault. Sometimes it just feels like you can't win for tying. I'm having one of those days myself. The only person in the whole house that…

Remember the old Calgon commercials where the person would be stressed out and simply have to say Calgon, take me away. That was all it took for their situation to improve.  I tried that and it doesn't work so I'm looking for something else..to take me away. This has been the longest day ever and I could use the relief. We heard from the doctor and rapid strep test was negative but we need another 48hrs to know for sure.  Elliott is so miserable that he can't sleep.  Emmett started his first round of prednisone this afternoon and hopefully that will break this flare up. Everyone is miserable and either,  crying, screaming, fighting or whining and it's getting to be quite overwhelming.  Lizze is not having a good day either…

Elliott was up all night last night with a fever and sore throat. Emmett was up all night because his mouth is covered in cold sores once again. Elliott woke up this morning with a fever of 103.5°F.  Emmett,  ironically, isn't running fever...yet,  anyway. Elliott has already been to the pedeatrician this morning and they are suspecting strep throat. He is absolutely miserable and I feel really bad for him. Emmett,  is in the beginning of a Marshalls Syndrome flare up.  He has the largest cold sores on in tongue,  cheeks and gums.  However,  he has no fever.  We're waiting to find out whether or not to give him the prednisone,  without the presence of a fever.  The instructions are to give it at the first sign of a fever. …

Three little Gorski's,  one with a meltdown,  one with a Marshall Syndrome flare up and one with a rash and fever. It's gonna be a long weekend...... - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-) Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

I ran to Walgreens to get a few items and there they were. They sat there on the store shelf like a little box of miracles. They claim that these allow you the power to make your own quiet time. Think of the power this will give me.  It's like the fabled and long sought after mute button. I already feel more powerful and I haven't even opened the box yet.  I want to make sure that I'm in a good place when I open them and subsequently use them for the first time. This amount of power should only be used for good. Unfortunately,  the mood I'm in after Gavin's meltdown,  Elliott's constant whining and Emmett's insatiable desire to sit on my shoulders (everywhere I go),  I can't be…

I have decided to take the step of making Lostandtired.com a PR Friendly blog. This means that I have opened it up to being sponsored, hosting ads, reviews and giveaways. I have done the occasional review or giveaway but only on the rarest of occasions. I'm a techy and an advocate, so that's were my interest and experience lie. My blog focuses on Autism and Special Needs parenting. However, I do work on Android powered Smartphone and using them to enrich the lives of children and families touched by Autism. I would love to review your apps, especially those that are geared for special needs children. If you are interested in sponsoring a giveaway or want your product or service reviewed on this blog please contact me.. My blog receives on average, about 60,000…

Elliott had a very special wakeup call this morning. Who wouldn't want to be awoken by Mr.  Emmett John pinching your nose while sticking his fingers in your mouth?  Um....me for one.  I know that Emmett has be struggling with the whole handwashing thing as of late. ;-) It's gonna be the longest day ever. - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-) Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)