Today I'm meeting with Dr.  Pattie,  the boys therapist.  Topic for the day is going to be sexually aggressive behavior.  I want to address Gavin and Elliott both because Gavin needs to know that he cannot do this type of thing and Elliott needs to know that this type of thing should not be happening to him. I want Elliott to understand that this is not his fault.  Gavin will be caught off guard but I think that's the best approach for him.  Gavin needs to understand boundaries and that he does not have the right to ever touch anybody in this type of way.  He does not have the right to ever, ever touch another person without permission simply because he wants to.  This will have to be very…

What happened today,  has never happened to us before.  Lizze and I were both trying to remember back but I honestly think this is the first time this has ever happened. As you know,  we were doing to Akron Children's Hospital today so Gavin could see the ENT.  We thought he was going to need surgery to have his tonsils and adnoids removed.  We were referred here by immunology because his sinus issues hadn't improved in the almost 5 months he has been receiving antibody infusions and there was concern that tonsil and adnoid issues may be behind that. Dr.  Milo checked out Emmett first.  I'm pleased to report that Emmett has made a full recovery and as far as the ENT is concerned,  nothing else needs to be done. …

We have arrived at Akron Children's Hospital so that Gavin can have his surgical consult and Emmett can have his surgical follow up. Gavin still has chronic sinusitis so there is talk of removing his tonsils and adnoids.  Hopefully,  we will make it through this and not have more to worry about.  However,  with a child as......unique as Gavin...you just never know what to expect. Positive thoughts..at least I trying..right?  :-)

Emmett has been potty trained for most of the year but still struggles with the clean up aspect.  However,  yesterday Emmett went potty and wiped himself when he done. I know what your thinking,  awesome..right? Well,  yes and no.  Yes, it's good that he took the initiative because that shows independence.  However, the rain on the parade was the fact that he wiped himself on the couch.  So,  as you see,  I'm torn as to how I should categorize this one. :-)

I met with Dr.  Reynolds this morning about Gavin.  Beginning tomorrow,  Gavin's Clozapine dosage will be increased from 100mg in the AM and 200mg in the PM to 200mg in the AM and 200mg in the PM.  Gavin is manic and so we have to adjust accordingly in order to stay ahead of the curve.  He also said that we should stay home over the Christmas holiday.  He said Gavin can't take the excitement and will likely become more unraveled.  We can't let that happen so we will just have to make do. We also decided that I need to have the uncomfortable conversation with the school about Gavin's sexual aggression.  Not a pleasant conversation,  trust me. We go back in 2 weeks for a medication follow up. Sigh....

Lizze kicked off the week of appointments with a follow up at pain management. She has been off her fibro medications for about a week because insurance needed a priority authorization for the refill.  Apparently,  there was a policy change and Lyrica (spelling?)  is no longer covered.  It took a week to work out the prior authorization and so she ran out about a week ago. When she saw her doctor this morning,  they informed her that because she has been off the Lyrica for a week,  she has to start all over again.  This is a huge blown to her because it took her well over a year to build up to where she was,  just 7 days ago.  She is in horrible amounts of pain, now she won't…

Holy crap...  I was just looking over the weeks appointments and so far we have 17 freaking appointments.  The scary thing is that I know there are at least 1 or 2 more for Lizze that haven't made it to the calendar.  Five of these appointments are out of town at Akron Children's Hospital.  Elliott has the developmental neurologist and the immunologist on the same day.  Gavin has his 5th antibody infusion on Friday and Gavin and Emmett see the ENT on Wednesday.  Emmett is there for a surgical follow up and Gavin is there for a surgical consult.  Lizze isn't moving around a whole lot right now so I'll be escorting everyone through most of the week on my own,  unless she feels better. The only reason I'm looking…

I was to vent a little bit right now, so please bare with me. Right now I'm really frustrated with Gavin because of his recent relapse into sexually aggressive behaviors.  I'm once again having to protect his little brothers from his unwanted advances.  Right now,  he very into kissing and so he always seems to be looking for an excuse to kiss one of his brothers.  Tonight,  Lizze caught him making out with a Mario plush doll,  which of course,  lead to Emmett doing the same thing.  I'm ticked off because I'm constantly having to make sure Gavin is supervised when he is around his brothers.  This makes things so much more difficult because they can no longer just go upstairs and play.  Like I didn't already have enough to…