Prayers and good thoughts are needed

Please say a prayer for Lizze.  She went into the emergency room a little bit ago.  Her migraine is so bad that she has become unsteady on her feet and sick every time she eats.  It's also been 3 days since she has been able to sleep. I had to sorta strong arm her in order to get her to go.  She is very reluctant to go to the hospital because of the approach many doctors take to patients suffering with fibromyalgia. In our experience,  there are quite a few doctors that don't buy into this disorder and subsequently treat those seeking relief as drug seekers. While there are people out there looking for their next fix,  people with fibromyalgia, live every single day in almost constant pain. Wanting relief…

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Creative Cap

Last night at therapy,  Elliott but on his creative cap and drew a picture for Dr.  Pattie abdominal also made a giant snail out of clay. He wanted to share both of these things with all of you.  Enjoy :-)   Posted from WordPress for Android

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The last appointment for 2011

I am currently at therapy tonight with Gavin and Elliott.  I believe this is the very last therapy appointment for 2011. It's been a very long road but we have transversed it together and will try our best to replenish ourselves over the next 2 weeks as we head into the first appointment of 2012.  Posted from WordPress for Android

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Where everybody knows my name

This has become my home away from home.  Much like the theme song from "Cheers",  this is where I go that everybody knows my name. I just thought I would share what I was looking at right now,  when I'm once again waiting in line.  Posted from WordPress for Android

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Home away from home

This has become my home away from home.  Much like the theme song from "Cheers",  this is where I go that everybody knows my name. I just thought I would share what I was looking at right now,  when I'm once again waiting in line.  Posted from WordPress for Android

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Another day another fever

Today is another day.  However,  much like last week's worth of days,  today has brought with it another fever for Emmett. It's actually pretty low grade but it's still there.  He is extra grumpy today and I can't blame him.  Having said that,  it is making life more difficult because he's cranky and aggressive,  especially towards Elliott.  If Emmett's not screaming for whatever reason,  Elliott is because of something Emmett has done to him.  I've been trying to find my happy place for a while but everyone I do,  I get slapped back to reality by another fire that needs put out.  Lizze is not doing so well and all of this makes her feel worse,  which in turns increases stress and anxiety in the house,  which makes the kids…

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Grant me patience

Gavin is driving me absolutely crazy. He will not stop talking and is doing everything in super fast mode. He doesn't appear all there today. I'm trying to be as patient as possible but it's not easy and I'm forced to attempt to block him out,  so as to keep me from going over the edge. He's stressing out about Christmas and won't stop talking about it. I have had to ban the subject for right now because I just can't take hearing about it anymore. I'm concerned that our attempts to be sensory friendly have already failed as Gavin appears to heading in the direction of another psychotic break. When that happens, Gavin loses touch with reality. This means he will no longer be able to tell the difference…

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Sensory friendly Christmas

Sensory Friendly Christmas If your special needs family is anything like mine, you are likely facing the same or similar dilemma as the Lost and Tired family is. That dilemma is what to do for the holidays. For many families, what to do for the holidays is a relatively simple task. For the Lost and Tired family, we have a much more difficult and complicate task of trying a provide a sensory friendly Christmas. What is a sensory friendly Christmas?   Well, that's actually a very good question and one I'm not sure I have the answer to. Essentially, a sensory friendly Christmas is one that does not cause or at least attempts to prevent overstimulation. This is not an easy task, especially if you have multiple kids on the Autism Spectrum with…

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