Stocking Feet

The saying "stocking feet" has been around for ages.  However, Emmett took that quite literally when he actually put his Christmas Stocking on his foot. He so freaking cute.  :-) Merry Christmas and Happy Holidays Posted from WordPress for Android

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When Christmas and Autism don’t mix

In the Lost and Tired household,  Christmas and Autism don't always go well together. So those begs the question. What do you do when Christmas and Autism don't mix? I would be naive to to think that my family is the only one out there enduring this struggle. However,  I don't like to speak for other people so I'll only speak to my experience. For my family,  Christmas and Autism don't play well together. Posted from WordPress for Android

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How we salvaged Christmas Eve

Christmas Eve in the Lost and Tired house had turned into a stress filled,  migraine inducing nightmare. We ended up staying at home because of the days events.  I decided that we need to save as much of the Christmas Eve experience as possible and not let it be ruined by frustration over behavioral issues.  How did I accomplish that? We ordered pizza for dinner,  watched cartoons and straightened up the house so Santana Clause could safely navigate the house tonight. That was actually Gavin's idea.  The house is in good shape already but I will always take the help in keeping it it that way.  The goal is to get the kids in bed shortly and make sure Santa has plenty of uninterrupted time to finish his job tonight.…

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Guilted and Manipulated

After Gavin had regained his composure from his first meltdown of the day,  I wiped the slate clean and  started the day over. We had decided that we would try to split up this afternoon and one of us stay behind with Gavin. However, things have since changed. Gavin took it upon himself to guilt Elliott into not wanting to go visit his grandparents. Elliott came downstairs and said the he no longer wanted to go because Gavin couldn't go.  If Gavin was allowed to go then he would change his mind. As he is saying this, Gavin is peaking his head around the corner sporting a huge grin.  I hadn't said anything Elliott about Gavin not going today and Lizze has been in bed with a migraine for hours…

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The Christmas Eve Meltdown

It was barely 10am this morning and Gavin had his first big meltdown of the day. He has become very unstable and much like a ticking time bomb,  he's ready to explode at any second. Lizze and I had decided to visit with her parents this afternoon and mine in the morning.  However,  in light of just how unstable Gavin has become,  I don't know what we are going to do now. We may just split up and allow Elliott and Emmett to spend time with our family. They are handling the holiday quite well and would likely have fun with little ill effects. We had planned on staying home for the holidays, however,  it now longer seems worth it for everyone to stay together just to have a front…

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New year, new problems

2012 hasn't even arrived yet and we are facing new and frightening challenges. Gavin is continuing to decline and he is presenting with new symptoms. His current list of confirmed diagnoses are as follows: Aspergers, Schizoaffective Disorder, Psychosis,  PICA, ADHD, Primary Immunodeficiency, PTSD, Asthma, OCD, Reflux, IBS and an Unknown Exotic Degenerative Neurological Disease. This covers the major issues. Today we have possibly added to the list once again. It appears that Gavin may be having seizures. The seizures have not been witnessed but the post ictal phase has been. Shortly after the first of the year, he will be having a 24 hour eeg done, to better understand what is happening. We will also be meeting with the worlds top mitochondrial specialist, Dr. Cohen, who just happens to be…

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Waiting for lab results

We have been discharged.  Nothing showed up on the bloodwork and so there are no apparent life threatening conditions.  We need to follow up with neurology to have him evaluated again.  They want a full mitochondrial work up and then go from there.  We all need a 24 hour eeg after the holiday.  Thank you for all the support and prayers.  I really appreciate it.  :-)

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We have arrived at Akron Children’s Hospital 12/23/2011

We have arrived and been checked into Akron Children's Hospital.  Gavin is sitting in bed watching TV.  We have talked with the first doctor,  and I think we overwhelmed him.  The staff doctor came in and he is actually the one we saw the last time. The only thing they can do is eliminate any life threatening conditions.  They are not equipment to handle something like this in the ER.  That is completely understandable. We just want to rule out any immediate life threats.  We will likely be here the rest of the day.  All Gavin can talk about is food.  He missed lunch and doesn't know what to do with himself. Until he gets worked up,  they can't allow him to have anything. A Gavin that has missed a…

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