Emmett has been up since 3am this morning in pain. He has hit yet another flare up -I think I mentioned this yesterday- and his mouth is filled with cold sores. He gasbag very large one on the side of his tongue, about .5" long. All morning he cried and we could do little to console him. Grandpa even stopped by -which typically excites Emmett- but Emmett would even accept a hug from him. He did do better after his nap and was really well behaved during the interview this afternoon. Believe it or not, he actually wore clothes as well. I'm so proud of him. I was explaining to the reporter that this is a rarity in our house. Emmett almost never wears clothes. That's a pretty big victory.…

I'm finding it increasingly more difficult to find a balance. With all Lizze has going on right now, I find it very difficult to stand by and just watch her go through it. I'm very much a caregiver by nature. Lizze would say that I have to fix everything, and there's probably truth to that. I know it can be counter productive at times but I mean well. It's difficult to describe the feeling of helplessness that comes with watching your loved ones struggle with everyday life and be powerless to actually make a difference. It's been one of those days where this struggle is particularly difficult for me. Lizze is having a rough time and Emmett is miserable. I can't make their pain go away and that really bothers…

Emmett, as I mentioned earlier, is in the beginning stages of a Marshall's Syndrome flare up. He is also complaining that his ear hurts as well. For this reason, Lizze got him in to see the pediatrician around 5pm. They can't do anything about the flare up but we want to make sure he doesn't have an ear infection as well. Because we have not yet figured out how to be in two places at the same time, we are forced to divide and conquer. Grandma is coming to pick up Lizze and Emmett and take them to the doctors. I will be taking Gavin and Elliott to therapy at roughly the same time. These surprise appointments tend to pop up in our lives. Thankfully, we have family that is eager and…

Here is a picture of me and my littlest minion, Mr. Emmett John. Unfortunately,  Emmett is sick once again. He has hit yet another Marshall Syndrome flare up and is completely miserable.  All he wants to do is snug-a-bug. This is just a picture if Emmett and I snug-a-buggin on the couch, while he watches Phenias and Fern. Posted from WordPress for Android

Today's Victory is brought to you, once again, by Mr. Emmett John. Although this time with side of Mommy and Daddy. Emmett is going through another Marshall Syndrome flare up and is in a great deal of pain. Typically, as a result, he is very difficult to comfort. However, today was one of those exceptions to the rule. Lizze made him lunch and I got him situated on the couch. Together, we were able to provide him with comfort. While it may have been short lived, it was enough for him to eat lunch. I consider that a worthy of a Today's Victory.  :-) Posted from WordPress for Android

Recently, the Lost and Tired family has been coping, rather, attempting to cope, with a significant increase in meltdowns. This recent increase has me scrambling for better ways to handle them. In the case of my oldest, Gavin, something that works once may never work again. The meltdowns we now experience with Gavin are not as bad as they used to be, however, we are very quickly moving back in that direction. Yesterday, we experienced the worst meltdown we've seen in the better part of a year. Each meltdown is becoming more and more intense. Thankfully, Gavin doesn't lash out at those around him. If anyone is ever injured, it's likely they were collateral damage. Collateral damage means that they were injured during the course of Gavin's meltdown on accident. It's of little…

For awhile now, Lizze and I have been saying that Emmett has anxiety or panic attacks. When I had mentioned this to the developmental neurologist, she said he was simply throwing a fit. As far as I'm concerned, a meltdown and an anxiety attack are to vastly different animals. Emmett can have a meltdown when he doesn't get his way. I get that. However, when we are trying to get him dressed and he completely loses it, its different than a fit. He seems panicked and afraid. When we mentioned that to the developmental  neurologist,  she again said it was a fit and to push him through it. I bring this up because, after therapy today, Emmett had two panic attack-like episodes. Lizze was with him when it happened but…

I located a potential home for the Lost and Tired family. We will go look at it next Thursday, January 12th. I spoke with the Realtor this morning and he explained the process and also emailed me the application. This move wouldn't take us to far away from where we are now and it removes us from the horrible local school district. The boys wouldn't need to change school either and that is a huge positive. The fact that it's a ranch style home would benefit Lizze greatly. Right now, she struggles with the steps. This would provide her with a single floor to navigate and the relief she would receive would be immeasurable. My hope is that owner will take our situation into account when doing the dreaded credit check. We have…