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Life After My Broken Heart

A message from the author, Rob Gorski: This post is a day late and a dollar short. I have been wanting to write a follow up to My Broken Heart for quite sometime now. It's really hard for me to put into words just how much meeting the bare-handed man has affected me. I was so upset and depressed in the months following this experience that I ended up back on antidepressants. I just couldn't understand how this kind of thing could happen and I still don't. We live in a world that has its priorities in the wrong places. As a society, we seem to value money, power, fame and fortune. We can put a man on the moon and pay an athlete millions of dollars a year to play…

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Autism, Regression and My Littlest Angel

Of our 3 boys on the spectrum, Emmett,  our 3 year old is the most profoundly affected by #Autism. He is considered pre-verbal as he has developed some language and speech skills. However,  despite the great strides he has made in the last year or so,  he is still severely speech and language delayed. It's really easy for me to forget just how much he struggles with communication because we are so used to it that we are able to decipher a lot of what he is trying to say. Having said that,  it's an immediate crash back to reality when I see Emmett with a neurotypical peer.  The difference in speech and language is undeniable,  especially when it comes to expressive language. I haven't written about this because in…

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A day of rest

Aside from taking and picking up Gavin from school,  we have nothing today. This is a welcomed change of pace. Elliott is home once again because he sick.  His little nose is just dripping like a leaky faucet.  Not only is it leaking out but it's also leaking back and causing him to cough quite a bit. We gave him some benadryl as a means of trying to dry him up.  Hopefully it helps. Emmett has finally begun to run a fever.  I say finally because he started with the mouth sores a few days ago already.  We knew the fever would soon follow. We will be trying to rest as much as possible because tomorrow brings with it a return to Akron Children's Hospital.  This time it's the neurologist.…

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One helluva meltdown

Gavin just had a helluva meltdown.  This was by far,  the worst one we have seen in about 9 months.  He dropped his sucker and instead of just asking for a new one,  he chose to through a fit.  I tried to defuse it before he went nuclear but it was just to late.  He completely lost it and was screaming like someone was ripping his finger nails off or something. This lasted for a solid 20 minutes. Then,  as quickly as it began, it ended.  Now he's acting as if nothing had happened. That is one of the most frustrating things for me.  The moment that Gavin ends the meltdown,  he moves on. Everyone else is still trying to process what just happened and Gavin just picks up and…

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Learning the hard way

Sometimes lessons have to be learned the hard way.  No matter how many times I try to explain to my kids why we do something a certain way,  sometimes they just have to learn on their own. The other day,  Emmett snuck out of the house.  Now,  I was out with Maggie in the yard at the time.  However,  he let himself out and without a coat on. It was in the 50's out so it wasn't that cold. However,  he refused to go back into the house.  When Lizze and I both tried to get him,  he ran deeper into the yard. We explained that he's not allowed to let himself out of the house.  Did he understand that?  Probably not,  but it feels like the right thing to…

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Rheumatology Take 2: The weigh in

Elliott has been weighed, measured and had his BP and temperature taken. Would you believe that Elliott only weighs about 6 pounds more than Emmett.  Elliott will be 6 years old in about 2 weeks and Emmett is only 3 years old.  Elliott is just really tiny I guess.  It's just crazy to think that our 3 and almost 6 year old are almost the exact same size and weight. Is that weird? **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive the typos. Auto-correct and I don't get along very well.

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Rheumatology Take 2: We have arrived

We have arrived at the Rheumatologist located in Akron Children's Hospital.  I would like to also add that we are actually early. Isn't there a rule somewhere,  that you can't be given bad news when you arrived early to an appointment? Especially,  being early and having to get 3 boys on the Autism Spectrum ready. If not,  then there should be.   :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive the typos. Auto-correct and I don't get along very well.

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Rheumatologist: Take 2

The day has arrived that contains Elliott's appointment to see the Rheumatologist.  You may recall that Emmett was just there 2 days ago. Elliott is going for a very different reason.  Elliott's muscle tone is extremely low.  The other,  more pressing issue is his joints and tendons.  Elliott's joints and tendons are extremely loose.  They are causing him pain and discomfort. He is asking at risk for injury because he can't stop himself when he falls. Elliott has been exceedingly nervous about today. However,  he seems to be okay this morning.  Hopefully,  today will go well and the Rheumatologist will be able to help him get OT and PT. We still have 3 other appointments today so this will have enough to go off without a hitch.  **Thanks for reading**…

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