Lizze did a great job today at Akron Children's Hospital as did Emmett.  Many things were discussed but what came out of it was a plan for moving forward. Basically,  the geneticist wants to do a very detailed chromosomal study as well as a complete chemical panel. Looking at his immunological records shows that is IgA is out of whack.  However,  he said that is very common in kids with severe allergies. So that is likely nothing to worry about. It will take about a month to get the results back from the lab and about a week to get insurance to cover it.  Apparently,  they don't do this test very often. Either way,  the hope is that we can maybe find some answers as to what is causing these…

As a special needs parent,  I'm used to being the care taker. However,  today I'm the one being cared for.  I had a glass of chocolate soy milk and it was almost gone.  Emmett wanted to take care me,  so he took my glass and refilled it for me.  Although when he brought it back to me,  it was 90% water and 10% soy milk.  Luckily,  he didn't make me drink it,  but I would have if I had to :-) It would just be one of those things we have to sometimes swallow for our kids. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye…

Today is big day for the Lost and Tired family. Emmett makes his return to the geneticist at Akron Children's Hospital. The goal of this appointment is try and identify exactly what is going on with him. The hope is that if we can genetically identify what is going on,  than we will remove any questions as to what it is.  The more we know, the better and more effectively we can treat his pain and his symptoms. There are to many unknowns when it comes to his health and wellness.  Hopefully,  we will finally be able to help him with his fevers and mouth sores. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive…

Lizze had both Elliott and Emmett to the pediatrician's office this morning,  with the help of her mother.  As it turns out,  they are both actually doing better. It's one of those get worse before it gets better kinda things. At least we know that we are headed in the right direction. That certainly makes me feel better. I'm not sure if Elliott will be in school tomorrow but Emmett will be at the geneticist.  It's a really important appointment that could help us by providing more information about what he's going through so we can perhaps,  treat it more effectively. The pediatrician has expressed concern about Emmett’s immune system.  Now,  he was tested for what Gavin has and everything shows normal. That doesn't mean that we haven't missed something. …

Over the years,  I have learned a few tricks that helped to be a better special needs parent. One of the most important things I have picked up on is the ability to read the subtle cues. For example,  I'm able to tell the difference between Elliott just not feeling well and actually being sick. Elliott never takes a nap and I mean never.  So at 3pm in the afternoon,  when Elliott is passed out on the couch,  I know he truly isn't feeling well and is sick. Sometimes, as special needs parents,  we have to rely on our instincts more than most.  At times,  it's all we have to go on,  especially if your child can't communicate what is going on or how they are feeling. **Thanks for reading**…

Today has brought with it even more challenge.  I'm definitely sick and completely lacking in the energy and motivation department. As much as I'm trying,  there's just nothing there. Lizze is having to step up and take care of things that are really difficult for her to do in her condition.  I'm both proud of her and heartbroken at the same time. She's in a great deal of pain and just pushing her way through it. I hate the fact that she has to do this and it breaks my heart. I'm trying to help out as much as possible right now. Hopefully,  I'll get through this quick and Lizze won't get any worse and lose any progress she's made..... **Thanks for reading**        -Lost and Tired Please…

Sadly,  I'm no longer fighting anything off.  I'm being overtaken by it.  Looks like I lost this battle.  I've got my NyQuil on board and I'm slathered in Vicks.  I'm not even sure how I'm writing this right now ;-) I think this is going to be a long next couple of days..... **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

Elliott seems to be getting worse and not better. His cough has gotten much worse and his fever is back. To further add concern,  he took a nap yesterday and today.  That literally never happens. He just looks miserable and it's tough to see him like that.  He was originally diagnosed with a really,  really bad sinus infection.  Apparently it was so bad the doctor thought he may need two rounds of antibiotics. It seems to have moved to his chest but I can't find my stethoscope to confirm that. Right now he's laying in bed playing a game and waiting to fall asleep.  I'm hoping for his sake and mine that he sleeps tonight.  I really need the sleep and so does he. Please keep him in your thoughts...…