The lighter side of #Autism: Me and my minion

I wanted to share another view of what I call, the lighter side of #Autism, Seizures at least as far as the Lost and Tired family is concerned. We experience a lot of the drama,  anxiety and complications that can come along with Autism. I feel that I share those experiences quite openly and honestly. The truth of the matter is that even I can get caught up in all of the less than pleasant experiences we live through each and every day. I guess it would be like missing the forest for the trees. Anyway,  I'm making a conscious effort to highlight some of the lighter moments as well. This is a lighter moment between me and Emmett. He is feeling better and to a much lesser extent,  so…

0 Comments

One giant step for Gavin, One giant leap for independence

I meant to share this this the other day but I have just been to under the weather and forgot. However, I think this is worth mentioning. While Lizze was at the pediatrician's, and with Elliott and Emmett, Family I was home with Gavin. Anyway, I was really not feeling well and half asleep on the couch.. Gavin was laying down watching TV. He decided that he needed lunch and I just couldn't get up.. Gavin said he would make himself a sandwich so I said that was ok. I was really out of it because I would never have just sent him to make himself lunch. Gavin actually made himself a peanut butter and jelly sandwich. He left no mess and didn't hurt himself. He did a really good…

4 Comments

The return to school

Elliott returned to school this morning. He wasn't excited about going but it was time that he returned to school. It will take him a bit to adjust but he'll be just fine. Emmett on the other hand, freaked out this morning when his brothers left.. He's used to them being home and so the change was difficult to for him. Hopefully, everyone will survive the day and remain healthy. We so need to catch a break..... **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

0 Comments

Lunch in the office

Gavin had a rather rough afternoon today at school.  Apparently,  at lunch time,  Gavin became frustrated because he couldn't find something he wanted to work on. There was something about him leaving the lunch line to find it.  When he gave up looking,  he had lost his place in line and he had to start over,  which lead to a huge meltdown.  He ended up having to eat in the office today. Gavin's memory of the event is rather fuzzy and so his version is all I have to go on until I speak to the school about it.  The whole eating in the office thing was probably done,  more for Gavin's benefit than anything else.  They're very understanding of behavioral issues..... **Thanks for reading**        -Lost and…

0 Comments

Major Victory: 03/27/2012

We had what I consider to be,  a major victory.  Mr.  Emmett John is dead set on being as independent as possible.  The other day,  his bottle of Gatorade was empty and he needed more. What did he do?  Well,  we were out of Gatorade so he opened the lid in his bottle and went into the fridge.  He grabbed what was left of a gallon of tea and poured it into his empty Gatorade bottle.  He did all of this without spilling a single drop and he even disposed of the empty tea jug. When I saw was he did,  I was literally amazed.  I mean,  I don't want him taking things out of the fridge without asking but damn,  it's hard to be be upset with that kind…

2 Comments

Return to the Geneticist: The plan going forward

Lizze did a great job today at Akron Children's Hospital as did Emmett.  Many things were discussed but what came out of it was a plan for moving forward. Basically,  the geneticist wants to do a very detailed chromosomal study as well as a complete chemical panel. Looking at his immunological records shows that is IgA is out of whack.  However,  he said that is very common in kids with severe allergies. So that is likely nothing to worry about. It will take about a month to get the results back from the lab and about a week to get insurance to cover it.  Apparently,  they don't do this test very often. Either way,  the hope is that we can maybe find some answers as to what is causing these…

0 Comments

When the kids take care of the parents

As a special needs parent,  I'm used to being the care taker. However,  today I'm the one being cared for.  I had a glass of chocolate soy milk and it was almost gone.  Emmett wanted to take care me,  so he took my glass and refilled it for me.  Although when he brought it back to me,  it was 90% water and 10% soy milk.  Luckily,  he didn't make me drink it,  but I would have if I had to :-) It would just be one of those things we have to sometimes swallow for our kids. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye…

1 Comment

Return to the Geneticist: Emmett’s Journey Begins

Today is big day for the Lost and Tired family. Emmett makes his return to the geneticist at Akron Children's Hospital. The goal of this appointment is try and identify exactly what is going on with him. The hope is that if we can genetically identify what is going on,  than we will remove any questions as to what it is.  The more we know, the better and more effectively we can treat his pain and his symptoms. There are to many unknowns when it comes to his health and wellness.  Hopefully,  we will finally be able to help him with his fevers and mouth sores. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive…

0 Comments