I had a 45 minute discussion with Gavin's teachers this morning to make sure we were all on the same page.  Gavin is continuing to decompensate and I needed to update them on the seizures,  medications and what is currently going on.  Basically,  Gavin getting sick after breakfast at school.  By sick I mean nauseous.   I know what he's eating and it shouldn't be a problem. We aren't seeing this as much at home but that could be because he doesn't complaints to us.  I watched today as he ate. Breakfast and became so tired that he literally couldn't stay awake.  As he went to throw his trash away,  I saw him walk into the wall at least twice and then drop nearly everything he was carrying. Something is not…

I feel the weight of things all the time.  However,  sometimes there are things that are literally weighing me down.  In this case,  that weight happens to be Emmett puppy,  Bella.  She's packing on the pounds pretty quick.  She was four pounds when she was given to us and within 3 weeks,  she was over 12 pounds.  It's been about 2 weeks since she was last weighed.  I would guess she's in the neighborhood of at least 20 or 25 pounds at this point. She acts like a pseudo weighted blanket when she lays across my lap. She's also not very keyboard friendly,  so it's a bit harder to get any writing done she is dead set on draping herself either across my lap or around my neck. I just…

Admittedly,  I have been out of touch for most of the day but I know that the new #Autism statistics have been released.  The numbers are pretty scary if you ask me.  However,  I just have to ask, what's the point? I mean,  as soon as the new DSM is released and the new criteria takes affect,  those numbers will no longer be accurate.  Does that make sense? Are they looking to sorta cook the books,  so to speak?  In other words,  if a large segment of the autistic community is going to quite possibly be removed by the autism diagnostic criteria,  won't that affect the statistics? Instead of 1/88,  what will it be?  I just don't understand the point of putting out the statistics now, if they're doing to…

I love Gavin,  I truly do.  But I swear to God,  if I have to keep repeating myself,  I'm going to take a vow of silence. I mean,  I might as well because all I'm doing anymore is repeating the somethings,  over and over again. We just experienced another Gavin meltdown tonight.  This time it was because Gavin was housing around with Emmett and Emmett got hurt.  You may recall that we had to put the Gavin doesn't touch anyone without permission or supervision.  If you don't remember,  we have had problems with...um...boundaries. These issues resulted in having to institute a rule that Gavin is to make no physical contact with other people without first getting permission from that person.  In the case of his brothers,  the same applies only…

This is a post designed purely for the purpose of venting. It also simply part of the reality that we live in and therefore part of our story. Having said that,  I'm also sharing this because it's a real life problem for many people,  and not just the Lost and Tired family.  Lizze,  Emmett and I arrived home from some errands to find that our power had been shut off. This is how I know that things aren't going as well as they could be.  I'm trying to see the silver lining or at least find some humor but it a bit difficult because I'm getting frustrated. The Lost and Tired family has been essentially living on a bubble for awhile now. What that basically means is that we have been…

This morning is kind of rough one. I can barely keep my eyes open and I have to watch Emmett while Lizze goes to physical therapy this morning.. Emmett seems to be feeling better but he's um, rather grumpy and demanding. All I can say is,  I'm glad he's feeling better.  **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

I have to admit that I'm not sure what this one is all about. I do know that he was excited about it and specifically asked for me to share it will my readers.  :-) It's probably a safe bet that it has something to do with Super Mario Brothers. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

I wanted to take a second and share a bit more insight into special needs parenting and what makes my youngest, Emmett John, tick. I think that real life examples are really helpful in understanding some of the challenges the Lost and Tired family faces on a daily basis. This may seem like a silly example but I assure you, the fallout from this type of situation is very really real and exhausting for all involved. One of Emmett's favorite treats or rewards are suckers. However, if we buy a bag of suckers, only some of them will be edible to him. Sometimes the color will present a problem but more often than not, it's the imperfections that get us. So you can see what I'm talking about I have prepared this example. One of…