Welcome to meltdown central

Let me tell you, Lost and Tired family has become meltdown central today. I've honestly lost track of how many  meltdowns we've had so far is afternoon. Gavin just got done having a colossal meltdown, Elliott's been super whiney all day long. Don't even get me started on my little Emmett John.  He is the world's most talented instigator.  He will push your buttons and drive you crazy,  all while being the cutest three year old in the world and without breaking a sweat. It's been absolutely constant so far today.  My goal for the cold and rainy Saturday afternoon,  is to find a place for the two oldest to go for the night. They need a break from Emmett and I need a break from the whole thing. **Thanks…

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A new journey begins: Dysautonomia

The Lost and Tired family begins a new journey Do you ever have one of those days where you realize something and it pretty much turns your life upside down? If you have, than you know what I'm talking about. If you haven't, trust me when I tell you it sucks. I posted earlier about a conversation I had with Gavin's teachers this morning. I thought it was very productive and his teachers were very receptive and genuinely concerned. That goes a long way towards keeping everyone on the same page. Basically, we discussed Gavin's current struggles, of which there are many. The main concern centered around Gavin's constant fatigue and stomach pains. We have been trying to figure this out for a long time and never seem to get anywhere. There never seemed…

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Emmett’s Lego Creation: 03/30/2012

This is Emmett’s newest Lego creation.  He calls it,  "my Bowser,  Lego ship sword that used in Lego Star Wars".  Then he made the lightsaber sound and ran away. So there you have it folks. If you have ever wondered what a Bowser,  Lego ship sword,  from Lego Star Wars looked like,  wonder no more.  :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

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Nothing EVER goes as planned, ever

I had a 45 minute discussion with Gavin's teachers this morning to make sure we were all on the same page.  Gavin is continuing to decompensate and I needed to update them on the seizures,  medications and what is currently going on.  Basically,  Gavin getting sick after breakfast at school.  By sick I mean nauseous.   I know what he's eating and it shouldn't be a problem. We aren't seeing this as much at home but that could be because he doesn't complaints to us.  I watched today as he ate. Breakfast and became so tired that he literally couldn't stay awake.  As he went to throw his trash away,  I saw him walk into the wall at least twice and then drop nearly everything he was carrying. Something is not…

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Ever feel like things are weighing you down?

I feel the weight of things all the time.  However,  sometimes there are things that are literally weighing me down.  In this case,  that weight happens to be Emmett puppy,  Bella.  She's packing on the pounds pretty quick.  She was four pounds when she was given to us and within 3 weeks,  she was over 12 pounds.  It's been about 2 weeks since she was last weighed.  I would guess she's in the neighborhood of at least 20 or 25 pounds at this point. She acts like a pseudo weighted blanket when she lays across my lap. She's also not very keyboard friendly,  so it's a bit harder to get any writing done she is dead set on draping herself either across my lap or around my neck. I just…

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#Autism statistics: What’s the point?

Admittedly,  I have been out of touch for most of the day but I know that the new #Autism statistics have been released.  The numbers are pretty scary if you ask me.  However,  I just have to ask, what's the point? I mean,  as soon as the new DSM is released and the new criteria takes affect,  those numbers will no longer be accurate.  Does that make sense? Are they looking to sorta cook the books,  so to speak?  In other words,  if a large segment of the autistic community is going to quite possibly be removed by the autism diagnostic criteria,  won't that affect the statistics? Instead of 1/88,  what will it be?  I just don't understand the point of putting out the statistics now, if they're doing to…

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I just can’t take it tonight

I love Gavin,  I truly do.  But I swear to God,  if I have to keep repeating myself,  I'm going to take a vow of silence. I mean,  I might as well because all I'm doing anymore is repeating the somethings,  over and over again. We just experienced another Gavin meltdown tonight.  This time it was because Gavin was housing around with Emmett and Emmett got hurt.  You may recall that we had to put the Gavin doesn't touch anyone without permission or supervision.  If you don't remember,  we have had problems with...um...boundaries. These issues resulted in having to institute a rule that Gavin is to make no physical contact with other people without first getting permission from that person.  In the case of his brothers,  the same applies only…

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Special Needs Parenting: Powerless and in the dark

This is a post designed purely for the purpose of venting. It also simply part of the reality that we live in and therefore part of our story. Having said that,  I'm also sharing this because it's a real life problem for many people,  and not just the Lost and Tired family.  Lizze,  Emmett and I arrived home from some errands to find that our power had been shut off. This is how I know that things aren't going as well as they could be.  I'm trying to see the silver lining or at least find some humor but it a bit difficult because I'm getting frustrated. The Lost and Tired family has been essentially living on a bubble for awhile now. What that basically means is that we have been…

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