On Thursday afternoon,  Elliott and I will be checking into Akron Children's Hospital for a period of 24 hours.  In that time,  Elliott will undergo a 24 hour long EEG. We know from his previous EEG,  that he is having some seizure activity,  especially while asleep.  The 24 hour EEG,  affords us a chance to better understand what is happening and how bad it actually is. Elliott's actually very excited about this test. He'll get to be the center of attention for a whole day. This is a complete turnaround from the anxiety filled disaster he was the last time. I don't know if it has to do with the Risperdal,  or if he simply knows what to expect. I know he's excited to play video games the whole time…

I have been wondering what #Autism Awareness month means to you? There seems to be a lot of focus on the commercial aspect of this very important month. I thought I would share with you what Autism Awareness month means to me. To me,  Autism Awareness month is a time to do much more than just help spread Autism Awareness. It's a time to come together and put aside our differences for the betterment of all those touched by Autism.  I like to try and become more Autism aware myself by getting to know my own kids better. That also means I attempt to see things for another perspective and try to bridge the gaps that form throughout the community every other month of the year. To me,  I can't expect…

This is a Lego creation by Gavin and for Emmett.  It's some kind of ship from Lego Star Wars.  The really interesting part of this picture is there is a sticker in his hair.  Actually,  his smile is pretty cheesy but in a cute and endearing kinda way.... **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

I got through to the Cleveland Clinic this morning and was able to make Gavin’s appointment for an evaluation for Dysautonomia.  We have to wait about 30 days but at least we got the appointment. We will return,  once again to the Cleveland Clinics main campus on May 4th.  While we are there,  I'm going to get Gavin's records to Akron Children's Hospital,  so he can see the Mitochondrial specialist. While this isn't huge progress,  it's still forward movement and I'll take it. I hate sitting around not knowing what to do or what to expect.  At least now,  we have a light at the end of a 30 tunnel.  **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for…

I thought it might be interesting and helpful to open up the floor to all of you.  Does anyone have any questions about me or the rest of the Lost and Tired family?  I'll be happy to answer any questions that I can. My goal is to help people to better understand what living with #Autism can be like for a family. If you want to ask me a question or have maybe been curious about something like how we manage,  please,  ask away. :-) Maybe there is something that could help your situation...  I'm happy to share. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see…

As I announced last week,  we may finally have a lead on what's going on with Gavin.  Actually, if he does have Dysautonomia,  that would explain some of what's going on.  Either way,  this is progress.  The next step is to get to the Cleveland Clinic ASAP,  for testing and an official diagnosis.  We were supposed to hear within 24 hours from the time I called,  which was Friday afternoon.  Clearly,  that time has come and gone.  Perhaps,  we'll hear something today and the delay was simply the weekend. I'll probably call tomorrow and follow up.  I want to get a handle on this right away.  I want to also use our time at the Cleveland Clinic to collect all of the records that the mitochondrial specialist at Akron Children's…

If you were looking through my eyes at this exact moment,  this is what you would see. This is a close up of Bella,  Emmett’s Boxer puppy. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

The Lost and Tired family is once again struggling with daily meltdowns and ever increasing self-injurious behaviors. This is one of my very least favorite things to deal with because there is no clear cut right or wrong answer. As my son gets older and stronger, the severity of these meltdowns and self-injurious behaviors becomes greater and greater. We have been coping with severe meltdowns and self-injury for many, many years. What makes this particularly challenging for me is the fact that more traditional methods or interventions don't work with Gavin. As with many Autistic children, everyone is unique in their own right and so it would stand to reason that behavioral interventions would vary as well. In Gavin's case, we have had to employ a more aggressive approach. It's…