In some incredible,  bizarre twist of fate,  the doctor met with Lizze just a few minutes ago and told her that it turns out Elliott is not,  I repeat,  NOT having seizures...At least not during this test. He explained that what was happening was not seizures but instead Elliott's body expending excess energy. That's what is likely causing the shaking and tremors as well.  What I don't know is whether or not the results of the original EEG still mean anything? There was spikes in the electrical activity in his brain. That's was created the need for the second, longer EEG in the first place. Lizze is finding out about the seizure activity from the first EEG because we want to make sure that we fully understand what's happening. They…

I spoke with Lizze this morning. Elliott has been having periods of shaking again but they aren't sure if they are seizures or tremors. He's in good spirits but ready to come home when this is all over.  He's had at least 3 seizures since the test began, so something is definitely going on. Something has to be figured out for the tremors as well of they turn out not to be seizure related. Emmett and I have been up for a few hours already.  He seems to be feeling okay so far this morning. He was really excited to camp out in the living room last night. He snuggled with Bella and Maggie all night. Lizze said that they will be released sometime between 2-3pm this afternoon. It will…

At this very moment,  I'm staring at my breakfast. I'm working really hard to get and stay healthy.  I started by adjusting my diet.  I'm eating a ton of fruit and working on the veggies.  :-) This morning I'm having a fruit salad for breakfast. It included the following: Pineapple Green Apple x1 Banana x1 Strawberry x3 Yogurt x .5 cups Kashi Granola x .5 cups 1 glass of chocolate soy milk This is pretty random but I wanted to share a little bit more about me.  :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

The last time I spoke with Lizze,  Elliott had already experienced 3 seizures. That was about 9pm last night. I'm laying next to Emmett,  who's having his own problems and feeling completely helpless.  I realize its totally irrational but I can't do anything to help them.  I hate feeling helpless or powerless to take away what ails them. I wish I could do and be more to them.. :'( The pictures are courtesy of Lizze :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

Part of my goal for #Autism Awareness month is help people see what Autism can be like in real life.  There are many sides to #Autism and I want to take this opportunity to share a bit of the lighter, more positive side. Because it does actually happen,  not nearly enough, but it does happen.  Here's the proof. :-) Does is get any cuter this?  I mean,  I know I bias but honestly, this is pretty friggin' cute..  :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

Today's Victory goes out to Mr.  Emmett John.  Today was a big step forward.  He decided that he wanted to make his own lunch this afternoon.  He actually made himself a turkey sandwich, all by himself. He doesn't like bread and ended up only eating the turkey,  however,  he's got the right idea.  So very proud of you Emmett :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

I just heard from Lizze.  Apparently,  Elliott was hooked up for only 10 minutes when the staff ran into the room.  There is a button Lizze is supposed to push when she sees anything suspicious. Apparently,  Elliott had just had a seizure. However,  there was no visible signs that Lizze could see. Elliott was just sitting in bed watching cartoons when it happened. I'm guessing this must have been an absent seizure. Basically, his body just kinda pauses or shuts down during this period of time.  Elliott isn't aware that it happened,  so at least there's that. I'll be really honest with you,  I sorta freaking out right now.  I feel like I should be there to make sure everything is alright. Lizze is doing a fantastic job its just…

Lizze and Elliott have begun the 24 hour EEG a little while ago.  The EEG almost didn't happen.  If Gavin had been hospitalized last night,  especially in Youngstown, the EEG would have had to be rescheduled. This afternoon,  Elliott began with a fever,  literally minutes before walking out the door. After consulting with the neurology department at Akron Children's Hospital,  it was decided that he needed to go anyway.  Apparently, him being sick will work to our advantage when looking for seizures.  I guess the body is weaker and they show up more.  Perhaps my friend Kat can jump in and explain that...PLEASE. Anyway,  the test has begun and I at home with Emmett and Gavin.  I feel pretty helpless at the moment.  I will share information as I get…