I’m really starting to lose faith

Poor Mr.  Emmett John is once again facing another medical issue.  He has finished up his last day of Prednisone the other day for his then current flare and has already started another flare.  I don't think that we have ever seen this happen before. If you look below,  you will see just one of the large mouth sores.  Since she these are not herpes related, there is very little we can do.  In fact, the only treatment is Prednisone and Unfortunately,  there is a major draw back to using that.  Basically,  it suppresses his immune system and leaves him susceptible to things like pneumonia.  He just recovered from pneumonia a couple of weeks ago. We have a few calls in right now because we don't know what to do. …

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#Autism and Eggshells

Elliott is easily the most sensitive of our 3 boys.  He recently spent some time at Grandma's house coloring Easter Eggs.  Actually,  it was more like one Easter Egg, but it was a very special one. Elliott and Grandma had carefully drained the egg out of the shell,  so the egg was hollow. They hand painted it and it looked beautiful.  Elliott was so very proud of his egg.  When he brought it home,  he asked me to take a few pictures and share them with all of you. However,  during the picture taking process,  there was an accident and Elliott drop his precious egg. The egg was only slightly damaged and Grandma took it home with her and fixed it right up.  When Elliott and Gavin went over to…

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The Lighter Side of #Autism: 04/12/2012

I don't think this needs any explanation :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

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Read more about the article #Autism: The 12 year old toddler
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#Autism: The 12 year old toddler

The Age Gap em>One of the most frustrating parts of raising a child on the spectrum for me is what I call the age gap. I have spoken about this before but it is something I struggle with everyday. I constantly have to remind myself to look below the surface before I react to whatever is going on. The Disclaimer   Please keep in mind that I'm speaking only to the experience I'm having with Gavin. In the Lost and Tired family, Gavin is the best example of this phenomenon. Please don't take this as a blanket statement about all Autistic persons. Everyone is different and so this may not apply to your situation. However, I will say that I have heard from many parents who are dealing with the…

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I swear I don’t poison my kids?

The title may be a bit dramatic but I have a serious question.  Elliott,  my 6 year old with Aspergers is having issues with eating.  All of a sudden the way food tastes to him is different. Anymore,  he will take 2 bites out of something,  that he has a long history of enjoying,  and say that it doesn't taste right.  If you press him for details,  hoping to find out something useful,  he says it tastes like poison. Poison.....really? Here is how the conversation goes: Me: Elliott,  how are your chicken nuggets? Elliott: Daddy,  they don't taste right. Me: What do you mean they don't taste right? Elliott: Daddy,  they taste like poison. Me: What do you mean they taste like poison?  Elliott,  I would never feed you poison.…

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Join the Community #Autism Support Forums

Lost and Tired's Community #Autism Support Forums   Here at Lost and Tired, my goal is to actually help people by presenting them with our real life experience as parents to three boys with #Autism. While our situation may be different from yours, we are all on the same journey. Something else we all have in common is that we all need help and advice from time to time. Personally, I like speaking to people who have actually been there, or are actually going through something similar. I have found that this type of support helps on many levels. For starters, talking to other parents is very non-clinical and much more personal. We can relate to each other in a understanding and non-judgmental way. What I find really cool about this is that you can openly speak…

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Screw you fever disorder

I'm so friggin tired,  I can barely focus my eye on my phone right now.  The letters on the keyboard are all blurring together. This is the second night in a row that Emmett woke up at about 3am and didn't go back to  bed. Yesterday, Lizze was kind enough to get up Emmett and so today I wanted to return the favor. Lizze is in pretty bad shape today anyway as the weather is havoc on her fibromyalgia. This 3am crap has got to stop. The problem seems to be this current fever flare has got Emmett in a very uncomfortable spot. There is nothing left that we can do about it. I need like 10 years of sleep...  sigh **Thanks for reading**        -Lost and Tired…

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Looking for guest bloggers

#Autism Awareness month is upon us and I would like to help you share your personal story.  I truly believe that the best way to spread effective #Autism Awareness is to share how #Autism has touched your life or the life of someone you know or love. I would like to provide a platform for you to do just that,  share your story. I'm looking for people to write a short or long essay about how #Autism has touched their life.  The whole point is honesty.  So if your experience is less than positive tell me about it.  Likewise, if your story or experience is positive, I would love to hear that as well. The whole point is to show the world just how profoundly different #Autism can be from…

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