Lizze has spoken with the doctors today and has learned some new things about what's going on. The good news is that the meds seem to be working at this point or he just hasn't had any seizures today. They went over the first 24 hours of the EEG and said that something interesting. Apparently,  there is a specific brain wave that is present in many kids that have seizures and it's presents in between each seizure. Gavin has that brain wave pattern. We are totally new to the whole seizures thing and so I'm not totally sure what everything means, but I'm learning. Aside from that, they haven't even been able to induce a seizure in him. I would think that is a good thing, right? They told Lizze…

Please be aware that I'm venting in this post and use some colorful language in the process.  Sorry Mom... I had our brief IEP meeting with Gavin's school today.  Man....the hits just keep coming.  Part of Gavin's MFE was to repeat his intelligence testing.  This is important for several reasons but for us,  right now,  it gives us an idea of where he is now,  compared to where he was. Unfortunately,  Gavin's score has dropped across the board.  I'm not looking at the paper work right now but one category he went from a 109 previously,  to a current score of 94. So while he has dropped across the board,  some aren't as bad as others. The major concern right now was his score on the Composite Memory Index.  Previously…

As if this week wasn't challenging enough,  I've had to add two more appointments to the ever growing list of things going on this week. Today, I have some running around to do but I get to drop Emmett off with my Mom for a little while first.  When I'm done,  I'll pick him up and try to get him his nap.  Then Emmett and I will pick up Elliott from school.  While we're there,  I have to somehow have Gavin's IEP meeting,  while watching both kids. It should be short and sweet but challenging nonetheless.  When we finally get home,  I'll have time to get the boys dinner and pack them both up so they can see Dr.  Pattie tonight. Hopefully,  I survive that long.  I'm so tired it's…

Gavin has just about finished up his first 24 hours as well as Lizze's patience. He is treating the nurses like maids and is being very dramatic. He has yet to have a seizure,  which is a good thing.  They said this was not about proving he has seizures (because we already know he is),  it's about figuring out whether or not his meds are working. It's looking as though they are. I don't know if they will cut the testing short yet.  Lizze and I haven't been away from each other for 2 days since my days as a paramedic. It's really strange not having her here.  Gavin would be in school right now so it's not a huge difference. Aside from Gavin's demanding and dramatic ways,  he's constantly…

Today's Victory is brought to you by Mr. Elliott Richard.  We had some running around to do and Emmett was all over er the place. Then Elliott decided to teach Emmett how to sit crisscross applesauce. Nicely done Elliott. :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

It's been awhile since I posted about one of Emmett's little quirks. This one was actually a bit annoying but still cute. Today,  Emmett found a box of bandages and decided that it would be best to pull them all apart. He pulled apart something like 200 bandaids. However,  some didn't make the cut.  The ones that were. Not perfect got trashed. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

I'm so beyond tired right now.  I'm just now sitting down for the first time today. Emmett has been a handful today. He's almost asleep and God willing,  he'll be that way till tomorrow morning around 8am. I may crash for the night when he dose. I'll share more tomorrow but for now I'm going to bed. Night all.... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

Starting out the week in true Lost and Tired family fashion, we have already had our first meltdown of the week.  Lizze and I decided to turn the TV off because Gavin was zoning out and ignoring everyone (not seizure related this time).  He then muttered something under his breath that Lizze and I both heard.  He claims he didn't say anything.  However, we both heard the very same thing. He wasn't in trouble because it wasn't that big of a deal.  We just didn't like the fact that he was not being truthful about what he said. Maybe he didn't realize that he said it out loud?  Either way,  he completely overreacted and that of course, lead to the first meltdown of the week. I think this stems from…