Primary Immunodeficiency: One year later

Today will be Gavin's 12th IVIG infusion.  It was roughly one year ago,  we found out about Gavin's immunodeficiency. It was something that completely caught us off guard. While we still don't know the actual cause,  we have made it through the first year without many hang ups. His body has decided to accept the donor antibodies with much problem. So far,  so good. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

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#Autism: Even Daddies Need to Learn to Share

I wrote a few months back about how I resolved our issues with the PS3 by getting rid of it.  I traded everything in and was able to use all the credit to get a Playstation Vita. The Vita is basically a very portable PS3,  about the size of the now outdated PSP. This allowed me to still play games without the kids fighting over the PS3 controller. Anyway,  I'm very careful with my things,  partly because I only really have the PS Vita left.  Everything else have been sold over the years to cover expenses.  I also like to keep my things looking new. My kids,  as much as I love them,  are not gentle with their things.  Because the Vita is the only outlet that I really have…

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#Autism Discussion of The Day: Stress

It's no secret that special needs parenting can be extremely rewarding.  However,  while it can be rewarding,  it's not without stress. This type of stress can become so completely overwhelming that it can and will affect your health,  especially if left unchecked. For today's #Autism Discussion,  I thought we could all share some ways to relieve stress. What kind of thing do you do to reduce your stress level? **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

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The Lighter Side of #Autism: 05/18/2012

It's no secret that Mr.  Emmett John is a handful..  He is beyond challenging for Lizze and I,  and even his brothers. However, there are moments of absolute peace that occur,  on occasion.  This afternoon was one of those moments. Emmett returned home after spending the night at Grandma's house the other night.  He was ready for a nap and so he snuggled with me on the couch. His little Gatorade stained face is just so adorable.  This moment was so peaceful and I honestly could have lived in that moment for much longer than the time I was given. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

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Me and Gavin :-)

This is just a random picture from our trip to Cleveland yesterday.  I miss being able to connect to Gavin the way we used to. I still treasure these moments though... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

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Gavin’s Lego Creation: 05/17/2012

Gavin has whipped up yet another Lego masterpiece. This particular work of art happens to be a Lego Prison.  Many years ago,  he received a Lego set that was a prison.  He has long since lost the pieces to that so he decided to create his own.  I have to say this is remarkably similar to the original Lego Prison from years ago. Nice job Gav-man :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

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Dysautonomia: Summing things up 05/17/2012

We made it home safely. The return trip was much easier then the trip up there. We met with the doctor for about an hour and had a very interesting conversation. He took an extensive background medical history. After the history,  he did a through physical exam.  Believe it of not,  the doctor actually found Gavin's lower reflexes. What he showed us is that Gavin's reflexes are actually there,  however they diminish as they get lower.  While I don't know that I agree with this entirely,  it was clear that they are still present above his knees. When you go below his knees, that's when they become even more diminished. Basically, we are going to have to go through all the testing at a later date.  We actually go back…

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Dysautonomia 05/17/2012: The vitals

They just took Gavin's vitals. He is experiencing orthostatic bp issues.  That means that his bp drops when sits or stands. At least we are in the right place. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

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