It's no secret that Mr.  Emmett John is a handful..  He is beyond challenging for Lizze and I,  and even his brothers. However, there are moments of absolute peace that occur,  on occasion.  This afternoon was one of those moments. Emmett returned home after spending the night at Grandma's house the other night.  He was ready for a nap and so he snuggled with me on the couch. His little Gatorade stained face is just so adorable.  This moment was so peaceful and I honestly could have lived in that moment for much longer than the time I was given. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

This is just a random picture from our trip to Cleveland yesterday.  I miss being able to connect to Gavin the way we used to. I still treasure these moments though... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

Gavin has whipped up yet another Lego masterpiece. This particular work of art happens to be a Lego Prison.  Many years ago,  he received a Lego set that was a prison.  He has long since lost the pieces to that so he decided to create his own.  I have to say this is remarkably similar to the original Lego Prison from years ago. Nice job Gav-man :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

We made it home safely. The return trip was much easier then the trip up there. We met with the doctor for about an hour and had a very interesting conversation. He took an extensive background medical history. After the history,  he did a through physical exam.  Believe it of not,  the doctor actually found Gavin's lower reflexes. What he showed us is that Gavin's reflexes are actually there,  however they diminish as they get lower.  While I don't know that I agree with this entirely,  it was clear that they are still present above his knees. When you go below his knees, that's when they become even more diminished. Basically, we are going to have to go through all the testing at a later date.  We actually go back…

They just took Gavin's vitals. He is experiencing orthostatic bp issues.  That means that his bp drops when sits or stands. At least we are in the right place. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

We have arrived at the Cleveland Clinic,  exactly on time. Traffic was horrible and Gavin is already out of it.  We are all checked in and waiting to go back. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store

We are on our way to hopefully find answers.  It's about an hour and twenty minute drive,  not including traffic. I have a feeling that this is going to be a really long day. I want to thank our parents for taking Elliott and Emmett last night.  This allowed Elliott to get to school and Emmett to just be able to relax. Thank you all for the help.  :-) Please say a prayer for us today.  Perhaps just keep us in your thoughts.  We actually have quite a bit riding on this today and the physical trip itself is taking quite a bit of sacrifice to actually make.  I'll leave it at that. I truly hope that we find the answers we need to help Gavin. **Thanks for reading**  …

Tomorrow is a big day for the Lost and Tired family.  We will make our trip to the Cleveland Clinic in search of answers to Gavin's continuous decline in health. For those of you new to this blog and our story,  I give you some brief back story. Gavin is an extremely rare child. Not only is he an awesome kid but he has a huge list of very serious health issues. So far this is what we know for sure,  both serious and less serious: 1) Aspergers 2) ADHD 3) Primary Immunodeficiency 4) PICA 5) Asthma 6) Degenerative Neurological Disease (yet undefined) 7) Dysautonomia (autonomic disorder) 8) Epilepsy 9) Schizoaffective Disorder Gavin has lost all his lower reflexes and muscle tone and some control over his tongue.  It's affecting…