There's just something wrong with naming your candy something that sounds a whole lot like Anus Squares. Perhaps I'm pronouncing this wrong but either way, it seems like a poorly chosen word. :-) **Thanks for reading** -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android
Last night, I was snuggling the dogs while watching Netflix, through my eyelids. :-) Bella just sorta curled up on me and then stretched out. She's so cute. That was one of those moments where everything is peaceful and quite. I don't get many of these, so I take what I can get. :-) **Thanks for reading** -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android
Dear God, Please help me to understand because I don't. I've had migraine headaches since I was pregnant with Gavin. That's 13 years now, in case you lost track. I've lived with this curse. I've learned to function with them. I've found a way to fight my way through the pain, at the expense of myself and those closest to me. Only to have my country tell me that they are "simply headaches and everyone gets headaches". Only to have them get worse now, after 13 years. Why?! I suppose I should feel lucky - and I'm sure some will tell me I should - because I've made it this long with the pain maintaining a status quo even if the frequency has increased. But I don't feel lucky and I won't.…
It just goes to show that we, as special needs parents, really know our kids. Despite all the protesting from Emmett about not being tired, I knew he was. This picture is from yesterday, while Gavin was getting his infusion. While he didn't sleep for long, he passed out across my legs. He was so sleepy that he was able to fall asleep in the world's most uncomfortable position. :-) **Thanks for reading** -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android
I'm really honored and incredibly excited to share with you all that Akron Children's Hospital has asked for permission to post one of my articles on their official blog. Awhile back I had done a review of their mobile app. They somehow discovered that review and wanted to publish it on their site next Tuesday. For those of you that aren't familiar with Akron Children's Hospital, they are among the very best in the entire country. People come from all over the world to have their child treated here. As you know, our kids are frequent patrons of their fine facility. When the post goes live, next week, I share the link with all of you. Thank you Akron Children's Hospital for taking such amazing care of my family and literally countless…
My God, it's way to friggin early to be up already. However, Emmett has been up for hours and has already have several meltdowns. He just screams and screams and screams, for no decernable reason. I'm sure there is something behind these meltdowns, but hell if I know those reasons are. I think that life is just rough for Emmett and he doesn't know how else to handle it. Something will have to give and give soon. I can't keep this up forever.. **Thanks for reading** -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android
Gavin had his 12th antibody infusion this afternoon. It's hard to believe that it has already been any earlier since we discovered that he has primary immunodeficiency. I remember hearing that and being completely shocked at the news. How was this even possible? Gavin's never been hospitalized for a serious illness. How could he have made it 11 years without an immune system? While we haven't found that answer just yet, we've just chalked it up to God was looking out for Gavin. Gavin has to receive IVIG, once a month, every month, for the rest of his life. IVIG is basically, an immune system in a bag. It consists of antibodies that have been donated by other people. They are the specific type that Gavin is missing, which happens…
I wanted to talk for a little bit about what happens when routines change. Every child on the #Autism spectrum reacts differently to change. This post in particular, is how my youngest son, Emmett, has reacted to Gavin being home everyday. You may recall that Gavin has recently been pulled from school due to health related issues. This means, not only is he home everyday, but his being home has completely disrupted Emmett's schedule. The unexpected change has plunged Emmett into a state of chaos. It's actually a bit strange, Emmett likes the fact that Gavin's home but simply isn't coping with it very well. Emmett has become much more aggressive since Gavin has been home. He's not eating like he normally would be and he's also not sleeping for…