Balancing sanity and safety

It honestly feels like a lose lose situation.  The kids are going crazy today and I'm following right behind them. They have so much energy and need an outlet.  The problem is the same as it has always been.  The neighborhood is not suited to allow 3 special needs boys out to play. The other problem with taking the boys outside is that I'm just so tired and I literally have no energy left. Lizze wouldn't be capable,  even if she had the energy,  which she doesn't. I know many of you out there,  live in similar environments.  How do you manage to find balance between preserving your sanity and ensuring everyone's safety.? **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for…

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Slipping through the filter

I totally forgot to share this before. The other day while we were at the neurologist,  Gavin said the funniest thing. We all know that ASD kids can say things that skip the filter.  Sometimes what slips out is a totally random and often funny. The other day,  the neurologist was talking to Gavin about how he was feeling.  Gavin was asked a question about whether or not he thought he was still having seizures.  Gavin answered with,  "guess what,  I collect money." The doctor thought it was so funny he actually wrote it down on Gavin's chart so he could remember it.  :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted…

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The Lighter Side of #Autism

I know I sound system like a scratched record but I really want you to understand something. Despite the many,  many challenges facing the Lost and Tired family,  I always do my best to find the positive. This is one of those times where I just really, really appreciate.  I call moments like this,  The Lighter Side of #Autism,  and for good reason. These are moments that help me to regain my strength.  They also remind me what I working so hard for. This is just a picture of Emmett sleeping,  however,  I just thought it was cute how he is sleeping and I wanted to share. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google…

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Balancing everything isn’t easy

For those of you that read Lizze's post from yesterday,  I think it's clear that something has to give. No one should be expected to live through this much pain,  each and every day,  only to face the challenges associated with special needs parenting. I want to get Lizze to the Cleveland Clinic for an evaluation. I'm not so much questioning her diagnosis as I am her current treatment options. Considering the fact that nothing being done has helped,  I think it's time to go to a facility that has more ammo in their arsenal,  when it comes to treating chronic pain disorders and migraines. Honestly,  this is long overdue. The problem is that we will likely have to change insurance carriers and that means the boys having to move…

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How do you discipline a chronically ill child?

Folks,  I really could use your advice. We are finding ourselves in a dilemma with regards to Gavin. Gavin has always been difficult to discipline. He has so many challenges in his young Life,  both health wise and mental health wise. In many areas, Gavin is only about 3 or 4 years old,  developmentally. Trying to discern what is a willful act as apposed to something completely outside of his control,  is becoming more and more difficult. I want to be very careful that we hold him accountable for his less than good choices and at the same time be understanding of the things that he has no control of. The problem we have is knowing what is what. I'll give you an example. How do we know when Gavin…

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Where do people come up with these names?

There's just something wrong with naming your candy something that sounds a whole lot like Anus Squares. Perhaps I'm pronouncing this wrong but either way,  it seems like a poorly chosen word. :-)  **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android

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Peaceful Moments

Last night,  I was snuggling the dogs while watching Netflix,  through my eyelids.  :-) Bella just sorta curled up on me and then stretched out. She's so cute. That was one of those moments where everything is peaceful and quite. I don't get many of these,  so I take what I can get.  :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android

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Dear God, Please help me to understand…

    Dear God, Please help me to understand because I don't. I've had migraine headaches since I was pregnant with Gavin. That's 13 years now, in case you lost track. I've lived with this curse. I've learned to function with them. I've found a way to fight my way through the pain, at the expense of myself and those closest to me. Only to have my country tell me that they are "simply headaches and everyone gets headaches". Only to have them get worse now, after 13 years. Why?! I suppose I should feel lucky - and I'm sure some will tell me I should - because I've made it this long with the pain maintaining a status quo even if the frequency has increased. But I don't feel lucky and I won't.…

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