Testing the upper limits of my patience

I've been up all of 10 minutes and the boys are already driving me friggin crazy. Elliott is whining and Gavin is endlessly digging through the Lego bin. Emmett is busy bullying Elliott which just perpetuates the whining. Lizze and I have said this countless times,  while each of our kids are challenging in their own right,  it's the combination of all their behaviors and sensory issues that is what makes life in the Lost and Tired household. Today is going to be one of those days where the upper limit of my patience. I'm already stressed out to the max with Gavin's EEG coming up on Friday. Being without Lizze for 5 days is going to be very difficult.  I also worry about the toll this will take on…

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Happy 4th Birthday Emmett

You only turn 4 once in your life and at 12:30am this morning, it was Emmett John's turn. I can't believe it's been 4 years already. This time last year, Emmett was barely speaking and now he's having simple conversations. Words will never be able to express just how much I love him and how much he means to me. We had a rather humble birthday party for him Monday night because we won't be home tonight in order to celebrate. We had a special dinner, a birthday cake, presents and a balloon. While I wish we were in a position to do more, he was so happy and that's all that matters. I even manged to get him a cloud so he could touch it. I found some information…

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What has your experience with #Autism been so far?

I share my experience with raising 3 boys on the #Autism spectrum all the time. You all know what my experience has been but I don't know what yours has been. So I thought I would ask. What has your experience with #Autism been like so far? Has your experience been more positive than negative or the other way around? Do you have a good support system in place or are you in need of one? I like to know about my readers and I don't know if I don't ask. Right? Right..

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#Autism, #Epilepsy and the 5 day EEG

We heard back from neurology today.  Gavin’s doctor called us personally to address our concerns. Without regurgitating all the boring details,  there is concern that Gavin's seizures are getting worse. The fact that he's wetting the bed says that he's likely have more than just absent seizures. The doctor told us that,  while it's possible for absent seizures to cause loss of bladder control,  it's extremely rare. He then prefaced that comment with,  "well,  we are talking about Gavin’s here, so anything possible at this point." Gavin is now scheduled to return to Akron Children's Hospital for a 5 day VEEG,  beginning this Friday. He wants to keep a close eye on Gavin and see if they can uncover not only what's going on with the seizures but also the…

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I need your input

With the growing traffic on the Site,  I wanted to make it a bit more organized.  You may have noticed that some things have been moved around. I have consolidated all the pages I to drop down menus and created an actual home page,  that I'm still working on. I just wanted to get your thoughts on the changes and ask if you have any suggestions to make the Site more user friendly? Thanks **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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Emmett’s Lego Creation: The Robot Dog

Emmett is becoming a really creative Lego builder anymore. Today he built a present for me.  He calls it a robot dog. I am really impressed by his ever increasing Lego abilities. He didn't name it and later took him back for assimilation back into the pool of Lego’s.  However,  my brief time with robot dog was memorable.  **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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#Autism and the dentist: Open Wide

Open Wide    A guest post by Jeff Stimpson The Cartoon Network blares over the chair from a TV to distract kids. This dental practice understands kid patients, I’ve learned over three or so appointments. They especially understand kid patients with special needs. “Daddy’s right here with you,” the dentist says to Alex, who's 13 and who had PDD-NOS and who hates the Cartoon Network. I consider asking if they can put on Elmo.  “Open wider, Alex.” I forget how we found this dentist, but on our first appointment he told us how he’d had a condition when he was younger and it gave him insight into kids like Alex.  This time, Alex won’t sit down, but jumps up to pick a penny toy from a nearby basket. “Go to…

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#Autism, #Epilepsy and increasing seizure activity

Gavin had another seizure last night or early this morning. It was bad enough that he wet himself and based on the smell alone,  we suspect it was worse than that. We put another call into the neurologist to let him know that the seizures are getting worse and becoming more frequent. When we heard back,  they will probably want him to be seen.  They haven't wanted to mess with his meds because the seizures were under control and they didn't want to muddy the water for the dysautonomia work up that Gavin is in the middle of. However, at this point,  I don't know that we are going to have a choice. What a fantastic way to start the week out. **Thanks for reading**        -Lost and…

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