I made it up to the hospital to see Gavin,  in record time.  I was dropping the boys off with my family and I got a text from Lizze saying that Gavin was having another crisis. When I finally got through to the hospital,  Lizze told me what had happened.  Gavin had some more heart problems again and actually had to be sedated.  This happened during his echo cardiogram.  His speech is slurred and otherwise gibberish.  When I arrived Gavin's resting heart rate was in the 150's. He also has a migratory rash that is really weird.  The rash literally appears and than disappears about every 5 minutes. It's really disconcerting to watch this happen. I don't know what we are supposed to do but I don't want to go…

Gavin isn't doing so well right now.  I don't have time to go into details at the moment.  They are calling this a dysautonomic crisis. He's also experiencing a cardiac crisis as well.  His last bout with cardiac pain required him to be sedated because he was freaking out so much.  As soon as I get more information and time,  I'll pass whatever I have along. Right now, I'm trying to figure out a way back to the hospital.  I'm also working out something for Elliott and Emmett as they can't go with me.. Please say a prayer and keep both Gavin and the rest of the Lost and Tired family.  We need everything we can get at this point.  **Thanks for reading**        -Lost and Tired Please…

I spoke with Lizze this morning and things have changed a bit for Gavin. He had another bout with chest pain last night.  Akron Children's Hospital has wisely decided to treat Gavin as a cardiac patient.  Until they can confirm that nothing is wrong,  they are going to treat him as though something is.  The cardiologist came in today and explained to Lizze that Gavin's 12 lead EKG was abnormal.  He said that it could simply be that because Gavin's heart is in the center of his chest,  it through the EKG off hut he's going to compare it to Gavin's previous EKG's to make sure.  At this point,  Gavin is resting and being monitored for seizures. Gavin is also being worked up for something called Marfan Syndrome.  This is…

Today’s Friday Forum topic is about changes you would like to see within the #Autism community. Basically, I thought it would be interesting to discuss what changes, if any, you would like to see within the #Autism community. Please share your thoughts and opinions in a constructive way. There are no right or wrong answers. :-) Let's help each other learn to better survive.... :) The discussion will take place in #Autism Help Forums. Registration is simple, fast and free. You will need to confirm your email before being allowed to actually post anything. Can’t be at your computer today? No problem. Download and install the free Autism Help App from the Google Play Store. Either click the link or simply search the Google Play Store for Autism Help. You can sign up and access…

Well,  this was the first of 4 nights that the boys and I are home alone.  Gavin and Lizze will be in the hospital until Monday. Trying to manage 2 boys with #Autism,  by myself,  is very challenging. I don't know how the single parents out there do this. Usually,  when it's just me and the boys,  we camp out in the living room or the squishy couch. The squishy couch is simply,  two couches pushed together in order to make one giant bed. The boys get a big kick out of it,  so it's become legendary in the Lost and Tired household. The only issue is that the dogs don't like to be left out of the fun.  When the idea of the  squishy couch was first conceived,  I…

I wanted to update you all to the latest information on Gavin. Gavin was actually admitted once again to Akron Children's Hospital.  He's currently in the Epilepsy Monitoring Unit(EMU).  He was supposed to have his 72 hour EEG in the morning anyway. They decided to set him up tonight and run through Monday. While Gavin was in the ER,  he appeared to be having seizures in his sleep. At least this way,  he'll have them picked up on the EEG. I'm home with the other two boys right now and Lizze is at the hospital with Gavin.  We want to thank both sets of Grandparents for helping us with the boys today. It was very last minute and they made it work.  Thank you. I also want to thank everyone…

Gavin has been examined,  had his blood taken and an IV put in place. He keeps getting these weird rashes,  all over his body that only last a few minutes and then show up somewhere else. I had just sat down to eat lunch when Gavin crawled down the stairs.  I'm so friggin hungry because I missed breakfast. My bowl of fruit and yogurt is sitting at home,  watching the screen saver on my TV,  not being eaten by me. :-( We are waiting for labs to come back and for Gavin's neurologist to either come down or call. The hospital doesn't seem to be very concerned about this but they also aren't familiar with Gavin and likely don't treat many kids with autonomic disorders.  Gavin's totally not himself and…

Please say a prayer once again for Gavin. We had to rush him tk the ER at Childrens due to what appears to be an autonomic crisis. He was laying down in his room, watching TV. Next thing I know, he was dragging himself across the floor because his chest was hurting so bad. I put a heart rate monitor on him and his heart rate was high. He became very disoriented and couldn't hold himself up.  That's it for right now.  We are at Akron Children's Hospital and Gavin is in a room.  **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy…