Today’s Friday Forum topic is about changes you would like to see within the #Autism community. Basically, I thought it would be interesting to discuss what changes, if any, you would like to see within the #Autism community. Please share your thoughts and opinions in a constructive way. There are no right or wrong answers. :-) Let's help each other learn to better survive.... :) The discussion will take place in #Autism Help Forums. Registration is simple, fast and free. You will need to confirm your email before being allowed to actually post anything. Can’t be at your computer today? No problem. Download and install the free Autism Help App from the Google Play Store. Either click the link or simply search the Google Play Store for Autism Help. You can sign up and access…

Well,  this was the first of 4 nights that the boys and I are home alone.  Gavin and Lizze will be in the hospital until Monday. Trying to manage 2 boys with #Autism,  by myself,  is very challenging. I don't know how the single parents out there do this. Usually,  when it's just me and the boys,  we camp out in the living room or the squishy couch. The squishy couch is simply,  two couches pushed together in order to make one giant bed. The boys get a big kick out of it,  so it's become legendary in the Lost and Tired household. The only issue is that the dogs don't like to be left out of the fun.  When the idea of the  squishy couch was first conceived,  I…

I wanted to update you all to the latest information on Gavin. Gavin was actually admitted once again to Akron Children's Hospital.  He's currently in the Epilepsy Monitoring Unit(EMU).  He was supposed to have his 72 hour EEG in the morning anyway. They decided to set him up tonight and run through Monday. While Gavin was in the ER,  he appeared to be having seizures in his sleep. At least this way,  he'll have them picked up on the EEG. I'm home with the other two boys right now and Lizze is at the hospital with Gavin.  We want to thank both sets of Grandparents for helping us with the boys today. It was very last minute and they made it work.  Thank you. I also want to thank everyone…

Gavin has been examined,  had his blood taken and an IV put in place. He keeps getting these weird rashes,  all over his body that only last a few minutes and then show up somewhere else. I had just sat down to eat lunch when Gavin crawled down the stairs.  I'm so friggin hungry because I missed breakfast. My bowl of fruit and yogurt is sitting at home,  watching the screen saver on my TV,  not being eaten by me. :-( We are waiting for labs to come back and for Gavin's neurologist to either come down or call. The hospital doesn't seem to be very concerned about this but they also aren't familiar with Gavin and likely don't treat many kids with autonomic disorders.  Gavin's totally not himself and…

Please say a prayer once again for Gavin. We had to rush him tk the ER at Childrens due to what appears to be an autonomic crisis. He was laying down in his room, watching TV. Next thing I know, he was dragging himself across the floor because his chest was hurting so bad. I put a heart rate monitor on him and his heart rate was high. He became very disoriented and couldn't hold himself up.  That's it for right now.  We are at Akron Children's Hospital and Gavin is in a room.  **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy…

It's no secret that this week has been crazy.  Unfortunately,  at least for me,  it's only going to get crazier because I'll have Elliott and Emmett for the next 3 days.  Lizze and Gavin will be at Akron Children's Hospital for Gavin's 72 hour VEEG, swallow test and tremor work up. I'll be at home chasing 2 little boys with #Autism that don't seem to get along right now.  Lizze will be with Gavin because it's easier for her than staying at home with the other 2 boys. I mentioned yesterday that I screwed my knee up pretty bad while at the Cleveland Clinic.  I just stepped funny and bam..instant pain. Anyway,  Gavin is not having a good day. He's had several smaller meltdowns already and he's simply not listening…

As promised, this post contains a video blog I did this evening. It's not the best and I was really, really tired. My allergies have been driving me crazy and I'm lying down on the couch cause I screwed up my knee this afternoon. [youtube]http://www.youtube.com/watch?v=puMp501AlDc[/youtube]

Gavin is getting set up for what's called the Q-Sweat test. Basically,  they use electrodes placed on his arm,  leg,  ankle and foot.  They send a small electronical current to these four locations and stimulates sweat production.  There are also little tubes attached to the same area that collect up any sweat produced and sends it to a special machine for analysis. Gavin is doing well with this test as it can be uncomfortable. Ironically,  while they were calibrating the electrical current in his ankle,  it triggered a crazy amount of sweat in that location.  This has actually caused a problem and delayed the test.  Apparently,  this is unusual and we aren't sure why this is happening,  at least to this degree. **Thanks for reading**        -Lost and…