Hey everyone. As many of you are aware, my oldest of 3 special needs children has been the hospital the past few days. The commuting back and forth between the hospital and home to be with our other 2 boys is very expensive. In order to help cover the expenses, I'm selling my brand new PlayStation Vita. I have had one for awhile and had to swap it out under warranty. Best Buy didn't have one in stock so they put the full amount on a gift card and allowed me to pick this one up at another store. I did so yesterday for the purposes of sticking it up on ebay. The auction includes the following: 1) New Playstation Vita (wifi) ($250) 2) 2 year accidental damage protection through Best Buy ($70) 3)…

I'm finally awake enough to string two coherent thoughts together. I just spoke to Lizze again and Gavin is doing better,  in some regards. His fever appears to have finally broken and his heart rate and blood pressure are both lower. However,  he's having, um, tummy issues. I need to go buy him new underwear because he has gone through every pair he owns. They aren't worth trying to save and that's all I'll say. We are still waiting on some labs to come back.  Hopefully,  while we wait, he doesn't slide backwards. I'm going to try to get some sleep so that I can safely make the trip back to Akron Children's Hospital.  I shouldn't be driving right now.  ;-) **Thanks for reading**        -Lost and Tired…

After 3 or 4 back and forth trips to Akron Children's Hospital, I finally arrived home for the night around 2am. The plan is to head back up to the hospital sometime this morning.. Right now I can't keep my eyes open... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Lizze sent me home and I just arrived safe but exhausted.  Gavin was sleeping and my back simply couldn't take staying there. Gavin's heart rate is switching off between high and higher.  He still has the fever but has been taking something for that. I'm so tired and I've driven back and forth 3 or 4 times today already. I'm hoping to get at least some sleep tonight so I can head back there in the morning. Thanks again for everything and dot forget to check out my Playstation Vita auction on ebay: http://pages.ebay.com/link/?nav=item.view&id=200792330232 **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy…

I made it back home for less than an hour before being called back to the hospital. Gavin's heart rate is back up again and Lizze wanted to make sure I was there tonight. It's going to be a really long night.  Your continued prayers are greatly appreciated.  Thanks to everyone for all your support...  Things are not good for the Lost and Tired family..... As an FYI,  I'm listing my Playstation Vita on ebay ASAP. It should be a great deal for anyone looking to grab Sony's Newest Console. It comes with a 32GB memory card and Hot Shots Golf.  It also includes a 2 year accidental protection plan and some accessories.  I just swapped it out at Best Buy so this is brand new. I'll post a link…

I made it up to the hospital to see Gavin,  in record time.  I was dropping the boys off with my family and I got a text from Lizze saying that Gavin was having another crisis. When I finally got through to the hospital,  Lizze told me what had happened.  Gavin had some more heart problems again and actually had to be sedated.  This happened during his echo cardiogram.  His speech is slurred and otherwise gibberish.  When I arrived Gavin's resting heart rate was in the 150's. He also has a migratory rash that is really weird.  The rash literally appears and than disappears about every 5 minutes. It's really disconcerting to watch this happen. I don't know what we are supposed to do but I don't want to go…

Gavin isn't doing so well right now.  I don't have time to go into details at the moment.  They are calling this a dysautonomic crisis. He's also experiencing a cardiac crisis as well.  His last bout with cardiac pain required him to be sedated because he was freaking out so much.  As soon as I get more information and time,  I'll pass whatever I have along. Right now, I'm trying to figure out a way back to the hospital.  I'm also working out something for Elliott and Emmett as they can't go with me.. Please say a prayer and keep both Gavin and the rest of the Lost and Tired family.  We need everything we can get at this point.  **Thanks for reading**        -Lost and Tired Please…

I spoke with Lizze this morning and things have changed a bit for Gavin. He had another bout with chest pain last night.  Akron Children's Hospital has wisely decided to treat Gavin as a cardiac patient.  Until they can confirm that nothing is wrong,  they are going to treat him as though something is.  The cardiologist came in today and explained to Lizze that Gavin's 12 lead EKG was abnormal.  He said that it could simply be that because Gavin's heart is in the center of his chest,  it through the EKG off hut he's going to compare it to Gavin's previous EKG's to make sure.  At this point,  Gavin is resting and being monitored for seizures. Gavin is also being worked up for something called Marfan Syndrome.  This is…