The good news is that there is a chance that Gavin may come home tomorrow, if he continues to improve.  We have also learned that he has been cleared by the cardiologist.  So that means his heart is in good shape.  That's good news also. Gavin's fever has broken,  so he physically feeling better but sleeping most of the time. That's good news as well. When I make this next statement,  you have to understand how long we have been doing this. We have been on a search for answers to Gavin's mysterious health and mental health issue for the better part of a decade. This 10 year journey,  while absolutely worth it,  has come at a great cost to my family. The emotional,  physical and financial toll has been…

This post is borrowed from my amazing wife's blog, www.dailymommysurvival.com. It was easier to just copy an paste. Hope you don't mind honey :-)   Alrighty ladies and gents, Gavin is slowly improving. His temp is down today (awesome!) and his heart rate is lower (yay!) so his blood pressure is going down as well. With all that said, we are still going to be here until Monday morning at 10am, at least. So, this is what I need y'all to do... If you go to the Akron Children's Hospital web site HERE you'll be able to send him an e-card. If you could take five minutes to send him an e-card it would really brighten his day because a volunteer comes to our room, knocks on the door and announces that "Gavin…

Hey everyone. As many of you are aware, my oldest of 3 special needs children has been the hospital the past few days. The commuting back and forth between the hospital and home to be with our other 2 boys is very expensive. In order to help cover the expenses, I'm selling my brand new PlayStation Vita. I have had one for awhile and had to swap it out under warranty. Best Buy didn't have one in stock so they put the full amount on a gift card and allowed me to pick this one up at another store. I did so yesterday for the purposes of sticking it up on ebay. The auction includes the following: 1) New Playstation Vita (wifi) ($250) 2) 2 year accidental damage protection through Best Buy ($70) 3)…

I'm finally awake enough to string two coherent thoughts together. I just spoke to Lizze again and Gavin is doing better,  in some regards. His fever appears to have finally broken and his heart rate and blood pressure are both lower. However,  he's having, um, tummy issues. I need to go buy him new underwear because he has gone through every pair he owns. They aren't worth trying to save and that's all I'll say. We are still waiting on some labs to come back.  Hopefully,  while we wait, he doesn't slide backwards. I'm going to try to get some sleep so that I can safely make the trip back to Akron Children's Hospital.  I shouldn't be driving right now.  ;-) **Thanks for reading**        -Lost and Tired…

After 3 or 4 back and forth trips to Akron Children's Hospital, I finally arrived home for the night around 2am. The plan is to head back up to the hospital sometime this morning.. Right now I can't keep my eyes open... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Lizze sent me home and I just arrived safe but exhausted.  Gavin was sleeping and my back simply couldn't take staying there. Gavin's heart rate is switching off between high and higher.  He still has the fever but has been taking something for that. I'm so tired and I've driven back and forth 3 or 4 times today already. I'm hoping to get at least some sleep tonight so I can head back there in the morning. Thanks again for everything and dot forget to check out my Playstation Vita auction on ebay: http://pages.ebay.com/link/?nav=item.view&id=200792330232 **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy…

I made it back home for less than an hour before being called back to the hospital. Gavin's heart rate is back up again and Lizze wanted to make sure I was there tonight. It's going to be a really long night.  Your continued prayers are greatly appreciated.  Thanks to everyone for all your support...  Things are not good for the Lost and Tired family..... As an FYI,  I'm listing my Playstation Vita on ebay ASAP. It should be a great deal for anyone looking to grab Sony's Newest Console. It comes with a 32GB memory card and Hot Shots Golf.  It also includes a 2 year accidental protection plan and some accessories.  I just swapped it out at Best Buy so this is brand new. I'll post a link…

I made it up to the hospital to see Gavin,  in record time.  I was dropping the boys off with my family and I got a text from Lizze saying that Gavin was having another crisis. When I finally got through to the hospital,  Lizze told me what had happened.  Gavin had some more heart problems again and actually had to be sedated.  This happened during his echo cardiogram.  His speech is slurred and otherwise gibberish.  When I arrived Gavin's resting heart rate was in the 150's. He also has a migratory rash that is really weird.  The rash literally appears and than disappears about every 5 minutes. It's really disconcerting to watch this happen. I don't know what we are supposed to do but I don't want to go…