34 years

Today is my 34th birthday.  I have such a had time believing that.  I feel so much older than I should.  The past 34 years have been a roller coaster, with countless experiences that have helped to make me who I am.  I want so badly to feel younger again and so that's my goal.  I want to have significantly improved my overall health and fitness by this time next year. I want to be able to say,  I'm 35 years old today and never felt better.  That would be awesome.  Today is going to be a pretty busy day.  I have to renew the plates on the van,  try and pay some bills, get Bella to the Vet’s office and make more phone calls than I care to count. …

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The Special Child

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism Help" app at the Google Play Store

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Show me some love :-)

I need your help. Please take a second and check this out.   I have been hired to write for Childswork Childsplay Blog. I'm really excited to be presented with this opportunity. Can you guys please stop over there and show me some love. Just leave a comment on my introduction, I'm feeling lonely over there. I'll post here when I have a new article up so you can visit my subsequent posts and show me some more love. I would really, really appreciate it. I really need this to work, for obvious reasons but also to help build my writing career so I can better support my family. I know I can count on you folks. :-) Click here to visit see my intro and show me some love ------------>  Meet…

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The devil is in the details

I had a last minute meeting with Dr.  Reynolds this morning.  I called to schedule an appointment and they called me back and got me in within 45 minutes.  I can't say enough good things about Dr.  Reynolds.  He's been there for Gavin since the very beginning and for that I will always be grateful.  Today's appointment was not an uplifting one but instead was a strategic planning session. We discussed everything for well over an hour. Residential placement is our only option.  Once we crossed that line,  we talked about what the process involved and how extremely difficult it will be to aquire the necessary funding. The costs are basically broken up into 3 pieces.  They are as follows: 1) Treatment,  therapy,  groups, testing, medication etc.  This will all…

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A face full of boogers

I mentioned in recent post that Emmett is currently inside of a flare up. His mouth has the sores still and they are quite painful.  The flare has yet to run its course and now he has a pretty nasty cold.  He sneezed this morning and ended up with a face full of boogers. That of course was instant sensory overload for him as that is a huge trigger for him.  The only thing that he will eat during a flare up is the extremely over priced, coconut milk ice cream.  That was on my to do list this morning.  He loves this stuff and it's pretty healthy,  considering it's ice cream. The downside is that it's $6 a pint. That aside,  it's really good.  :-)  I've been known to…

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A fragile hope

I wanted to take a few minutes and touch on something.  The coming months are going to be the most challenging the Lost and Tired family has ever faced. Our journey is going to be taking a dramatic turn and I don't know what that is going to result in.  While I will do my very best to remain hopeful,  it will be a very fragile hope. I know the reality and gravity of the situation.  I know that no matter what we do,  he can't fix the parts of Gavin that are broken.  Having said that,  I'm hoping that placing him into treatment will give him a chance to overcome,  at least some of these obstacles. Maybe he can at least come to understand his situation better and simply…

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Home

Do you ever associate a song with a specific place or event? Yesterday evening, one the way home from the devastating appointment, this song was playing on the radio. This song will forever be etched into my mind and associated with learning that my son will never get better. Having said that, I feel like Home is a song about hope. If I had to associate what happened yesterday with one specific song, I think this was the perfect one.  I'm not hugely religious. I was born, raised and remain Catholic. While I don't buy into everything that has been taught to me, over the years, I do have faith.  After all we have endured and our children have endured, especially Gavin, my faith has been in question. However, perhaps this is a…

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Best Case Senario

I'm having the worst nights sleep in awhile.  Lizze was able to finally take something for her migraine, as her meds were finally called in.  Needless to say,  she sleeping quite well and that's good. I spoke with my parents,  late last night and went over what happened.  This is what everything boils down to.  Best case scenario,  he goes away for 6 months to a year or more.  He receives a very specific and intensive treatment.  He eventually comes home.  Nothing will ever be fixed,  as what Gavin has broken is beyond repair.  However,  he may come back in a slightly better position.  The doctor said that instead of 3 tantrums a day,  maybe we only have 1. That's really the most positive outcome we can hope for. It's…

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