I have decided to call our new journey with Gavin Operation Hope.  I think the name speaks for itself. So that's that. No progress was made today in the way of funding etc.  I have calls into Stark County Family Council but have not heard back yet.  I will be following up on Monday morning.  I have to call the treatment facility and get some information as well.  We haven't said anything to Gavin and obviously won't until the time is right.  However, when is the time going to be right? I suppose we will have to rely on the experts to tell us the how and when to explain this whole thing,  not only to Gavin but also the other boys.  This was posted via WordPress for Android, courtesy…

There has been a great deal that has happened today.  Most everything has been pretty rough or at least unpleasant.  However dark the day has been,  there still exists a silver lining.  In this case the silver lining revolves around my sweet Elliott Richard.  Last year my sister moved out to the East Hamptons and took a job as one of the only physical therapists there.  She has a beautiful house in a beautiful area. My parents and grandmother are going to see her this weekend.  They are leaving tonight,  around 7pm and will return in about 4 days.  Elliott will be going with them. This is a bittersweet moment for me.  Elliott desperately needs and deserves a break from all the chaos the Lost and Tired family has to…

One of the challenging things that my wife and I face as special needs parents creating rules and boundaries. Because we have 3 boys with various special needs and in various different places on the #Autism spectrum,  I find that we have to have different rules for different kids. I was wondering if anyone else finds that they have to have different rules for the same or similar aged children? Do you have to do this because of safety or developmental issues? Do you have any issues with resentment or frustration as a result of one child wing able to do something the other can't? This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct…

We met with Lizze's doctor this morning to discuss the current state of her medications.  More importantly, we were looking for the results of her MRI. As weird as this may sound to some people,  Lizze's worst fear was the MRI showing nothing. In her mind,  if something was wrong, at least that would explain the extreme levels of pain. Upon hearing the results,  her worst fear was realized.  Nothing was physically wrong. Lizze sat there in tears.  I don't know where we go from here.  :-( Please continue to keep her in your thoughts.  This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for…

Please keep Lizze in your thoughts and prayers today.  She will be getting the results of her MRI on her back at 10:15 am. Her neurologist suspects spinal stenosis. We're really,  really hoping that's not the case. She already has more than her fair share of health related issues.  I'll let you all know how it goes.  :-) This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism Help" app at the Google Play Store

For Petes sake,  Bella just can't stay away from the Vet’s office anymore. This time she appears to have an eye infection.  Her left eye seems to be infected,  or at the very least, looks much different than the right eye. Whatever it is, is in the corner of her eye. She may have just poked herself in the eye while chewing on a friggin stick.  Either way, I'm hoping all is well and it won't be anything major. Please keep her in your thoughts.  I'll keep you posted.  :-) This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism Help" app at the…

Today is my 34th birthday.  I have such a had time believing that.  I feel so much older than I should.  The past 34 years have been a roller coaster, with countless experiences that have helped to make me who I am.  I want so badly to feel younger again and so that's my goal.  I want to have significantly improved my overall health and fitness by this time next year. I want to be able to say,  I'm 35 years old today and never felt better.  That would be awesome.  Today is going to be a pretty busy day.  I have to renew the plates on the van,  try and pay some bills, get Bella to the Vet’s office and make more phone calls than I care to count. …

This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism Help" app at the Google Play Store