Nothing an extra blanket won’t help

I've been up on and off tonight. I just can't seem to slow down the thoughts swirling around in my head. One of the things weighing heavy at the moment is that our natural gas was shut off.  Aside from the obvious,  I'm concerned that the house will get to cold at night without heat.  However,  despite the outside temp being in the 40's, it's not that bad in the house. I was expecting the temp to drop much faster since the house is so old and poorly insulated. Thank God for small favors.  It's about 2am and there is still plenty of time to get colder but I think we are going good to make it through this. For tonight, we prepared a few extra blankets and hopefully we…

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A new search for answers begins

This afternoon, Lizze and I will be returning to the Cleveland Clinic once again.  This time however, Gavin will be at school and Lizze is going great to be the patient. She will meet with one of the top autonomic specialists in the country. The purpose is to figure out what's going on with her every declining health.  This will hopefully shed some light on the migraine she has had for the better part of the year.  We also hope to find answers about her sleep disorder, extremely low blood pressure and more. Gavin doctors believe that Lizze may hold some clues as to what is going on with Gavin as well.  They currently believe that Lizze has some sort of autonomic disorder and that is likely where Gavin acquired…

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Gavin Behavioral Update: 09/18/2012

Gavin has not had a good day.  We ended yesterday with issues and began today with issues as well.  School seemed to go okay and that's good.  However,  OT and speech this afternoon, not so well. My understanding is that he wasn't following the rules,  wasn't listening to Lizze or the therapists. It's really difficult not to just be turned off to anything Gavin right now.  I realize how that sounds but you have to understand what it's like living here.  Many times we feel like prisoners in our own home,  held captive by his violent outbursts. I just need a break,  we all need a break. This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell…

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Don’t judge, things happen

So I wanted to take a few minutes and turn our misfortune into a learning experience. This is simply meant to educate and nothing more. I share our story, good,bad and otherwise.  I do so in a transparent manner so that hopefully, lesson can be learned. I wrote a post a few days ago, in response to the Fox News story about the little 5 yr old autistic boy denied lunch at school because his parents were behind on the bill. There was quite a bit of judgements being made about the parents.  Some people thought they were bad parents because the bill was left unpaid. My goal was to remind people that these parents shouldn't be judged so harshly because we have absolutely no idea what their lives are…

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Not taking out the trash

Who would have thought? Gavin absolutely loves cleaning.  That's right,  he loves to clean.  For the longest time I didn't really pay attention to this.  However,  I have found that Gavin just has this thing for cleaning.  Now prepare to have your mind blown because this is going to seem really weird.  Last night,  Gavin had this huge,  huge tantrum.  We needed to find a consequence that would hopefully send a message. The thought actually occurred to me that I could withhold taking out the trash but isn't that the most bizarre thing ever. Who would have thought that taking away chores away could be disciplinary tool. It just seems counterintuitive, doesn't it? Now considering Gavin's personality,  one of two things would likely happen.  First, it could work. He could…

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#Autism, #ADHD, #Anxiety and Medications

Yesterday was Elliott's medication appointment.  It has been decided that the best course of action is to treat what may be ADHD. The logic behind this is that we aren't sure what's what.  There are any signs of ADHD and anxiety.  The reason we are going to address the ADHD first is because the medications work immediately.  This means that if it is ADHD playing a role,  we can provide Elliott with the fastest relief by addressing it first.  We will then reassess and decide if the anxiety is still present. All we are waiting on is two assessments to be reviewed before we decide what medication to try.  It's sometimes really difficult to know what's what, especially in younger kids. Unfortunately,  the truth is, that things may sometimes need…

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Nothing like drama to start the day with

Elliott is freaking out because he doesn't want to go to school. He's been screaming for a little while now and Lizze and I have traded off. We trade off so that neither one of us lose our cool.  It's kinda like tag team wrestling.  When I'm getting worn out, I can tag her in to take over and let me recover. She of course,  can do the same thing.  This morning is not going well and let me just say it's good that we have this whole tag team approach. I've been up with the E's since 5am and I'm already running on empty. This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct…

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Operation Hope: Update 09/17/2012

I wanted to update you on Operation Hope. For those unfamiliar with Operation Hope, here's the cliff notes version.  We are in the process of trying to place our oldest son,  Gavin, into residential care.  There are a million reasons why this has to happen.  The most important reasons are that it's Gavin's only hope and ours as well. The Lost and Tired family is coming apart at the seams. Gavin's behaviors play a huge role in that. Gavin has been diagnosed with reactive attachment disorder (RAD) and this is quite serious. Basically,  Gavin cannot form emotional bonds with people and has no conscience. Long story short.. It's not safe for him to be in our house.  He's way,  way to volatile and is becoming more and more aggressive, both…

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