It's actually pretty cold the moment. It's likely that we can get the gas turned back on today, however, we won't be home for them to do it.  It looks like we will be one more day without the stove,  hot water or the furnace. I'm choosing to focus on the matters at hand and that's our trip to the Cleveland Clinic today for my wife. My goal for today is to worry about the things I have control over and back burner the ones I don't.  That's not something that comes naturally to me but I do what I can to practice this kind of attitude because otherwise I would stress out a whole lot more.  Who needs that? I know I don't. This was posted via WordPress for…

I've been up on and off tonight. I just can't seem to slow down the thoughts swirling around in my head. One of the things weighing heavy at the moment is that our natural gas was shut off.  Aside from the obvious,  I'm concerned that the house will get to cold at night without heat.  However,  despite the outside temp being in the 40's, it's not that bad in the house. I was expecting the temp to drop much faster since the house is so old and poorly insulated. Thank God for small favors.  It's about 2am and there is still plenty of time to get colder but I think we are going good to make it through this. For tonight, we prepared a few extra blankets and hopefully we…

This afternoon, Lizze and I will be returning to the Cleveland Clinic once again.  This time however, Gavin will be at school and Lizze is going great to be the patient. She will meet with one of the top autonomic specialists in the country. The purpose is to figure out what's going on with her every declining health.  This will hopefully shed some light on the migraine she has had for the better part of the year.  We also hope to find answers about her sleep disorder, extremely low blood pressure and more. Gavin doctors believe that Lizze may hold some clues as to what is going on with Gavin as well.  They currently believe that Lizze has some sort of autonomic disorder and that is likely where Gavin acquired…

Gavin has not had a good day.  We ended yesterday with issues and began today with issues as well.  School seemed to go okay and that's good.  However,  OT and speech this afternoon, not so well. My understanding is that he wasn't following the rules,  wasn't listening to Lizze or the therapists. It's really difficult not to just be turned off to anything Gavin right now.  I realize how that sounds but you have to understand what it's like living here.  Many times we feel like prisoners in our own home,  held captive by his violent outbursts. I just need a break,  we all need a break. This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell…

Elliott is freaking out because he doesn't want to go to school. He's been screaming for a little while now and Lizze and I have traded off. We trade off so that neither one of us lose our cool.  It's kinda like tag team wrestling.  When I'm getting worn out, I can tag her in to take over and let me recover. She of course,  can do the same thing.  This morning is not going well and let me just say it's good that we have this whole tag team approach. I've been up with the E's since 5am and I'm already running on empty. This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct…