Emmett is entering into another fever flare. He appears to have the beginnings of several mouth sores. This would explain why he's been so grumpy. I hope that this flare will be quick and as painless as possible.
This morning, Elliott will be starting a trial of a popular ADHD medication. Some people may feel that the title of this post is in poor taste. Respectfully, I disagree. One one likes the idea of experimenting on their child. I happen to be one of those people. However, the truth of the matter is that no matter how you slice it. Many times when you are trying to provide your child with relief, from. What ever they are struggling with, it sometimes requires experimentation. I prefer to call a spade a spade, rather than trip over words. After meeting with Elliott's pediatrician this week, we have decided on an approach to helping Elliott with his anxiety and possible ADHD. I say possible ADHD because whenever anxiety is involved, it's…
Gavin's arrived home and Lizze and I were talking to him about his treatment of the hospital staff. He basically told me that Mommy made a big deal out of nothing. We informed him that he lost his choice for dinner and would be having oatmeal. He was okay with that. Lizze, while talking to me afterwards said that he probably didn't care about the oatmeal because he had pizza for lunch. I responded to Lizze by saying, maybe he won't go to Grandma's this weekend. Mind you, I was talking to Lizze and not to Gavin. In fact it was more like I was thinking out loud. Apparently, Gavin overheard me and launched into a huge tantrum. I managed to get him into his room and he unleashed all…
Gavin's infusion took almost 6 hours today. Apparently, they are having to do something different now and it's taking significantly more time. Gavin's heart rate has been elevated all day long. This is not a result of the infusion because this is not typical for when he's being infused. While we're on that topic, I spoken with the Cleveland Clinic about Gavin's erratic heart rate as of late. His main doctor was out of town and no one wants to stick their fingers in the pie because he is far to complicated. We have to watch him like a hawk this weekend and document anything that happens and then I should hear from the next week. I suppose I would have liked more definitive answers but I'm comfortable with this…
Do any of you deal with repetitive behavior? For example, does you child with #Autism repeat themselves over and over again? My kids repeat themselves over and over and over again. I don't know if they even realize they are doing this but holy crap does it ware me down. I try never to give my kids what they want, simply because that are melting down or repeating themselves or asking the same question, over and over again. However, let me tell you, repetitive behavior slowly but steadily wares you down. At least it does for me. There are times that I would be willing to give them anything they wanted, simply to make the questions stop. How do you cope with the repetitive behavior and what are your…
Emmett has been screaming for most of the morning. I don't know what's going on with him. This is an ear piercing, blood curdling scream that could literally be used to break people being interrogated at Guantanamo Bay. If the screaming didn't do it than Emmett could just simply employ his penchant for repeating the exact same question, over and over and over and over again. I don't think it's his diet as this trend began prior to reintroducing milk, egg and lactose. I do think, in fact I know, that his screaming and repeated questions are going to have me driving off a short bridge with a fast car. I'm trying to preserve my sanity so that I don't spend it all in one place. Having said that, I…
Something that I struggle with on a daily basis has to do with knowing the difference between their special needs and normal, age appropriate behavior. In my family, this is one of those blurry lined, very grey areas. This is especially frustrating, when it comes to Gavin and Emmett. They both have behaviors that blur the lines between normal, age appropriate behavior and behavior that is inherent to there unique special needs. I thought for today's #Autism Discussion, we could talk about how to determine the difference between these behavioral types. How do you determine what behavior is what? This was posted via WordPress for Android, courtesy of Samsungs Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism…
Life would be so much easier if Gavin would listen instead of challenging everything we tell him. Much of this is related to reactive attachment disorder. Having said that, there is also a part of this that is probably normal, almost teenage defiance. The problem is that it's really hard to know where one ends and the other begins. This was posted via WordPress for Android, courtesy of Samsungs Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism Help" app at the Google Play Store