Do your kids scream?

This morning has been launched into orbit with the assistance of both Emmett and Elliott.  That right, we had a huge heaping helping of meltdown from both boys. Elliott was melting down over having to change into clean pants for school.  Emmett on the other hand melted down over......well, I never did figure that out.  Both Emmett and Elliott self-injured and that was unpleasant to say the very least. After Elliott was on his way to school, Emmett spent the next 30 minutes screaming as loudly as he could. He hits this extremely high pitched note that just makes my brain feel like it's going to explode. I was thinking we could share our stories about screaming kids.  Perhaps we might learn that we aren't alone.

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Buying porn with the family. Really?

This post is completely off topic but I've been wanting to do this one for awhile now. This is sort of a rant but I'm allowed to climb up on my soapbox on occasion. Last week we were driving home from somewhere, I can't remember where we were coming from, but it's not really important. There is this porn store on Cleveland Ave, which is kinda the main street that runs through Canton. As we drove past the porn shop, on our way home, I saw something that has really been bothering me. I saw what appeared to be a family,  walking out of the adult store. I'm being totally serious.  There was a man, a woman and younger kid.  The kid looked like he was maybe 8 years old.…

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The Silver Lining

Last night, the boys had therapy with Dr. Patti.  We spoke with Elliott for a little while because he has been really, really struggling.  He's sad and extremely anxious. Emmett still seems to be taking steps backwards and honestly, that's got us pretty freaked out.  If we hadn't experienced regression before with Gavin,  I'd not be as concerned but.....we haven't been so lucky. Overall it went pretty well. Emmett had a meltdown that lasted for about 20 minutes or so. He also spent some time bullying Elliott and then learning about better ways of responding. Hopefully, something was learned by both Emmett and Elliott. I took this picture of Emmett and I thought that it was just super adorable. He chose his own outfit and got himself dressed.  I'm choosing…

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Does your company want to sponsor a review and giveaway

One of the things that I want to do here at Lost and Tired is reach out to as many families within the community as possible. One of the ways I can do this is through is through giveaways. I've already been lucky enough to give away 2 android tablets, thanks to Samsung and Motorola.  I know that the families that received those devices were very grateful. I've also been able to giveaway weighted blankets, educational programs and things as simple as movie passes. Right now I'm looking for companies that would like to be my next sponsor.  By sponsoring, you would be providing one item for review and one item to giveaway to someone in the community. Some items don't require review. The review will help to get your…

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Change of plans……again

We finally made it home about 11am. We opted to reschedule Emmett's appointment because there was no way to make the timing work.  This is a rather aggressive fever flare but fairly typical, aside from that.  If things don't improve we'll get him back in this week.  The problem was that he was completely exhausted and we had almost 4 hours to kill.  We couldn't get in sooner and the pediatrician's office is halfway between the Cleveland Clinic and home.  There was simply no practical way to make it work.  Emmett and Lizze have been asleep for a few hours now and desperately need their rest.  Hopefully, they will both be feeling a bit better. This is just one of the many difficult situations that special needs parents can find…

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Lizze’s Journey: What we learned

Lizze is really, really happy with her new doctor.  Once again though, there is questions about the quality of care she has been receiving at the local level. We didn't learn much in the way of new health information but we have a direction to go in now.  Before we leave, she needs x-rays on her hands and and blood work done. She's also being referred to the Cleveland Clinic's sleep clinic as well.  There is probably more I missed but I'm sure Lizze will cover that on her blog today as well. 

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Lizze’s Journey: Holy Intake Batman

Wow,  this is one of the longest intakes I have ever experienced. All I can say is Holy Intake Batman, this is taking forever. Seriously though, some of her records were messed up and needed to be reentered, while we were there. Emmett remains patient, at least for now.

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