Be honest, do you ever bribe your kids?

I have been taking inventory of my parenting skills lately.  I do this on occasion to kinda keep myself in check and focus on the things I need to improve on. One of the things I'm aware of isn't he fact that I'm so tired all of the time.  On most days, it takes a great amount time and energy to get my kid to cooperate and get things done.  They aren't disobedient, it's just that there are so many factors that influence where they are on any given day.  Sometimes between me being tired and them being, well, who they are, I have to employ alternative methods in order to accomplish what needs to get done. On occasion, I've been known to offer incentives for them to listen. Alright,…

7 Comments

Who are you and what did you do with my kids?

Things have been rough lately.  I don't try to hide that or sugar coat other in any way.  However, that doesn't mean we don't have moments where things seem perfect. Perfect is a relatively strong word. Perhaps I should say better, instead. Since Gavin has been gone, Elliott and Emmett have come out of their creative shells.  They are constantly drawing things and cutting them out with their safety scissors.  Sometimes they're creating things for me but most often, it's for Lizze.  They are drawing flowers and cutting them out.  When they're done, they write a special note to Lizze tell her they're sorry she hurts so bad and hope she feels better soon. That aside, it's gotten to the point where it looks like creativity has puked all over…

0 Comments

The Leap of Faith: We’ve heard back from the @ClevelandClinic

Lizze received the call today from the Cleveland Clinic's exclusive Pain Rehabilitation Program. As it stands,  the earliest Lizze can get in would be towards the end of January. There are a few things that will have to be done first.  Lizze has to complete her sleep study and have the follow up appointment with the sleep neurologist. They said that this absolutely must happen first.  This way they can rule out apnea. We have figured out most of the expenses will be and here's the break down as it stands now. 1) Cheapest Hotel is $70/night x 15 nights= $1,050.00..... 2) Various textbooks will be about $50. 3) Food (breakfast, lunch and dinner) is out of pocket.  Total expense unknown. 4) If commuting, fuel will run about $200+/week x…

0 Comments

Today’s #Autism Victory: The tag

I wanted to share a small victory that occurred today.  This particular victory was won by one Mr. Emmett John. Not only did he wear a shirt for most of the day, but he wore a shirt with a tag still firmly in place. As many of you know, a lot of kids on the #Autism spectrum have sensory issues. One of the most common issues I have experienced with my boys is the dreaded tag. Many kids, including my own, can't stand the way the way the tag feels on their skin. The fact that Emmett is not paying attention to the tag today is a pretty big accomplishment. Typically, Emmett won't even touch clothes if they still have a tag. I'm really proud of Emmett.  He had a…

2 Comments

The double edged sword

Call me crazy but I was expecting things to get better, faster, once Gavin was out of the house. I knew that things wouldn't be better right away, I guess I was just hoping.  As it stands, Gavin's been gone for almost 2 weeks and things are still not going well on the home front.  We met with Dr. Patti last night and talked about that very thing.  She said that unfortunately, this is not something that's going to be fixed overnight.  This is very likely going to take a long time.  To show you just how traumatized Lizze is,  the very thought of him coming home puts her in the fetal position, sobbing. Gavin returned home briefly yesterday morning and that very brief return, less than an hour, knocked…

1 Comment

Perfection

I feel like we've come full circle with Emmett in many ways.  However, the most prominent is his return to extreme levels of perfection. Everything in Emmett's life must be perfect. If it's not he screams. Throughout each and every day, I'm constantly having to address this with him.  I try to reassure him that everything is okay and attempt to help him work through it.  Unfortunately, there is literally nothing that we have found that helps.  Anymore, much of the day is spent tripping over words, trying not to say the wrong thing and set him off. We've tried sensory processing things like, massage or joint manipulation.  I can't begin to explain how overwhelmingly frustrating this is, for all involved. Emmett's miserable and the constant screaming is unbearable, especially…

6 Comments

Tips for those long waits at the doctors

I want to focus on getting the #Autism Help Forums busy once again and so I wanted to share today's topic. In the #Autism Help Forums, I call this an Ice Breaker. It's meant to bring in the lurkers and facilitate conversation. Please follow the link below and sign up for free and join the conversation. You can post pictures and videos and otherwise express yourself in more ways. http://lostandtired.com/autismhelp/showthread.php?t=21 Tips for those long waits at the doctors

0 Comments