Things have been rough lately.  I don't try to hide that or sugar coat other in any way.  However, that doesn't mean we don't have moments where things seem perfect. Perfect is a relatively strong word. Perhaps I should say better, instead. Since Gavin has been gone, Elliott and Emmett have come out of their creative shells.  They are constantly drawing things and cutting them out with their safety scissors.  Sometimes they're creating things for me but most often, it's for Lizze.  They are drawing flowers and cutting them out.  When they're done, they write a special note to Lizze tell her they're sorry she hurts so bad and hope she feels better soon. That aside, it's gotten to the point where it looks like creativity has puked all over…

Lizze received the call today from the Cleveland Clinic's exclusive Pain Rehabilitation Program. As it stands,  the earliest Lizze can get in would be towards the end of January. There are a few things that will have to be done first.  Lizze has to complete her sleep study and have the follow up appointment with the sleep neurologist. They said that this absolutely must happen first.  This way they can rule out apnea. We have figured out most of the expenses will be and here's the break down as it stands now. 1) Cheapest Hotel is $70/night x 15 nights= $1,050.00..... 2) Various textbooks will be about $50. 3) Food (breakfast, lunch and dinner) is out of pocket.  Total expense unknown. 4) If commuting, fuel will run about $200+/week x…

I wanted to share a small victory that occurred today.  This particular victory was won by one Mr. Emmett John. Not only did he wear a shirt for most of the day, but he wore a shirt with a tag still firmly in place. As many of you know, a lot of kids on the #Autism spectrum have sensory issues. One of the most common issues I have experienced with my boys is the dreaded tag. Many kids, including my own, can't stand the way the way the tag feels on their skin. The fact that Emmett is not paying attention to the tag today is a pretty big accomplishment. Typically, Emmett won't even touch clothes if they still have a tag. I'm really proud of Emmett.  He had a…

We made it to Akron Children's Hospital after a somewhat hectic morning.  Thankfully, we didn't have to pull Elliott out of school because school was canceled already. Hopefully we will find that all is okay with Elliott.  He's probably going to need bloodwork this afternoon in order to find out what's going on.  When we get back, we are going to see Lizze's Grandfather.  Please God, let this afternoon go well.