I don’t know how we did it

One of the things that Dr.  Patti has told us time and time again, is that we are doing the right thing for Gavin. She explained that she has other families going through similar things that finally decide to do residential care for their child. Once the child has been placed and they experience life with less challenge, they don't know how they did things before. I'm officially on the boat now.  Gavin's only been home for 2 days and I'm already going crazy. I honestly don't know how we lived like this before.  He's not necessarily even doing anything seriously wrong either.  It's just the constant stress of having to watch his every move with the other boys and pay attention to everything he says and does. As a…

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Do you dread parent teacher conferences?

I had to be at Summit Academy this morning at 9:00 am to meet with Elliott's teachers for conferences. Elliott's teachers couldn't say enough positive things about him.  He's excelling in academics and socially as well.  To quote his teacher, "Elliott just blows my mind". That said, they do have some concerns.  He's incredibly anxious and worries all the time. He also is lacking confidence in the sense that he doesn't believe in himself. Hearing this was not a surprise as we see the same things at home.  They are going to continue working with him on these things and we will do the same at home.  I'm so proud of my little man.  He's doing so awesome and as a parent, I loved hearing all these amazing things about…

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Screw you Murphy and your stupid Law

We just spoke with Elliott’s immunologist's office to follow up on his allergy testing.  If was freakishly good timing because they just received the results back. As it turns out, Elliott has a very, very serious allergy to almonds.  The nurse said that as soon as the doctor gets into the office, she's gonna show her and we will receive a call.  It looks as though Elliott will need to be carrying an epipen with him at all times. As if life wasn't hard enough for Elliott, now it's going to be even tougher. Please keep him in your thoughts and prayers. Oh, and if you happen to see Murphy, the author of that law, tell him I said to go screw himself.  :O

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Trouble in paradise

Not even 24 hours into Gavin temporary return home and we're already having problems.  The second I leave the room or the house, as it was earlier this morning, Gavin begins messing with Lizze.  He begins asking the same question over and over.  When I asked him about it, he admitted to it but denies knowing why. Once I'm home, the behavior stops.  As soon as I'm not around, he starts up again. Lizze doesn't appear to be letting him get under her skin.  Good for her.  :-) Gavin was talked to about this at least twice this morning already and I'm not going to play any games.  He lost his choice for lunch and will be having oatmeal.  To his credit, he took it in stride and didn't freak…

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How do you feel about the GFCF diet and #Autism

I don't know that I have ever actually discussed this.  I had a parent contact me and ask about the GFCF diet. Basically, their child has been on it for a year and they haven't seen any improvement. They asked for my opinion, which I shared. Personally, I don't buy into the whole diet thing.  There is little if any scientific evidence that shows any benefit for kids with #Autism. Having said that, many families swear by it.  It's hard not to stand up and take notice when so many people think it's the greatest thing in the world. We have Celiac in my family and the GFCF diet can literally be the difference between life and death.  So, I'm very familiar with the diet from that perspective.  My personal…

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What I’ve learned along the way

I wanted to share my latest article over at the Childswork Blog. This is a special post about my wonderful kids and what they have taught me. Please take a second to read it, click the Like button, leave a comment and share it on Facebook. I really appreciate you feedback and support. :-)   What I've learned along the way

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Sweet Dreams

After a rather rough day, Elliott is sleeping peacefully.  He has Bella and Maggie keeping watch over him. This is my favorite time of day because at this time, everyone is at peace.

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Operation Hope: Gavin’s 1st day home

Gavin has officially been home an entire day.  At this point, it looks as though he will be here until Wednesday evening.  I have to say that I think Sunday went pretty well, considering.  Gavin was very well behaved and aside from his usual bizarre behavior,  he didn't have any significant issues.  Elliott and Emmett on the other hand, we're a completely different story. Neither one of them would listen and Emmett was literally bouncing off of everything he could. Elliott spent a good deal of time crying/whining. They had fun with Gavin but were completely overwhelmed at the same time. I honestly hate doing this to both of them and Lizze but we have no other choice for the next few days.  Elliott and Emmett keep wanting to play…

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