Please keep Lizze’s grandfather in your prayers

Lizze and I went to visit her grandfather today in the nursing home. We haven't made it there until now.  There are many reasons for that, none of which have anything to do with not wanting to be there.  We're in over our heads on the best of days. There's also the fact that everyone deals with grief in different ways. With everything we have going on in our lives, Lizze hasn't been in a good emotional place to be able to deal with this.  However, we did make it in this afternoon. I could see how hard it was for Lizze. We stayed and visited with her younger cousin who was standing vigil, determined not to leave him alone.  The doctors say that there isn't much time left.  I…

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How do you handle the Christmas Holiday with your #Autistic child

I try to have this discussion every year about this time.  I personally enjoy and actually learn quite a bit about how your family handles the Christmas Holiday. Not everyone celebrates Christmas, I realize that.  The question is basically, how do you handle the holiday season? This tends to be a very overstimulating time of year for many kids and adults only the #Autism spectrum. It would be great if we could share some tips or tricks on how you minimize the holiday stress for your child on the sectrum. In the comments below, please share with us, how you handle the Christmas/Holiday season? How do you make it easier for your child with #Autism? How does your child on the spectrum respond to all the bright light, noise and…

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Confessions of a depressed #Autism Dad

It's been awhile since I updated you all on how my personal battle with depression is going. I'm not quite sure how to sum things up because there is so much going on in my life. Having said that, I thinks it's safe to say that I've been better but I've also been worse. I'm still taking my medication every day.  I'm still on 40mg of Paxil/day. I do think it helps and while it doesn't make things perfect it does help me to make it through the day.  Sometimes, making it to the end of the day is a victory in and of itself. I've thought about paying a visit to my doctor but truthfully, I'm not sure there's a whole lot more she can do. I talked with…

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How #autism can make food allergies more challenging

As you know, we have recently, like within the last week, begun a new journey with Elliott. This journey is kinda one of those bumps in the road that causes you to veer off course, at least for a little while. For us, that bump in the road was the discovery that Elliott has a tree nut allergy. The allergy is more specifically tied to almonds but he can't have any tree nuts anymore. This was most definitely unexpected but something that we are really trying to take in stride. In truth, we're pretty stressed out about this but we're also doing our best not to let Elliott know just how concerned we are.  I think that most kids would be rightfully upset to loose a huge portion of their…

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Whats wrong with this picture?

Last night I went to check on Elliott before go to bed.  This is what I found.  Can you see what's wrong with this picture? Let me give you a clue.  It's not so much what's wrong but what's missing. When I went to tuck my 6 year old son Elliott, this is what I found.  What's missing? That's simple, Elliott. In Elliott's place was Emmett's dog Bella.  Apparently, she had kicked Elliott out of his own bed last night.  Bella is one of those dogs that likes to really snuggle.  Sometimes she doesn't realize that she takes you so much room.  She means well but is struggling with boundaries. Ironically, that may need why she fits in so well.  :-)

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When one door closes……

I tend to not put to much stock in sayings like, "when one door closes another one opens". However, today has opened my mind to the possibility that there may be something to it. As you know, I have been writing for a site Childswork for a few months now.  It was my first paid writing job and I'm really grateful for experience I gained. However, Childswork and I will be parting ways and I will no longer be contributing to their blog. Admittedly I was disappointed to hear this but things happen.  Childswork is undergoing some restructuring and are simply no longer in need of my services.  I just wanted to let everyone hear this from me first.  There are no hard feelings and I harbor no animosity whatsoever. …

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Please keep Emmett in your thoughts and prayers

I mentioned the other day that Emmett was just beginning another fever flare. He's got mouth sores now and they are beginning to get pretty big. Emmett is obviously miserable and that makes for a very challenging situation.  You can see one of these sores in the picture below.  No one has been able to identify the actual cause of this. Right now it's labeled as PFAPA, which is a rare fever disorder. The fever part has gotten better this year, however, the mouth sores have gotten worse.  If you could please just keep Emmett in your thoughts and prayers over the next 10 days or so, I would really appreciate it. 

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Leap of Faith: The results of Lizze’s intake at the @ClevelandClinic

I wanted to kind of explain what happened today.  I'm completely exhausted and I don't have a lot of energy. We still have therapy for the boys tonight and so I won't be able to even sit down until around the time the boys will be going to bed. I wanted to take a few minutes and briefly explain what's going on at this point.  The experience was largely positive and the intake was probably among the most comprehensive and thorough I've ever experienced. A very pleasant and soft spoke nurse basically interviewed Lizze for about 2 hours. Essentially, they concurred that Lizze and the program were a match and that basically, she qualified for entrance. It's not quite that simple but you get the point. We learned more details…

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