Saying goodbye to adderall…

The Lost and Tired family will be saying goodbye to adderall. Elliott has only been on it for about 2 months, however, he's already not eating and is continuing to lose weight. Adderall is something that can be stopped on a dime and discontinued.  We will discontinue this beginning today and get in touch with his psychiatrist and pediatrician as well. They need to be kept in the loop and up to date otherwise they can't do their jobs.  The nutritionist is concerned because he's losing weight and hasn't grown in the last year. We are not in panic mode but this is something that we have to address and bottom line, he needs to be taking in more calories. However, that's easier said than done. 

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Lost and Tired plans for 2013

The approach that I have taken with Lost and Tired is why I think it's so successful.  I don't believe in telling people how to do things. I think that everyone's situation is different. There may be similarities but also differences. I'm a huge proponent of simply sharing ones experience and allowing others to take from it what they may. The way I see it is, I'm Lost and Tired, who am I to tell you that to do.  Having said that, I also believe in leading by example. I like to share with you all what has worked for my family and what hasn't.  What this does is present information that you can use to put something together that works for you family or situation. By bringing everyone together…

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Grocery shopping for your child with food allergies

Meeting with the Nutritionist today was very informative.  There is a lot that we are doing right and quite a bit we need to address.  Elliott is losing weight and we need to address that.  The problem is that he is anxious, depressed and has aspergers with a plethora of sensory issues.  Getting him to eat on a good day is hard enough.  However, enter a serious food allergy and now meal times become even more of a challenge than they already were.. We hit the grocery store on the way home, armed with knowledge and a wealth of new information. All I can say at this point is holy crap. This isn't going to be easy or cheap. I'm feeling pretty overwhelmed at the moment.

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Meeting the Nutritionist at @AkronChildrens Hospital: The waiting game

We actually arrived early.  Anyone with kids, let alone special needs kids, knows that can often times be a a victory in and of itself. The boys are sitting and being entertained by their respective 3DS's. Elliott is really nervous about meeting the Nutritionist today.  He was begging us not to take him today and promised that he would start eating again.  We explained that this is more for Mommy and Daddy but he is afraid of all doctors. Hopefully we will make it through this untraumatized. 

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Picking up the pieces, moving forward and finding balance

One of the big things that we have to do as a part of Operation Hope is trying to get our lives back together. Of all the things that we have to accomplish and all the challenges that must be met, the most difficult for me is picking up the pieces and moving forward. I realize that may sound a bit cliche but it is what it is.  Trying to get our lives in track is no easy task.  In fact, at times I feel it's impossible.  I so desperately want to be free from all the baggage we've collected over the years.  I want to see the boys happy and healthy. I want to be caught up on our bills and dramatically improve our living environment. However, to do…

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Meeting a Nutritionist at @AkronChildrens today

Lizze and I don't our best to be proactive parents.  We like to head things off before they can become a problem, at least whenever possible.  We also never shy away from seeking get out additional help, especially when it comes to our kids. Having said that, we will be meeting with a nutritionist at Akron Children's Hospital today.  Lizze and I spoke with our immunologist and they made the referral right away.  In fact, they actually have a nutritionist in the office every Wednesday for this type of thing.  We're hoping to get some guidelines and ideas on how to ensure Elliott is meeting go his nutritional goals, while at the same time, being on a pretty restrictive diet. At the moment, Lizze and I are fully aware that…

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Tuesday Therapy: Concerns about Elliott

Lizze and I spent much of our appointment with Dr. Patti discussing our concerns about Elliott and what he's been going through. I'm really worried about him and I don't know how to help him.  All I can do at this point is just reinforce with him that we are here if he needs us and that Mommy and Daddy will take care of him.  It doesn't seem to help much but at least he knows we are there for him. We think that most of his struggles stem from what is going on with Gavin and now his whole life has changed because of his new food allergies. In his eyes, he's losing everything.  I can't even imagine being 6 years old and feeling like that.  My heat breaks…

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Today’s #Autism Victory: Getting along…for more than 5 minutes

After meeting with Dr. Patti tonight, the boys were actually getting along.  It wasn't perfect but it was definitely something that falls into the category of getting along.  Lizze found this Christmas advent calendar game in the Google Play Store. Basically, a new game opens everyday as it counts down to Christmas. For a good 20 or 30 minutes tonight, the boys snuggled together on the couch taking turns with Lizze's phablet. I was really nice to watch because for once, they were getting along together for more than 5 minutes. In my book, that's a really big victory. :-)

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