I wanted to let you know that Gavin was released from the hospital this evening around 7:30pm. I haven't been able to update due to this site being down for a good while tonight.  Basically, Gavin stabilized throughout the day and was no longer having significant orthostatic issues. The problem was most likely medication related.  He hadn't had his salt tabs for awhile and that threw his system out of whack. The salt tabs helped his body to retain fluids which make it easier for his heart to maintain his blood pressure. Without the fluid retention bolstering his blood volume, his heart has to work harder to maintain. This can also lead to the orthostatic issues as well.  Orthostatic issues are when his heart rate and or blood pressure changes…

Sorry for the downtime.  Blue host was down once again.  I don't know what the heck is going on.  Please be patient as I either find a new host or address the issues with Blue Host.  :-)

We're sitting here waiting and I noticed something was wrong with Lizze.  Lizze is so stressed out that she's broken out in hives.  He entire face and neck are covered. We are getting her some benadryl and hoping for the best.  This is all too much for her. 

I spoke with Dr.  Moodley's office at the Cleveland Clinic.  We were originally going to be taking him to the ER at Cleveland. However, as we are getting ready to go, I received a call back instructing me to take him to Akron Children's Hospital instead. I don't know for sure why they wanted this. However, it's likely they either don't want him to travel that far or there isn't really anything we can do at Cleveland that they can't do at Akron. Either way, this day has very quickly gone right down the shitter.  I'm very close to losing what's left of my mind and just beating my head into the wall until it all goes away.  Hopefully, Gavin will be stabilized and we can take him home and…

In stark contrast to yesterday's start to the day, today has been a disaster. Elliott is all over the place right now.  Emmett's screaming and crying and Lizze can barely move. I feel my sanity slowly slipping away.......