We're sitting here waiting and I noticed something was wrong with Lizze. Lizze is so stressed out that she's broken out in hives. He entire face and neck are covered. We are getting her some benadryl and hoping for the best. This is all too much for her.
We have actually been for awhile now and are still waiting to go back. It appears that they are pretty busy at the moment. We have to wait for a room with a monitor. Gavin's slowly become more stable as time goes on. Hopefully we'll get back there and we can figure out what's going on. We had to miss Elliott's promotion. I saw him as he was going do to the dojo and I let him know that we were going to have to be with Gavin at the hospital and he was really disappointed. He didn't want to be doing the promotion in the first place, so this really sucks. Thankfully my parents are there with Emmett to cheer him on and take pictures. I friggin hate this.
I spoke with Dr. Moodley's office at the Cleveland Clinic. We were originally going to be taking him to the ER at Cleveland. However, as we are getting ready to go, I received a call back instructing me to take him to Akron Children's Hospital instead. I don't know for sure why they wanted this. However, it's likely they either don't want him to travel that far or there isn't really anything we can do at Cleveland that they can't do at Akron. Either way, this day has very quickly gone right down the shitter. I'm very close to losing what's left of my mind and just beating my head into the wall until it all goes away. Hopefully, Gavin will be stabilized and we can take him home and…
We just got home from Gavin's martial arts promotion. Gavin did really well and I will have pictures up when I can. Right now, we have a problem. It looks like Gavin is in another autonomic crisis. After promotion we got spend some time with him in his classroom. He didn't look good to me and I asked him to check his heart rate. He did and it was 50 bpm, standing up. That would explain why he was so shaky and pale. I had him sit down and take it again. This time his heart rate shot all the way back up to 138 bpm. That's almost a 100 bpm difference. That's not good at all. Your body is supposed to compensate when you transition between sitting and standing. …
In stark contrast to yesterday's start to the day, today has been a disaster. Elliott is all over the place right now. Emmett's screaming and crying and Lizze can barely move. I feel my sanity slowly slipping away.......
Lizze and I have found ourselves in a position where we aren't sure what the right thing to do is. Normally these positions revolve around Gavin but this time it's Elliott. As many of you know, Elliott has aspergers and severe anxiety. He's been through a great deal in his life, especially in the last month or so. This week at school is martial arts promotion and the schools annual Christmas program. Elliott wants nothing to do both either. Promotion is actually this afternoon around 2pm. However, that conflicts with Elliott's weekly OT appointment. At this point, Elliott is doesn't want to miss OT. He's also dead set on not participating in the Christmas show his classroom is putting on this Thursday. As his parent, I'm at a loss as…
This morning Gavin will be receiving a promotion in martial arts. In the afternoon, Elliott will be receiving his as well. It's going to be a busy but exciting day. Gavin always looks forward to promotion, so he's probably pretty stoked about this right now. Elliott on the other hand, doesn't want to go. He would rather go to his OT appointment instead. I'm not sure what we're going to do. However, I think we are leaning towards canceling OT and pushing forward with promotion. I'll take plenty of pictures.
It's been awhile since my last confession. Having said that, I reached a milestone that I'm not proud of and I want to share this with all of you. My goal with this is to continue opening a window into our lives but also, help someone if they happen to be dealing with the same thing. I mentioned that I have reached a milestone. That milestone is my physical weight and I'm not happy with it at all. 10 years ago I was body building and in excellent physical condition. Between life happening, my poor coping skills and lack of motivation, I have reached 294lbs. Now, I don't necessarily look that heavy because of my previous body building but I certainly feel it. To be completely honest, I'm ashamed and…