Happy New Year 2013

First of all,  Happy New Year.  I had planned on a really profound post but ended up deciding to keep it simple.  I hope that each and every one of you have a safe and happy new year.  I want this year to bring with it positive things to your life.  Thank you all for helping make this the most successful year at Lost and Tired yet.... Thank you for all the connections, friendship, advice and listening ears.  I truly, truly appreciate each and every one of you.  I wish you all the best...... This was my Christmas present from Lizze's parents.  My three boys, all together for the first time, in a picture.  :-)

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My final confession of 2012

There comes a time when you have to face reality.  I think this happens to everyone at some point in their life.  Tonight, we are spending New Year's Eve at my parents house.  As I was sitting down to eat dinner, something on the Christmas tree caught me eye. It was an ornament from back in 2005. What caught my soon to be, tear filled eyes, was the picture of Gavin inside the ornament. It was from when he was 5 years old and still had the light in his eyes. This is after he was diagnosed with Aspergers but well before everything else took over and the child we knew was gone. With all the talking I've done about struggling to decide what to do with Gavin, I know…

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I’m giving up the fight….sort of

Sometimes there comes a point when you realize that you can fight no longer.  For me, that time has come.  I'm exhausted and I've spent all I had to the point of completely being depleted. I have far to many battles waging right now and I don't have enough left was wage war on multiple fronts. The time has come for me to strategically surrender. I'm in a place that I have little choice but to reprioritize.  Lizze needs to be in the Chronic Pain Rehabilitation Program.  However, this is far easier said than done. The logistics aren't damn near impossible. She will likely have to stay in Cleveland, either with a host family or in a hotel. We would bring her home on the weekends. We are looking at…

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10 Things My Autistic Kids Wished You Knew

Written by me, Rob Gorski (Lost and Tired) and dedicated to my amazingly beautiful children.  1. I’m sorry I have fits but I’m not a spoiled brat. I’m just so much younger on the inside than I am on the outside. 2. I’m easily overwhelmed because I see and hear everything. I hear the lights hum and clock tick. Everything is so loud it makes my head hurt all the time and my eyes hurt from all the bright lights. 3. I’m not stupid, I’m actually very smart. I just don’t learn the way you want me to. Please learn about Autism so you know how to help me better understand what you are trying to teach. 4. Please don’t be mad at mommy and daddy because we don’t come over for…

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We drove 2.5 hours for a 10 minute appointment

We had our appointment with the headache doctor this morning.  Much like driving through a small town, I blinked and it was over.  Our appointment was literally only 10 minutes long and the round trip drive was at least 2.5 hours. Lizze wanted them to take over her migraine care until she could get into the Chronic Pain Rehabilitation Program. However, they said that there was literally nothing they could do.  She needs multifaceted care and that was simply not possible until she entered the Chronic Pain Rehabilitation Program. Once there, they would take everything over.  Unfortunately, we don't know when that is. The problem is that much the same as our lives in general, Lizze is way to complex to make medication changes at this point.  The doctor stressed…

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Stress makes me sick

Last night I was so stressed out that I made myself sick, literally.  I took something for my head, as well as the severe nausea and went to bed early.  I felt like I was going to die.  Thankfully, I'm feeling much better this morning because I have a lot of driving to do this morning.  Elliott and Emmett are in rare format this morning and so getting anything done prior to our departure is nearly impossible.  I'll keep you all posted as to how we're are progressing at the Cleveland Clinic this morning. You'll be able to follow along here if you are interested. 

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Confessions of an #Autism Dad: I put myself in timeout

I'm writing this from timeout.  That's right, timeout. At this very moment, I'm in a really bad place and so I've placed myself in timeout while Lizze sits with the boys and puts them bed. Elliott and Emmett have been fighting all evening.  To be honest with you,  I just can't take anymore right now.  There is so much screaming in this house that it's maddening.  I don't even know why they are fighting in the first place.  I'm sure it has something to do with the Gavin Effect, at least in part.  The Gavin Effect is the issues that stem from Gavin being present in the house.  The stress and tension that is produced by his behaviors, even when he's making good choices, could be cut with a knife. …

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