A bead on a string

Lizze made a very interesting observation this morning.  It's more like a way to describe something we have been seeing as of late.  I wanted to share this because I thought maybe someone can relate to this. For many years, Gavin's level of functioning has been a moving target.  Sometimes he's very high functioning and other times he just seems to lose skills that he has previously mastered.  To say this is frustrating is an understatement.  It's also heartbreaking to watch as your child struggles with even simple, 1 or 2 step tasks.  Lizze asked me earlier today if I've noticed how Emmett is like Gavin? I wasn't sure what she was talking about.  She explained that Emmett is like a bead on a string. This means that his level…

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Today’s Victory: Surviving the Supermarket

Lizze and I took the boys to the grocery store this morning.  It was really hard on Lizze but she made it.  The boys did pretty well, considering. After we were done,  I had to fill the tank up for our ventures to the Cleveland Clinic this week.  I filled the tank with Premium for around $30, thanks to Giant Eagles fuel perks.

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Everyone loves an electric blanket

Our dogs are as unique as our family.  They each have their little quirks. Bella happens to like covering herself in a blanket,  an electric one to be more specific.  However, any blanket will do in a pinch. 

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Time to decompress

With Gavin back at his grandparents, we have to begin the recovery process once again. Elliott in particular has a rough time with the transition. On one hand, he absolutely adores Gavin but on the other hand, he fears him as well. That's a sad predicament for him to be in, not to mention a confusing one. We spent a large portion of this past evening trying to help Elliott decompress and relax.  He and I spent some time just snuggled on the couch.  He's pretty clingy and needs to feel safe. I spent as much time with him as I could before Emmett required my attention.  Lizze and I tried to tag team the boys tonight. Lizze gave everything she had to these guys and honestly she wasn't even…

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OMG.. Make the screaming stop

I've spent the last hour with Emmett, trying to console him, unsuccessfully I might add.  He's in a horrible place right now and has been screaming nonstop. Between Gavin having been home and what is very likely the beginnings of another fever flare, Emmett is beside himself. I know that I don't need to explain to most of you what it's like to endure the constant screaming.  What so difficult for me as a father is that there is no consoling him.  Aside from either figuring out what he wants or why he's upset, if that's even possible, there's very little that can be done.  I let him know that I'm there and I just try and remain present, incase he needs me.  Sometimes I can even snuggle him while…

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Gavin is leaving for his grandparents tonight

Gavin will be moving back in with his grandparents tonight.  Christmas break is over now and school resumes on Monday.  Gavin has been very well behaved for the most part but he was only here for a short time.  He can do pretty well over a shorter period of time but struggles after a while.  I'm grateful that things weren't any worse than they were.  At our wraparound meeting yesterday, it was brought up that Elliott is paying a very high price for everything going on with Gavin. Gavin's behavioral problems have resulted in both Elliott, Emmett and Lizze being traumatized over the years.  The simple fact that he's in the house is enough to trigger Lizze's PTSD and send Elliott and Emmett into overload.  Even though Gavin was well…

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Is 60″ too big??

I forgot to let you know how the appointment with Geek Squad went the other day.  To refresh your memory, we had to Geek Squad come out and service our TV while the warranty was still good.  There are black bands that appear on the screen now and they have been getting worse over the last year or so.  Geek Squad came out and determined that the LCD panel is bad and needs replaced. He ordered the panel while he was standing there.  They are scheduled to install it on the 12th of this month.  However, and this is what I'm absolutely hoping for, there is a good chance that the replacement panel isn't available anymore.  If by the 10th day, the panel hasn't arrived, they will give me a…

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When your child says “I want to kill myself”

Elliott came downstairs this morning to let me know that Emmett had said something that really upset him.  I assumed this was just more bickering and perhaps a bit of tattling. However, I was completely caught off guard when he told me that Emmett said "I want to kill myself". For those of you that don't know, Emmett is our 4 year old little boy. He was officially diagnosed with #Autism about a year and a half ago.  One of Emmett's challenges has to do with speech and communication.  While he has made great strides he still struggles with expressive language and can be very difficult to understand.  This makes him very frequently frustrated and understandably so. Apparently Emmett had become very frustrated with himself over something he was working…

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