No worse for ware

We finally arrived home and we're all in one piece.  Some of us are more whiney than others but all in one piece.  This was a good appointment and one that put our minds at ease a bit. The pediatrician says that Elliott’s height and weight are just fine and not to worry about it.  In fact, he's grown about half an inch since September and only lost 1 lb.  That's really good for a kid on this particular ADHD medication.  He said that he's not sure why the Nutritionist was so worried about his height and weight but as far as he's concerned, Elliott's fine.  That's something really good to hear because we have enough to worry about.  Now we have to make a decision about the anti-depression medication. …

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Please keep Elliott in your thoughts and prayers

We had to pick Elliott up and take him to the pediatrician's office. The entire 30 minute drive he was absolutely hysterical. Elliott no longer wants to leave the house.  Most of the time, getting him to leave for school is hard enough. Clearly, he's not in a good place.  Lizze is battling an unforgiving migraine but she came along anyway because this wouldn't be a fun trip. Mr. Emmett John was not cooperating in the office so I'm sitting with him in the car while Lizze is meeting with the doctor.  God only knows how it's going in there and I'm really worried about Elliott. Please keep him in your thoughts and prayers as we do our best to help him....

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Putting aside typical gender roles

All this talk about cooking had me wondering something.  Who does the cooking in your family? In the Lost and Tired family, we don't have what is likely considered a typical family dynamic.  Because of our particular situation and the overwhelming amount of health issues, we have basically abandoned gender roles. As the man of the house, I do the cooking, mostly because I really enjoy it.  I also do laundry, dishes and bathe the kids.  I've been known to repair clothes and I'm usually the one to go grocery shopping.  This is because Lizze and I are a team.  Because of her health issues, she is limited as to what she can physically do.  As her teammate, I automatically pick up the slack and when she's able to, she…

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Getting my boys to eat their vegetables

I am thrilled to death that I have managed to get Emmett to eat vegetables that he would never touch otherwise. I've managed to pull this off with my world famous Chicken Noodle Secret Soup. I make this soup from scratch and Emmett absolutely loves it.  Inside this seemingly normal soup contains,  tons and tons of veggies. This batch contains the following: Bock Choy Brocoli Carrots Flax Celery Dandelion Greens Spinach 2 whole red onions Emmett doesn't even notice because you can't actually see them.  I liquefied all the veggies and added it to the soup.  This works out very well and I'm so stoked that Emmett is so excited about this soup.  How do you manage to get your little ones to eat their vegetables?

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Grandma saves the day……again

Lizze's Mom was kind enough to step in and take Gavin to his infusion today.  Talk about a lifesaver. Lizze is laying down and hopefully she'll feel better. We still have to get Elliott to his appointment in a few hours. 

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Lizze is not feeling well

Lizze woke up sick and now we have a problem. Gavin has to be at his infusion in a couple of hours and I can't take him.  The reason I can't take him is because Lizze struggles on the best of days.  Now she's sick on top of everything else. I don't know what we are going to do.

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Divide and Conquer

Today is going to be kept of those days that can only be handled by dividing our resources and hopefully conquering our objectives. As a special needs family, we often find ourselves in a position where we must be in more than one place at the same time.  These times require that we split up and move towards our own objectives. This will once again be the case this afternoon.  Gavin has to be at his IVIG infusion, located at Akron Children's Hospital.  Elliott has to be at his pediatrician during the time that Gavin is being infused. Since we can't all be in two places at once, we have to divide in order to conquer. Lizze will accompany Gavin to his monthly infusion.  I will stay back with Emmett…

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The #autistic mind

I absolutely love my kids.  They are amazing and experiencing the world through their eyes is truly a gift. Yesterday, Emmett came downstairs and wanted to show something.  He was cracking up. He asked me if i wanted to see something hilarious.  I said sure, I could always use a laugh. At this point he proceeded to hang his dolphin key chain on this little elephants trunk.  He then took another dolphin key chain and hooked it on the first dolphin. He then showed me his joke and began laughing and ran away. This totally made my day. He's so stinking cute and his mind is absolutely amazing beautiful thing.  Please feel free to share your favorite experience with your child. 

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