As Lost and Tired becomes more and more popular both inside and outside of the community, I am sometimes asked to support a non-profit #Autism Organization. To be completely honest, I almost never align myself with any organization. It's not because I'm a loner or don't play well with others.  It's because I have yet to really find an organization that I have personal knowledge of that actually makes a difference in the day to day lives of autistic persons and/or their families.  This has been sort of a pet peeve of mine for awhile.  I'm certainly not saying that these #Autism organizations don't help the cause.  It just seems like sometimes they become too big for their own good. When this happens, it feels like to me, their message…

Today is Gavin's first IVIG infusion of 2013. This makes 2 years of successful treatment for his primary immunodeficiency.  When I say successful, I mean hasn't gotten much worse. He hasn't gotten seriously I'll and his dosage has only needed to be increased once. He will need these infusions for the rest of his life but he does really well and never complains about the 4+ hour procedure.  It's amazing how fast time has gone by. It feels like we just got blindsided by the diagnosis yesterday.  I remember getting the phone call letting us know that he had a severely compromised immune system. We were totally shocked because in all his 11 years, no one had ever picked up on this. It was the gastro doing a followup blood…

All three of my boys love playing video games. Recently, Emmett has really gotten into playing the Xbox 360. We're pretty selective about what we allow him to actually play. One of his favorite games is Viva Piñata. Talk about exploring the far reaches of his imagination. He's able to create these beautiful gardens and attract and subsequently care for these colorful piñata type creatures. It's an older game but most definitely a good one, especially for kids.  It's really cool to watch him create and care for these virtual gardens and treat them as though they were real. Is there a particular game that your kids really love to play? This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any…

My grandmother, God love her, bought the kids sure subscriptions to Highlights. Do you remember Highlights? I used to love Highlights and they always helped me pass the time while waiting at the doctors office. Highlights was one of the coolest magazine ever and now my kids get to have the same experience. Apparently, now there is a Highlights for different age groups as well. Lizze spent some time this afternoon reading with Emmett. I haven't heard him giggle like that in a few days. He loved the hidden pictures and was able to find most of them on his own. Thanks Grandma..... You sure know how to pick'em. :-) Now I just need to find out if they cater to 34 years olds. :-) This site is managed via…