Headache Infusion Day 1: Update

https://www.youtube.com/watch?v=VadtUii6OUs This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos. I know how to spell but auto-correct hates me.  ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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What kind of help could your #autism family use?

I was asked in a recent post,  what kinds of things would could a non-profit do to benefit my special needs family?  She was asking a really good question and so I thought I would pose the question to my readers as well.  What could a non-profit autism organization do to help your family? Please leave your feedback in the comments below.  This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos. I know how to spell but auto-correct hates me.  ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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Does “Lighting it up blue” really help anyone touched by #Autism?

Disclaimer: I'm adding this disclaimer because there is always going to be someone that takes a post like this the wrong way. I'm not saying the Autism Speaks or by extension, Light it up blue, is a bad thing. I just feel like it's more about the organization and less about the people they are supposed to be helping. Again, I'm not saying that's the case. I'm simply sharing my thoughts and opinions. These are my opinions based on my current knowledge and understanding. I remain open minded, regardless of my opinions. I would ask you to do the same. Why would I of all people, question the purpose of the light it up blue campaign? I can already see the hate mail flowing in after this but here's the…

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Off to a good start

Emmett and I got Elliott off to school with no problem. All the stars aligned this morning and I had a level of cooperation that I rarely ever see. I'm super proud of them. :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos. I know how to spell but auto-correct hates me.  ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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Operation Crush the Migraine Begins

Lizze has begun her headache infusion and now we will simply have to wait and see if it works.  Please keep her in your thoughts and prayers. She can use any and all positive thoughts. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos. I know how to spell but auto-correct hates me.  ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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Living on the edge

This is a pretty big week for the Lost and Tired family. Lizze has her migraine infusion for the first half of the week and I'll have the boys.  We're really feeling the pressure in many areas of our lives right now. Most of that pressure are things outside of our control. In a lot of ways, that sorta makes it worse, at least for me.  By nature, I'm a fixer and when I can't fix things, I really stress out.  Right now, the focus is on the immediate things, like Lizze's headache infusion. At this exact moment in time, this is really all we can do.  If the procedure works, that will be a huge win for both Lizze and the rest of us. This migraine has really incapacitated…

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What would you do to be free from pain?

In the morning, Lizze will be undergoing a procedure called a headache infusion. This is basically only done in extreme cases where conventional medication can't control or break a migraine.  This will be Lizze's 3rd time going through this in the last 2 years.  You may recall that she has been suffering from a migraine that has lasted over 13 months now. This procedure is done over a period of 3 days.  Lizze will be hooked up to an IV and fed a steady stream of narcotics and migraine medications.  This procedure lasts for 6 hours each day for a total of 18 hours at the end of the 3rd day.  In the past, this has successfully broken her migraine. The last time she had this done was about a…

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The best bad parenting idea I’ve had in awhile

I found these at the store yesterday. I didn't buy them but I was sorta tempted.  When I saw them, the first thing that popped into my head was all the fighting my kids do.  I was tempted to pick these up so that the boys could settle these disagreements once and for all.  It's totally wishful thinking, I know.....and probably really,  really bad parenting as well. It's just that get so sick of hearing them fighting all the time.  These look like a fun way of getting out some aggression. This is probably the best bad parenting idea I've had in awhile.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos. I know how to spell but…

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