Headache Infusion: Completed

Lizze just arrived home from her final infusion this afternoon.  My Mom brought her home cause I had Elliott home sick. She basically went straight to bed without saying too much.  I do know that her liver and kidneys can't take a 4th day and that's why they won't allow it.  Her pain has basically been cut in half.  She began at a 12 and ended at a 7. That's progress, even though it may not seem like much. We also learned that she can have this done about every 6 to 8 weeks if need be. As soon as she shakes off the meds, I can try and get some things done....... This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please…

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Third times a charm

Today is Lizze's 3rd and final infusion. I'm really hoping that this does the trick and kills her migraine.  If it doesn't, we are going to look into a four day. Elliott stayed home from school today.  He wasn't feeling well when he went to bed and that continued through this morning.  He's basically been laying down all morning. Please keeping praying that this works and Lizze will finally find relief. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos. I know how to spell but auto-correct hates me.  ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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A couple of things

I wanted to let ya'll know that I'm going to be pretty hit and miss for the next day or so.  Lizze has her final infusion in the morning and I'll have the boys to look after while she's recovering from this procedure. I also have a video review of the new tablet I have to giveaway as well as a few posts that I'm slowly working on.  I'm gonna share a few of my favorite posts so that my new readers have a chance to check them out during the down time.  Also, LiveFyre seems to have gotten everything worked out. All comments have been successfully imported and I thank them for all their support.  To be honest, I've never seen a company support a product or service quite…

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Headache Infusion: Day 2 Wrapup

Lizze has completed her 2nd successful day of infusions.  One of the meds they gave her causes her whole body pain.  It's a side effect of that medication but it's very short lived and the benefits far outweigh the drawbacks. Lizze was able to walk out to the van but she's very heavily medicated and otherwise really out of it. She came home and was able to stay awake just long enough for me to make a few very important phone calls. As soon as I was done, she was in bed and asleep. I wasn't able to get any detailed information out of her about how she was feeling, largely due to being so heavily medicated. The other part is because this process is physically exhausting. I was able…

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The wonders of #autism a tablet and Netflix

Emmett and I are waiting for Lizze to finish up day 2 of her headache infusion. He's just hanging physically in his carseat, watching Netflix on a tablet.  He has said so much as a word since his Leap Frog movie started, aside from him giggling. I'd say that's a win for sure.  This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos. I know how to spell but auto-correct hates me.  ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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Confessions of a Depressed #Autism Dad: Depression is Winning

As you likely know from previous posts like this, I'm battling depression. During this hard fought battle, I really feel as though I came out on top most of the time.  However, the depression seems to have the upper hand right now. Lizze and I have an appointment with my doctor next week to discuss the need for a new medication.  I'm pretty sure I'm maxed out on Paxil, so my options would be to supplement or change meds all together. The truth is, I'm really beginning to crumble under the pressure. Even Dr. Patti has noticed during our sessions with the boys that I'm not doing as well as I once was. Lizze has expressed concern that the Paxil just isn't cutting it anymore. I've aways valued her opinion…

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Preparing for round 2 of the headache infusion

When Lizze left the neurologists office this afternoon, she left with a little present called a hep lock. Basically, the hep lock is a 6 inch pieces of IV tubing coming of the catheter, that's still in her arm. This makes it easier and less painful with they start the IV on day 2. I had to flush the hep lock out tonight and was really surprised to see that they were not using needless equipment.  I thought everyone had pretty much switched over to needless. Flushing her hep lock really took me back to doing my time in the ER for medic school. I really miss those days.......but at least Lizze doesn't need to be stuck again for the 2nd infusion. Hopefully, the port will remain in so Wednesday…

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Anyone else hate the tags on clothing?

I don't know about you folks but I have grown to hate these things on clothing called tags. I hate them and so do my kids. I've lost track of how many of these little bastards I've cut off of various items of clothing over the years. For the love of God, please stamp the tag information on the shirt itself.  It's got to be cheaper than stitching in multiple tags. If I was in charge for a day.    

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