Happy 7th Birthday Elliott

I want to share with everyone that today is Elliott's birthday. He turned 7 this morning and I remember the day he was born, like it was yesterday. Elliott is truly our miracle baby because he almost didn't make it out of the NICU. After a very long and complicated pregnancy, Elliott was born premature and suffered 2 collapsed lungs and a nasty case of pneumonia.  He came very close to dying but fought back.  7 years later, I'm writing this post and wishing him a very Happy Birthday.  :-) I have to say that coming so close to losing a child really gives you a unique perspective  on life.  Seeing Elliott hooked up to everything in the NICU was the scariest thing I have ever experienced in my life. …

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Things I never thought I would say to my kids

Last night, Emmett was carrying around 3 pieces of cold pizza.  While eating one piece with his left hand, he was scratching his crotch with the two other pieces in his right hand.  Without even thinking about what I was saying, I said: "Emmett, stop scratching your crotch wit your pizza." Only afterwards, did I realize the craziness of what I had just said.  :-) Have you ever said anything to your child that you never thought you would ever say? Please share, we could all use a laugh. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing…

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30 Days of Water: Falling off the wagon

It's been a little while since I updated you in my attempt to give up all other beverages except water.  I did really good for the first week or so but caved in a few times since then.  Sometimes, I just get so stressed out and water isn't very comforting for me.  I had some root beer while we were all Chuck E Cheeses this weekend and I drank some OJ a couple of days ago.  While, I didn't remain as steadfast as I would have liked, I'm still drinking way more water than I was before.  I hardly ever drank water before, it's was always milk or soy milk.  For some time now, 95% of my liquid intake was things like milk, pop or juice.  For the last week…

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Our Return to Akron Children’s Hospital and the Cleveland Clinic

This week is going to be a crazy one for us.  Gavin has his infusion in the morning at Akron Children's Hospital.  He will be receiving IVIG for about 4+ hours tomorrow.  This is a treatment for his primary immunodeficiency and it's the only thing keeping him as healthy as he is. On Tuesday, we will be returning to the Cleveland Clinic in order to see his autonomic specialist.  The Cleveland Clinic appointment is extremely important because Gavin's heart rate is still way to high and we need to figure out how to reduce it to a safer level.  We will also have to deal with the excessive weight gain as well. We can't allow his eating habits and weight gain to affect the way his medications are working.   I…

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Check out my #Autism Awareness Store

I wanted to invite you all to visit by new #Autism Awareness Shop over at CafePress. My reasons for opening this store are many but most importantly, I want to spread Autism Awareness in unique and creative ways. My goal is to start dialogue with those unfamiliar with Autism and also show support for those touched by it as well. A portion of each sale will come back to me but having said that, it's not really about the money. Honestly, every little bit helps but all I'm really looking to do is help cover the costs associated with this site, the My Autism Help Forums and the out of pocket shipping costs that go along with my giveaways. Basically, I want to keep being able to do what I do, without…

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The nightmare that is Chuck E Cheeses

We took Elliott and Emmett to Chuck E Cheeses on Saturday.  Elliott's birthday is on Monday and we wanted to do something special for him. He's going through a lot right now and we wanted to just celebrate him in a way that he would be thrilled to death with.  He loves Chuck E Cheeses and actually does really well there despite everything that Chuck E Cheeses is.  We all had a great deal of fun until I got sick.  That's right, Daddy sorta ruined things towards the end because I had to get home and lay down. The boys were really understanding and I'm really grateful for that but I still feel really bad.  I'm really glad the boys had a good time but OMFG, I friggin HATE Chuck…

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Please join the My #Autism Help Forum and help me to help others

Do you ever find yourself wishing that you could talk to someone that understands? Someone that get's it. Personally, I know what that's like and I decided to do something about it. I want to encourage everyone to join the My Autism Help Forums. The My Autism Help Forums are designed by me and run on the industry standard forum software, vBulletin. Because I own, manage and enforce rules in the forums, they are a safe place to speak your mind, vent or ask/answer questions. There is a zero tolerance for bullying or harassing. I want everyone to feel free to share without fear of repercussions from other members. We don't always have to agree with each other. I do however, require that you treat everyone with dignity and respect.   The forums are readable by…

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…..and the winner is Bruce R. (@bruceray)

I'm thrilled to announce that Bruce R. is the winner of the latest Lost and Tired/Idolian android tablet giveaway. I have been in contact with Bruce and he is very excited to receive this amazing tablet from Idolian. Stay tuned for the next Idolian Tablet giveaway. This should be live on 3/04/13.

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