I just arrived to the ER and have gotten settled in and up to speed. My mom picked me and Emmett up and I dropped them off at her house.  On the way, we almost got into a wreck when some dude in a truck came within inches of smashing into us.  Anyway, as I walked I to Gavin ins room, they were struggling to get him to cooperate with his IV and he was freaking out.  I got there in the nick of time to help calm him down and the awesome staff got the IV placed.  Gavin is receiving a bolus of fluids to help stabilize him.  I'm not sure that's going to help though.  It may actually be contraindicated because he's on meds to retain fluids and…

I spoke too soon with my earlier post.  Gavin crashed while getting prepped in the infusion lab and was rushed down to the ER.  He's is rough shape and I'm making arrangements to get up there and be with him and Lizze.  Ironically, this is the 2nd or 3rd time  that this happened the day before he was to see the autonomic specialist at the Cleveland Clinic.  I'll do my best to get you posted. Thank you for your continued thoughts and prayers, we really need them now. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and…

Gavin is currently getting prepped for his monthly IVIG infusion.  This infusion addressing his severely compromised immune system.  He's currently in the second year of infusions and for the most part, is doing very well with them.  Since the infusions,  he hasn't suffered any major acute illnesses, despite his overall health issues. Hopefully, today's infusion will go well and his body can once again tolerate the infusion. Please keep him your thoughts today.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired…

I want to share with everyone that today is Elliott's birthday. He turned 7 this morning and I remember the day he was born, like it was yesterday. Elliott is truly our miracle baby because he almost didn't make it out of the NICU. After a very long and complicated pregnancy, Elliott was born premature and suffered 2 collapsed lungs and a nasty case of pneumonia.  He came very close to dying but fought back.  7 years later, I'm writing this post and wishing him a very Happy Birthday.  :-) I have to say that coming so close to losing a child really gives you a unique perspective  on life.  Seeing Elliott hooked up to everything in the NICU was the scariest thing I have ever experienced in my life. …

It's been a little while since I updated you in my attempt to give up all other beverages except water.  I did really good for the first week or so but caved in a few times since then.  Sometimes, I just get so stressed out and water isn't very comforting for me.  I had some root beer while we were all Chuck E Cheeses this weekend and I drank some OJ a couple of days ago.  While, I didn't remain as steadfast as I would have liked, I'm still drinking way more water than I was before.  I hardly ever drank water before, it's was always milk or soy milk.  For some time now, 95% of my liquid intake was things like milk, pop or juice.  For the last week…

I wanted to invite you all to visit by new #Autism Awareness Shop over at CafePress. My reasons for opening this store are many but most importantly, I want to spread Autism Awareness in unique and creative ways. My goal is to start dialogue with those unfamiliar with Autism and also show support for those touched by it as well. A portion of each sale will come back to me but having said that, it's not really about the money. Honestly, every little bit helps but all I'm really looking to do is help cover the costs associated with this site, the My Autism Help Forums and the out of pocket shipping costs that go along with my giveaways. Basically, I want to keep being able to do what I do, without…