I mentioned last night that Elliott has to go to the doctors because he's getting sicker and with him having asthma, we have to be very careful. We also have to be careful how we present to him that he's going to the doctors as he has significant anxiety issues and doctors are at the very top of that list. This morning when  I broke the news to him that he was going to see the doctor today, panic immediately set in.  In an attempt to reframe this situation and help him feel better about going, I changed my approach. I had already assured him that there would be no shots or bloodwork. They just need to make sure that he's not developing bronchitis or pneumonia.  When telling the truth…

I'm really worried about Lizze. She's not doing very well with this whole thing, not that anyone is, but she's absolutely hit the hardest. She's a bundle of nerves right now, raw, exposed nerves. I need this meeting on Friday to be super productive because we are very quickly running out of time.  We are going to reach a point where it will be too little too late.  Everyone has their breaking point.  Everyone reaches a point where their spirit can be broken.  Things like that are very difficult to recover from. This is just getting to be too much.  Now, I'm off to bed.  I want to once again express my most humble and sincere thank you for all the love and support you have all shown us.  I…

As promised, here's the video blog from last night.  It may be a bit redundant because of the post I did earlier today but I really think it's important to watch this because it really gives you insight into the life of a special needs family.  The video is longer, so please bare with it.  Think of it as an episode of your favorite show, only this is about something very serious and can help spread awareness.  I've never really shown this type of emotion publicly and I'm not sure how people are going to take this.  However, I basically give you a huge window into our life.  Some will appreciate this for what it is and others will dismiss it.  All I can say is that I hope it…

I know a lot of you are probably wondering how today's trip to the Cleveland Clinic went.  Rather than try to put into words everything that has happened over the past 2 days, I did a video blog that will either post tonight or tomorrow. It's about 25 minutes long but I needed to vent. A the moment, Gavin's doing well but we learned some things today that we didn't know.  To be honest, we didn't realize how truly fragile Gavin is. I explained it all in the video. Right now I'm emotionally and physically drained.  I have nothing left tonight.  I just wanted to let you all know that we appreciate all your support.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note…

After a drive that felt like it would never end and several missed elevators, we've finally made it to the Cleveland Clinic for Gavin’s appointment in the autonomic clinic. Wish us luck. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.