Elliott’s narly nose

Elliott did awesome at the pediatrician's office this morning.  He was nervous but at no time did he let it get the better of him.  Great job Elliott.  :-) The downside is that he is dealing with another nasty sinus infection.  His lungs are clear at this point so that what's most important, especially with his asthma. Dr.  Handwork is the best pediatrician and he always works so well with the boys as well as with us.  It was pretty funny because he described Elliott's nose as looking pretty narly. The boys got a kick out of that and between Dr.  Handwork and the whole poop in a bag thing, it was an enjoyable visit.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note…

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Do you have a song that makes you think of your child?

I'm one of those people that attached a great deal of meaning to songs.  While waiting to pick up Gavin from school today, this song came over Google Music and no matter what I'm doing one where I'm at, it always makes me think of Gavin. The name of the song is Unwell by matchbox twenty. I've associated this song with Gavin, ever since he began have psychotic breaks.  When  Gavin experiences a psychotic break, he basically sees things and hears things that are really there.  Psychotic break simply means that he's lost touch with reality. This song always reminds me of those struggles we faced when we first discovered that Gavin has form of schizophrenia.  In some weird way, this song has always been comforting for me and I…

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Please poop in a bag

We were at the pediatrician's office this morning for Elliott.  Inside the office is this sign that says,  please be kind don't leave poop behind. I think it's hilarious but today was even funnier because Emmett wanted me to read the sign to him.  This is a video of that experience. Enjoy. https://www.youtube.com/watch?v=TUJfPgGBGAo This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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Reframing: Creative solutions to #Autism related challenges

I mentioned last night that Elliott has to go to the doctors because he's getting sicker and with him having asthma, we have to be very careful. We also have to be careful how we present to him that he's going to the doctors as he has significant anxiety issues and doctors are at the very top of that list. This morning when  I broke the news to him that he was going to see the doctor today, panic immediately set in.  In an attempt to reframe this situation and help him feel better about going, I changed my approach. I had already assured him that there would be no shots or bloodwork. They just need to make sure that he's not developing bronchitis or pneumonia.  When telling the truth…

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I’m worried

I'm really worried about Lizze. She's not doing very well with this whole thing, not that anyone is, but she's absolutely hit the hardest. She's a bundle of nerves right now, raw, exposed nerves. I need this meeting on Friday to be super productive because we are very quickly running out of time.  We are going to reach a point where it will be too little too late.  Everyone has their breaking point.  Everyone reaches a point where their spirit can be broken.  Things like that are very difficult to recover from. This is just getting to be too much.  Now, I'm off to bed.  I want to once again express my most humble and sincere thank you for all the love and support you have all shown us.  I…

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The tension is mounting already

I realize that this will sound cliché but you can cut the tension in our home with a knife. Gavin's been home for two days now and to say that everyone is in edge would be grossly understating things.  Truthfully, he's been pretty calm but we're already seeing the manipulation starting and the stress level in the house is climbing. At the moment, we're working on getting his medications straightened out and getting all the documentation we need for the changes that need to happen at school.  Physically, he's been pretty stable today so he's probably going to return to school in the morning.  As bad as it may sound, we already need the break. Lizze is facing this situation with courage and grace, even though she's scared to death…

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Emotional insight into the lives of a special needs family

As promised, here's the video blog from last night.  It may be a bit redundant because of the post I did earlier today but I really think it's important to watch this because it really gives you insight into the life of a special needs family.  The video is longer, so please bare with it.  Think of it as an episode of your favorite show, only this is about something very serious and can help spread awareness.  I've never really shown this type of emotion publicly and I'm not sure how people are going to take this.  However, I basically give you a huge window into our life.  Some will appreciate this for what it is and others will dismiss it.  All I can say is that I hope it…

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A father’s breaking heart

I had this great plan to have this video blog up and ready for you all this morning and due to technical issues, that's been delayed by a few hours.  I think that it's still important to watch because I explain in a very emotional way, everything that's happened over the past two days.  Having said that, I'll attach it to this post when it eventually becomes ready. The past two days haven't even begun to process within us yet.  As most of you know, Gavin arrived at Akron  Children's Hospital around 9am on Monday for his monthly IVIG infusion. By 9:30 am, he had entered another autonomic crisis and collapsed.  He was unresponsive but Lizze was eventually able to get him up and moving.  At this point, Gavin was…

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