Today is a total loss

Sometimes life just throws too many curve balls all at once.  Today is one of those  days. Gavin is supposed to have his IVIG infusion this morning. Unfortunately, life is conspiring against us and making it impossible to get him there today. Lizze was going to stay home with Emmett today while I took Elliott to school and Gavin to his infusion. As our luck would have it, Lizze was up all night with hot flashes again. Yes, they believe Lizze is going into early menopause but that's her story to tell right now. Bottom line, our plans fell through again since she can neither drive or stay home with Emmett.  We had no choice but to cancel his appointment and move it back a few days. Until Lizze gets…

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Things they don’t teach them in school

Today Elliott spent some time working in the yard with my Dad. Grandpa was teaching Elliott about using tools correctly and safely. They were cleaning up the yard.  Spring cleaning if you will. Elliott was using the loppers to cut up brush.  My Dad had asked him to cut them up into 6 inch pieces so they would fit in the bag.  When I arrived to pick him up, I couldn't get Elliott to leave.  He was so focused on helping Grandpa finish up that I had to practically drag him out of there. He was so proud of himself for being able to use tools and help Grandpa out.  This type of real life experience is so important, especially for kids on the Autism spectrum because these are life…

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The better part of as long as I can remember

I ended up at Dr.  Patti's tonight all by myself.  Elliott was at my parents house, helping my Dad.  Lizze and Emmett were both home not feeling well. So, as I said, I ended up at Dr. Patti's by my lonesome. Truthfully, it's sometimes nice to go without the boys because, it's easy to talk about what we need to take about, without the distraction. Tonight, I spent most of the time, talking about Gavin.  Lately, I'm pretty consumed with everything going on with Gavin.  I'm worried. I'm scared. I'm frustrated. I'm angry.  Truthfully, I'm a whole lot of things. I'm worried because he's not doing well. I'm scared because I feel like we're losing him. I'm frustrated because no one can see to figure out what we need to…

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I’m 2.25 miles closer to being #Fit4Autism

I made it to the park today and was able to squeeze in almost 2.25 miles before being called home because became suddenly ill.  I was aiming for at least 3 miles but duty called.  One of the things that I really try to impress upon parents is just how important their own health and wellness is.  Forgetting to take care of yourself is so easy to do, especially when you are a special needs parent.  My goal is to encourage as many of you to take some time and focus on yourself as possible. I will continue doing my best to lead by example. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me.…

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This is my brain on screaming

So, Emmett isn't feeling well today at all.  He's in a really, really bad mood. I can't tell exactly what's wrong because he won't tell us.  Daddy: Emmett, does your throat hurt? Emmett: No, it doesn't hurt. Mommy: Emmett, wouldn't our tell us it if does? Emmett: No! Usually when he's like this, he's got a mouthful of sores but we can't find any. He's really, really in distress and there's almost no way to comfort him. We may have to just take him into the pediatricians office.  Sometimes when he's like this, he has an ear infection or something that we wouldn't be able to detect, let alone help him with. So far, my day has been full of screaming, screaming and more screaming. While he was flailing around,…

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How do your kids handle going back to school after a extended break?

Elliott made it off to school this morning without a single issue.  He was disappointed that there wasn't a snow day,  but he pulled himself together. :-) I expect that the next few days might be a bit trying, as we get used to a different routine.  How do your kids handle going back to school after an extended break? This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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#Autistic Lego Creations: The bird

I wanted to share this with all of you because I promised Emmett I would.  Emmett made this bird out of Legos.. He's super proud of himself and is actually snuggling with it in bed tonight.  :-) He's just too stinkin' cute.  :-) Emmett, Daddy loves you and it's sooooo proud of you.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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Today’s #Autism and #SPD Victory: Try, try and try again

I have give mad props to my middle child, Elliott.  Elliott is my extremely anxious aspie.  He's always been very skiddish about anything that takes his feet off the ground. Today, Elliott made several attempts to make it to the top of this slide.  Eat time he would back himself, all the way down.  He just couldn't quite make it all the way. However, he kept trying until he finally made it.  I don't know how many times he actually tried before going through with it but it only took that one time to conquer his fear and dominate the slide. It's kinda funny because the time that I actually recorded it, he had a mishap but he still did it and I'm super proud of him. https://www.youtube.com/watch?v=EHIlfybVa7M This site…

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