I hate me (A heartbreaking guest post)

I was asked to post this by someone  who wishes to remain anonymous.  Out of respect for their privacy, I'm happy to respect their wishes and will not reveal their identity. I'm no stranger to guest posts as I open my blog up to almost anyone that wants to share their story. This one however, is unique in the sense that it's a confession of sorts about this individuals personal struggle with being Autistic. This isn't an easy read and it will probably  be upsetting to some.  It's also important to note that this is one Autistic individuals feelings  and  doesn't necessarily represent the feelings of anyone else.  Having said that, I feel strongly that this is a very important message because if even one person feels this way, it's…

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Gavin’s doing better

I wanted to let everyone know that Gavin is feeling much better after benadryl and a nap.  The swelling in his eyes has gone and they aren't bothering him anymore. At this point, I would say that this is most likely allergies, albeit new ones.  Lizze said that this is how her allergies began when she was younger. One day, her eyes just began itching, hurting and swelled shut.  It looks like we will have to explore other options as far as allergy meds go. At the very least, we may need to supplement his current regime with eye drops. We will make an appointment at Akron Children's Hospital with his allergist. Breathe out...... :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2…

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Is this “normal” or something to worry about?

I received a call from Summit Academy this morning.  Gavin is in the office, in tears because his eyes hurt so bad.  The secretary told me that Gavin's eyes began hurting and we're really itchy.  Now they were extremely read and he was calm but upset. I had to go bring him home.  Lizze was sleeping because she's not feeling well and I had to wake her up.  Because of the RAD and the dynamic that their relationship has taken on as a result, I needed to prepare her for him to come home.  She was 100% on board and told me to bring him home quickly so she could give him some benadryl and hopefully relieve his distress. At this point, Gavin is medicated and sleeping in his bed.…

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When is your child with #Autism just being a “normal” kid?

Emmett, my 4 year old with Autism, seems to cycle through a few different stages before returning to where he started.  When he was younger, he was afraid to do anything on his own, especially go potty.  As he got older, he moved past that and excited to do things all by himself.  As even more time has gone by, we find ourselves back where we began. Emmett will not do anything by himself. He won't go potty by himself or even be on the second floor by himself.  I'm a special needs parent and don't know anything else. Is any of this "normal"? Do you folks see this type of reversion back to older behaviors in your ASD kids? It's sometimes really hard to know what's "normal" and what's…

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Today is a total loss

Sometimes life just throws too many curve balls all at once.  Today is one of those  days. Gavin is supposed to have his IVIG infusion this morning. Unfortunately, life is conspiring against us and making it impossible to get him there today. Lizze was going to stay home with Emmett today while I took Elliott to school and Gavin to his infusion. As our luck would have it, Lizze was up all night with hot flashes again. Yes, they believe Lizze is going into early menopause but that's her story to tell right now. Bottom line, our plans fell through again since she can neither drive or stay home with Emmett.  We had no choice but to cancel his appointment and move it back a few days. Until Lizze gets…

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Things they don’t teach them in school

Today Elliott spent some time working in the yard with my Dad. Grandpa was teaching Elliott about using tools correctly and safely. They were cleaning up the yard.  Spring cleaning if you will. Elliott was using the loppers to cut up brush.  My Dad had asked him to cut them up into 6 inch pieces so they would fit in the bag.  When I arrived to pick him up, I couldn't get Elliott to leave.  He was so focused on helping Grandpa finish up that I had to practically drag him out of there. He was so proud of himself for being able to use tools and help Grandpa out.  This type of real life experience is so important, especially for kids on the Autism spectrum because these are life…

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The better part of as long as I can remember

I ended up at Dr.  Patti's tonight all by myself.  Elliott was at my parents house, helping my Dad.  Lizze and Emmett were both home not feeling well. So, as I said, I ended up at Dr. Patti's by my lonesome. Truthfully, it's sometimes nice to go without the boys because, it's easy to talk about what we need to take about, without the distraction. Tonight, I spent most of the time, talking about Gavin.  Lately, I'm pretty consumed with everything going on with Gavin.  I'm worried. I'm scared. I'm frustrated. I'm angry.  Truthfully, I'm a whole lot of things. I'm worried because he's not doing well. I'm scared because I feel like we're losing him. I'm frustrated because no one can see to figure out what we need to…

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I’m 2.25 miles closer to being #Fit4Autism

I made it to the park today and was able to squeeze in almost 2.25 miles before being called home because became suddenly ill.  I was aiming for at least 3 miles but duty called.  One of the things that I really try to impress upon parents is just how important their own health and wellness is.  Forgetting to take care of yourself is so easy to do, especially when you are a special needs parent.  My goal is to encourage as many of you to take some time and focus on yourself as possible. I will continue doing my best to lead by example. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me.…

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