I spoke with the Cleveland Clinic this morning and explained that we are basically beginning to panic because Gavin's heart rate has slowed down yet.  He's been sitting at a resting heart rate of 130+ bpm for almost a year now. Recently, we have seen his heart rate, with very minimal activity hit 170 bpm.  While he seems asymptomatic, meaning he doesn't seem to be have any adverse symptoms as a result, it's definitely not a good thing.  I also explained about what appears to be global regression and that honestly freaks me out.  The nurse I spoke with is going to speak with the doctor and get back to me this afternoon.  She said that she understood why we were so concerned and that we weren't making a big…

I've been meaning to ask this but always forget. Do you find that your hometown, city, village or whatever, is Autism Aware? The reason I ask is because I find myself really frustrated because the city I call home, isn't...at all. I live in Canton Ohio, home to the Pro Football Hall of Fame.  We have absolutely no Autism Awareness in my town.  This is extremely frustrating and even offensive because they're already talking about this year's Hall of Fame Week. I don't know what I have to do to get someone's attention.  I've written emails to our local newspaper, without ever receiving a response.  I've taken to Facebook and Twitter and offered to help in anyway that I can. Not one single response. Our local newspaper, the Canton Repository,…

This morning,  Emmett broke his glasses.  It was bound to happen at some point but it took a few months to happen.  He actually broke the frame and ripped the screws out.  It finally happened today......on a friggin Monday. :-( I told you that I hate Mondays.  This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

Someone got up on the wrong side of the bed this morning. That someone is Elliott and it's only made worse by Emmett constantly pushing his buttons.   I've been trying to work with Elliott on not reacting to Emmett but he's to emotionally volatile to not react right now.  I'm really getting concerned that Elliott is getting into a worse and worse place as time goes on.  He's like an emotional sponge and seems to absorb all the emotion around him, both good and bad.  The other concern is that the anti-anxiety medication isn't working, so we're going to check into how we safely discontinue using it.  We don't want him on meds if they aren't going to work. I hate Mondays, I really truly do.  I don't know why…

This was supposed to post on Sunday morning but for some reason, it never did. Better late than never. Since the moment they woke up this morning (6am), the boys have been fighting, damn near nonstop. It's driving me friggin crazy.  Lizze is having a rough time so I let her sleep until about 10:30 am.  She needs and deserves the rest.  The boys are literally fighting over everything.  Emmett has been pushing Elliott's buttons and Elliott doesn't grasp the concept of ignoring Emmett's attempts to make him mad. For a four year old, Emmett is quite gifted in the art of button pushing, especially when it comes to Elliott. I probably shouldn't say that because I need to discourage this behavior. But seriously, he's really good. As soon as…