Operation Hope: Gavin’s behavior worsens

We got word or rather Lizze did, that Gavin's behaviors are worsening.  I don't know that it's anything catastrophic but it's getting worse. I spoke with Lizze's Mom a little while ago and it sounds like Gavin's threshold for frustration is nonexistent.  Basically, he gets frustrated really, really easily. This is leading to meltdowns more often now than I'm the past. These are meltdowns and not tantrums because there's no benefit to him doing this.  That's basically the litmus test for Gavin. There may be a combination of things at work here, puberty being one. The other issue is that his metabolism is all wonky due to the autonomic disfunction and that may impact the effectiveness of his medications. This is a very real and very serious concern. Because Gavin…

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Why I’m the luckiest Dad in the world

It's no secret that things in my life are not going very well.  I'm sick, stressed out, overwhelmed, scared and frustrated. Today hasn't been a good day at all.  However, a few minutes ago, I went to brush my teeth and was reminded why I'm the luckiest Dad in the whole world.  Apparently, Elliott knew that I've been having a rough last couple of days and while he's not one that's very open about his feelings, he just blew me away.  As I was walking out of the bathroom after brushing my teeth, I noticed something on the counter. I almost didn't notice it because it blended in so well with the counter top, but Elliott left me a note.  Not just any note either.  This is the kind of…

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Off to school without a problem

I happy to say that at least Elliott got off to school without much fuss.  He didn't really have any issues this morning outside of the usual ADHD stuff.  He's feeling better and has 1 more round of antibiotics left to combat his sinus infection. Thankfully, the day began on a good foot for him.  It always distresses me to send him to school after having a rough morning.  I hate when he feels panicked or insecure as we walks through those doors.  I can only do so much and luckily, he's at a great school that helps Elliott every step of the way.  That makes a huge difference.  :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any…

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Things get more and more dire each day

Who needs sleep anyways? I guess my body doesn't think it's necessary to sleep.  I just couldn't fall asleep last night.  Between the congestion and the stress, I just could find that place of peace. Part of my problem is that I'm a thinker.  I problem solve and when I can't solve a problem, I sometimes get stuck, spinning my wheels, looking for a solution.  In truth, it's actually probably more counterproductive than anything else. Right now I have a lot of reason to worry.  Both Lizze and Gavin have serious medical issues that we're only just now beginning to understand.  While Lizze's health problems aren't necessarily life threatening, they are certainly life altering. Gavin's however, are very much life threatening. I can't seem to not focus on this stuff.…

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It’s 4am and I writing this instead of sleeping

This is the second night in a row that I can't sleep.  I'm so congested and too uncomfortable to be able to rest.  I'm wondering if this is turning into bronchitis? To say that I'm exhausted would be a huge understatement. I think that the stress is catching up to me and taxing my immune system.  Typically I never get sick.  This isn't the way I would like to welcome in Monday.  :-( This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family,…

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A week in the life of the Lost and Tired family

This past week has been a grueling one, for all of us in the Lost and Tired family.  We had more appointments than I care to remember and more than our fair share of bad news. This past week has brought us long sought after information.  I've also discovered that sometimes, you don't like the very information you've been looking for once you find it.  This is a brief rundown of the happenings from this past week: 1) Lizze is confirmed to be in menopause (at age 32)  and there may not be any treatment due to her history of blood clots. 2) The reason for early menopause may or may not be because of a possible mistake made during her hysterectomy 2 years ago. 3) Lizze's previous OB/GYN is…

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Do you yell too much?

Do you yell too much? I don't know how easy this question is to answer, for a number of reasons.  Having said that, and in the spirit of honesty, I'll admit that this is something I personally struggle with.  Now, it's not like I'm screaming at my kids with Autism because I'm angry or frustrated.  I mean, maybe sometimes but only on rare occasions when I'm completely overloaded.  That certainly doesn't make it right but I'm only human and I'm not ashamed to admit that.  What I find most often is that I'm having to raise my voice over the noise and chaos, simply to get someone's attention.  Sometimes is simply a volume thing and not an anger or frustration thing. Having said that, does my intention matter to my…

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The lighter more pleasant side of today

I'm still feeling quite crappy today.  Lizze let me sleep in until 11 am. That wasn't easy for her to do and I'm grateful.  :-) Today is a laid back, do nothing kind of day.  Lizze is sleeping and the boys and I are watching Justice League on Netflix.  Emmett's actually fallen asleep and Elliott is snuggled up with Miss Bella on the other couch.  After a long weekend, this is a lighter, more pleasant side of today. This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help…

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