When you have a child like Gavin, life is exceptionally challenging.  Any one of his individual challenges would be difficult on most families.  The combination of his physical and mental health issues makes things......um...what's another word for impossible? Even after having moved Gavin to his grandparents life has gotten any less challenges.  What a lot of people don't understand is that when you send a child away because of safety issues, like we did, you often times simply trade one problem for another one. I know that seems counterintuitive but it's so very true.  Here's a fee examples of what I mean.  Since moving Gavin out of our house, his health issues have been infinitely more difficult to manage.  Without the first hand knowledge of his symptoms, we never know…

Lizze woke up this morning with her migraine raging.  When it gets this bad, her sense of smell seems to get enhanced because she can smell everything.  Unfortunately, everything makes the migraine worse.  We have this lilac bush in our yard.  It's huge and by huge I mean 2 stories tall. For me, it smells amazing.  However, for Lizze, this enrages her migraine even more. Every year this is a problem and every year we say we're going to take the lilac bush to the ground.  As you can probably guess, it never happens because something always comes up.  By the time we get around to it, it's Jo longer blooming and therefore less of a priority. I was hoping to at least go to a dollar movie today.  We…

There was another shooting within earshot of our house on Thursday.  It took place a few blocks north of us and is honestly really scary.  This poor and very innocent man was simply walking his dog, when a van pulled up and someone inside, shot him in the chest. This appears to be a totally random.  My guess would be gang related.  How are we even supposed to feel safe stepping outside of our house? How are we supposed to let the boys even play in the yard? This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and…

On Friday, I was scheduled to check in with Gavin's autonomic specialists office and touch base on how the alpha-blockers were working. The truth is that they don't appear to be doing much of anything, one way or the other.  Gavin has been complaining about chest pain again and it's been awhile since we've seen that.  However, his resting heart rate is still in the 130's.  I explained that because his metabolism is so elevated, it's now affecting his already compromised immune system.  Basically, things are getting even more complicated now.  Unfortunately, Dr. Moodley is out of the office until the 20th. The nurse said that basically, because Gavin is so complex, no one would want to touch this and make medication changes, unless it was an emergency, until Dr.…

We will be having a day to ourselves this weekend.  We're going to be shuffling the kids around a little bit.  Gavin will be going to my parents and Elliott and Emmett will be going to Lizze's parents.  This will give Lizze and I some time to ourselves. While we don't have the resources to really go anywhere, quiet time will be nice for a change.  Besides a break is a break, right? This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family,…

Shortly after publishing my last post, Lizze's doctor called and they spoke for a bit about what's going on.  We received some clarification of a few things and learned some new ones as well.  This was really a good news/bad news kind of phone call. The good news is that as of right now, she's not yet in menopause.  :-) While her LH levels are really high, her FH levels are normal, indicating that she is not in menopause. She has something called........crap, I can't remember what it's called now.  Dammit. Anyways, here's where the good news/bad news comes into play.  Basically, her ovaries aren't working right.  That's the bad news.  The good news is that she has ovaries.  That's actually really, really good news.  Essentially, the doctor said that…

Lizze is in a really bad place.  These hot flashes are keeping her up all night and a bit irritable during the day.  She's even losing her hair still.  She has to take these massive, prescription doses of vitamin D because her levels are so dangerously low.  The last two days, she's really struggled to stay out of bed due to exhaustion, pain and nausea.  It's awful and aside for letting her sleep through life, there's nothing I can do to help her. A big problem with letting her sleep for so long is her history of blood clots.  Immobility is her worst enemy right now.  She hasn't had to use her cane in awhile but personally, I sorta feel like that's more because she hates using it and less…