Lizze and I have decided to move Gavin back home.  That probably comes as a shock to many of you and it was a very difficult decision for Lizze and I to make.  I've talked many times about having to pick the best of all the worst worst options. This is one of those times.  Gavin's health is going down hill and to be perfectly honest, the only way we can keep tabs on things is if we do it ourselves. We need first hand knowledge of his daily life.  With the current set up, that's just not possible.  Today when I brought Gavin home for a dentist appointment, we had to cancel it because he was not stable enough to even ride in the car.  Lizze and I both,…

We are supposed to be taking Gavin to the dentist this afternoon.  I actually pulled him out of school after my meeting because it didn't make sense to go back to get him in a little while.  Plus we have to travel out of town to go to the boys dentist.  Anyway, I noticed right away that Gavin is off today.  I don't mean off like poorly behaved.  I mean off as in something isn't right and Lizze and I are both concerned.  Gavin's pretty wobbly today,  meaning he's having a hard time with his balance. He also seems a bit disoriented as well.  He's saying things that aren't making any sense.  I don't know what to do.  The dentist is just a check up, nothing major but he's missed…

Gavin had a pretty good day. He was apparently tired but only slept for a little while.  I'm not sure about the whole bumping his eyebrow thing.... The point of what is supposed to be done by documenting his day is to make sure we know how his health is impacting his education.  I'm sure bumping his eyebrow was a rough experience for him but overall he had a positive day.  The benefit to having the teachers communicate these things to us is so we know what's going on when we aren't present. Is he too tired to stay awake? Is he having chest pain? Is he falling while taking the stairs? I was teasing about the eyebrow thing, because it doesn't seem important but it's something I can ask…

The boys had a really good session with Dr  Patti.  We got chat with her for a bit and the boys had a fun time playing with toys. They even got along.  Here's a few pictures I snapped of them at their appointment.  They love to see Dr.  Patti and have a fantastic relationship with her. :-) This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing and Accessories, designed by me. ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

In the morning, I will be meeting with the school.  It's some kind of administrative planning thing and I'm a parent representative.  Not entirely sure what this is about or what I have to do.  I do however, know that they're having breakfast for us.  That's pretty cool.  :-) Anyway, I truly love my kids school,  Summit Academy, and I'm happy to help out in any way that I can.  I personally believe that the more involved you are with your child's education, the more successful they will be.  This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos as autocorrect HATES me. ;-) Check out my #Autism Awareness Store to find really cool and unique #Autism Awareness Clothing…

I feel pretty accomplished today.  Of course, I probably could have done more today but I'm proud of myself nonetheless. After getting Elliott off to school this morning, I spent a lot of time on the phone for tons of Gavin related things.  There were some very important things clarified today that will change the course of our current journey.  I was even able to give Lizze a nap for a little while, not nearly long enough but it was the best I could do today.  After getting Elliott from school, he and I went to the grocery store to get a few items before returning home and doing some dishes and making dinner.  After dinner, I wanted to walk but that just wasn't going to work out tonight.  Instead,…

A day can make so much difference.  I received a call from Gavin's immunologist, Dr.  Wasserbauer.  She was returning my call from yesterday.  She likes to personally return phone calls to parents, which is awesome in my book. She wanted to make sure that I understood what was going on and let me know about the alpha-fetoprotein test, I was inquiring about.  The AFP test was the first thing she had done back in 2011 (I think she said 2011). She knew that was the first step to take.  His levels came back normal and that's why insurance wouldn't pay for the genetic testing.  Hearing this, things began to make more sense.  You may remember from my previous ramblings yesterday,  the John's Hopkins said that a negative AFP test pretty…