I’m sharing this with my readers for one singular purpose. I want to help raise awareness for kids/people with invisible challenges, such as sensory processing disorder, as well as what their parents/caregivers experience.
I’ve spoken countless times about how we struggle when it comes to getting Emmett dressed and ready for school. I’ve provided direct insight, so you can experience for yourself what this is like for us as parents.
Before you listen to this recording, please keep in mind that this is in no way an attempt to keep from having to go to school. One of the reasons Emmett gets so frustrated is because he desperately wants to be at school but can’t tolerate the clothes required for him to leave the house sometimes, especially in the winter.
This recording may get very loud, so be sure to turn your volume down. Also, this particular event was over shoes and socks.
Are people deleting their own comments or are they just disappearing? I can’t figure out what’s going on.
My comment didn’t show up, so this will be an abbreviated version in case the other one appears. I didn’t listen to this because I am already all too familiar with the effect that sensory processing issues can have.
It seems like you’ve reached the end of your rope with this, as you’ve mentioned homeschooling. I sincerely hope that you are fully satisfied that you have explored every reasonable option before resorting to that, as that will eliminate what seems to be virtually his only opportunity to socialize with peers.
I’m not saying that there are necessarily solutions out there, but I have commented on this before (with respect to instituting a daily regimen of planned sensory activities as opposed to just doing them “in the moment” in an attempt to alleviate an immediate situation). Talk to his OT. Talk to several OTs.
Taking the boy out of school permanently because of this is an extremely drastic measure. Even having it on the table for discussion is pretty drastic. Perhaps you’re saying that, and posting this audio, to show people how bad it can be. But I sincerely hope that you are confident that all reasonable avenues have been explored first. Best of luck. As I’ve said before, this isn’t easy – particularly for the individual who has to endure this.
JR: First off, I know you posted a comment cause it’s in the feed but the comment itself doesn’t exist. I’m going to have to move back to facebook comments until this gets figured out because this is happening to several people and I don’t want anyone thinking I’m removing comments. I even checked the spam and reported folders, nothing is there. Very weird
It’s not his only option to socialize but it’s a big one for sure. I understand you not wanting to listen and my intention was to help people who aren’t as familiar better understand.
Removing Emmett from school is an absolute last resort. No part of us wants it to come to this but it’s on the table because all options are on the table. I absolutely agree with you …..
The recording is what we experience almost every single day, only it goes on for an hour or more and poor Emmett is so stressed out….
Ok – so homeschooling is the last resort, and “all options are on the table.” What are the other options that you plan to exhaust before going to that last resort?
I don’t mean to push, but sensory processing disorders are so widely misunderstood – you are in a position to show not only how they can affect an individual (which you do through explaining what Emmett endures on a daily basis), but also the challenges of finding an effective treatment, and what those treatments might be.
Part of the challenge of an effective treatment of a sensory disorder is the dedication you have to have to a strict sensory regimen- which often doesn’t seem to collerate to immediate results, or any results at all. There’s often a lot of trial and error, as well as engaging in numerous sensory activities (primarily at various times throughout the day when the individual is not enduring a specific sensory challenge) which, to a layperson, wouldn’t necessarily seem to have any relation to treating the issue.
I know I’ve commented a lot on this issue, but I’m going to drop it now. I do hope you find a workable solution…and sooner rather than later. Best of luck.
JP… I appreciate all your comments and I’m trying to figure out what’s happening to comments that are disappearing. I totally agree with you and part of the approach we take is to keep on keeping on. Part of the challenge with this is that it’s very fluid and can change from day to day or minute to minute.
I started Emmett in the treadmill tonight. He loves the treadmill but in order to use it, he must have shoes and socks on. He went for about 1t minutes tonight. I try to find creative, outside the box solutions because those seem to have the best chance. If Emmett knows we’re working on something he’s more resistant. If we can disguise those efforts in something fun…. ☺
My comment didn’t show up, so this will be an abbreviated version in case the other one appears. I didn’t listen to this because I am already all too familiar with the effect that sensory processing issues can have.
It seems like you’ve reached the end of your rope with this, as you’ve mentioned homeschooling. I sincerely hope that you are fully satisfied that you have explored every reasonable option before resorting to that, as that will eliminate what seems to be virtually his only opportunity to socialize with peers.
I’m not saying that there are necessarily solutions out there, but I have commented on this before (with respect to instituting a daily regimen of planned sensory activities as opposed to just doing them “in the moment” in an attempt to alleviate an immediate situation). Talk to his OT. Talk to several OTs.
Taking the boy out of school permanently because of this is an extremely drastic measure. Even having it on the table for discussion is pretty drastic. Perhaps you’re saying that, and posting this audio, to show people how bad it can be. But I sincerely hope that you are confident that all reasonable avenues have been explored first. Best of luck. As I’ve said before, this isn’t easy – particularly for the individual who has to endure this.
JR: First off, I know you posted a comment cause it’s in the feed but the comment itself doesn’t exist. I’m going to have to move back to facebook comments until this gets figured out because this is happening to several people and I don’t want anyone thinking I’m removing comments. I even checked the spam and reported folders, nothing is there. Very weird
It’s not his only option to socialize but it’s a big one for sure. I understand you not wanting to listen and my intention was to help people who aren’t as familiar better understand.
Removing Emmett from school is an absolute last resort. No part of us wants it to come to this but it’s on the table because all options are on the table. I absolutely agree with you …..
The recording is what we experience almost every single day, only it goes on for an hour or more and poor Emmett is so stressed out….
Ok – so homeschooling is the last resort, and “all options are on the table.” What are the other options that you plan to exhaust before going to that last resort?
I don’t mean to push, but sensory processing disorders are so widely misunderstood – you are in a position to show not only how they can affect an individual (which you do through explaining what Emmett endures on a daily basis), but also the challenges of finding an effective treatment, and what those treatments might be.
Part of the challenge of an effective treatment of a sensory disorder is the dedication you have to have to a strict sensory regimen- which often doesn’t seem to collerate to immediate results, or any results at all. There’s often a lot of trial and error, as well as engaging in numerous sensory activities (primarily at various times throughout the day when the individual is not enduring a specific sensory challenge) which, to a layperson, wouldn’t necessarily seem to have any relation to treating the issue.
I know I’ve commented a lot on this issue, but I’m going to drop it now. I do hope you find a workable solution…and sooner rather than later. Best of luck.
JP… I appreciate all your comments and I’m trying to figure out what’s happening to comments that are disappearing. I totally agree with you and part of the approach we take is to keep on keeping on. Part of the challenge with this is that it’s very fluid and can change from day to day or minute to minute.
I started Emmett in the treadmill tonight. He loves the treadmill but in order to use it, he must have shoes and socks on. He went for about 1t minutes tonight. I try to find creative, outside the box solutions because those seem to have the best chance. If Emmett knows we’re working on something he’s more resistant. If we can disguise those efforts in something fun…. ☺
Are people deleting their own comments or are they just disappearing? I can’t figure out what’s going on.