Today has been a rough one for me.  I’m battling with the insurance company for Gavin’s meds and that future is up in the air at this point. 

I also spoke with John’s Hopkins today, more specifically, the AT Clinic at John’s Hopkins.

They received the faxes from the Cleveland Clinic but the last 10 pages were not clear.  I have to get those in the morning and email them to AT Clinic.

I spent a good chunk of time on the phone with them today.  We discussed Gavin’s current condition and his latest hospital stay.  We also discussed the possibility of making the journey out there.  At this point, we don’t know what’s going to happen. 

She’s going to speak with the doctor and figure out what we should be doing and if they think that they can add anything further to the mix or if we are better off going somewhere else.

I suppose this is progress.

John’s Hopkins has been so nice thus far and I know if they can help, they will.

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