We are all home. Gavin is still at the Cleveland Clinic. We get his MRI results in the morning. I really thing they are going to keep him for a while.
The risk of sounding like a bad parent this isn’t happening the way it was supposed to. Gavin was supposed to get help and we were supposed to get a much needed break. That is not what’s happening. Gavin is 1.5 hours away and we have to keep driving back and forth. Lizze is not able to take her meds when she is going up there and that has a hugely negative impact on her. I end up staying with the other two kids and that is beyond exhausting. Everyone that has watched even one of them can’t do it for very long because they are all over the place all the time.
This is starting to get to me because I lashed out at Lizze on the phone today and I shouldn’t have. Both ER and EJ screamed all day long. They are both sick and struggling to deal with everything going on around them. I was simply starting to crack. I wanted her to come home but she needed to stay for Gavin and she was right to do so. I was just weak and couldn’t cope well today. I am praying tomorrow is better and we can try to relax. I hope Gavin doesn’t need us in the morning and we can try to recover a bit.
You wasn't weak Rob……..you were exhausted!!You're human.
I understand your frustration and need for some respite and rest. Is there a Ronald McDonald House near the hospital? They are usually free of charge and they would knock out the drive. I am not sure if they allow siblings…