This has been a really challenging week for me personally. I did quite a bit of driving and sat through my share of appointments, including Gavin’s IVIG infusion for May.

There’s a lot going on with Lizze right now and honestly, she’s not in a good place. 

For me right now though, I just can’t stop worrying about Gavin. I mean, I’m worried about Lizze as well but we know what we are dealing with and have a plan for addressing it. 

With Gavin there’s just nothing but the great unknown.

At the very least, we know for sure that he’s not doing well.  We know for sure that he’s continually getting worse. We also know that his immune system is becoming more compromised and his neurological dysfunction is impacting him more and more.

I never brought this up before but, I’ve been noticing that Gavin’s beginning to walk funny.

I don’t mean funny as in ha ha. I mean funny as in something’s wrong.

Gavin’s walking like he can’t bend his knees. I don’t know how else to describe it.  He’s never been a graceful gazelle but now he’s really stiff in his movements.

When it comes to Gavin and everything he’s going through, I don’t know how not to worry. I feel like we are battling against time and have been on the losing end of that for a very long time.

This is absolutely taking its toll on me. 

I’m not sleeping very well at night and when I do, I’m having nightmares, really, really messed up nightmares.

It’s no secret that I’m depressed and truthfully, I’ve seen better days. 

I’m finding myself more easily frustrated and lacking in energy. I’m tired, worn out…..no, more like burnt out.

Anyways, I just wanted to share…….

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