On Friday, I was scheduled to check in with Gavin’s autonomic specialists office and touch base on how the alpha-blockers were working.

The truth is that they don’t appear to be doing much of anything, one way or the other. 

Gavin has been complaining about chest pain again and it’s been awhile since we’ve seen that.  However, his resting heart rate is still in the 130’s. 

I explained that because his metabolism is so elevated, it’s now affecting his already compromised immune system.  Basically, things are getting even more complicated now. 

Unfortunately, Dr. Moodley is out of the office until the 20th.

The nurse said that basically, because Gavin is so complex, no one would want to touch this and make medication changes, unless it was an emergency, until Dr. Moodley returns. 

I have to agree…..

Right now, Gavin’s basically status quo and so it’s not necessarily urgent that we make any changes right now that could make things worse. With him, there’s just no way to know how his body is going to react to anything that we may do.

For right now, we just need to hurry up and wait. 

For the record, waiting is something that I’m not very good at, especially when it comes to my family.  🙁

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