It’s no secret that this week has been crazy. Unfortunately, at least for me, it’s only going to get crazier because I’ll have Elliott and Emmett for the next 3 days. Lizze and Gavin will be at Akron Children’s Hospital for Gavin’s 72 hour VEEG, swallow test and tremor work up.
I’ll be at home chasing 2 little boys with #Autism that don’t seem to get along right now.
Lizze will be with Gavin because it’s easier for her than staying at home with the other 2 boys.
I mentioned yesterday that I screwed my knee up pretty bad while at the Cleveland Clinic. I just stepped funny and bam..instant pain.
Anyway, Gavin is not having a good day. He’s had several smaller meltdowns already and he’s simply not listening to anyone. I know he had a trying day yesterday but he still has to follow the rules and be safe around his brothers.
It’s going to be a really long day and while I love having out with my boys, I’m not looking forward to this weekend. I just don’t have the energy or ability to walk and both of those things are prerequisites to watching to challenging little boys.
**Thanks for reading**
-Lost and Tired
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This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.
My, this was inspiring. I wanted to comment and let you know that I’m currently writing a play about autism, (I’m a senior in high school), and I’m going around asking moms and dads for stories and words of advice for the play. Although these words are your own and I don’t plan on using them in my play, you’re still helping me to tell my story. I’ve noticed that medical definitions tell you something about autism, they’re merely one-layered and lack the humanity that stories like yours have. So I wanted to thank you for helping me in my creation of the father character, who is just as important as the child himself. If I could ask one thing, would you mind helping in one small aspect of my play? I’m including a scene at the end that uses the names of real mothers and fathers that I’ve met through blogs and online, (with their permission of course), and a single word that they’d use to describe either autism itself, (from their own or their child’s perspective), or one word to describe their child. It’s an artsy approach that I wanted to include to illustrate the realness of these situations, regardless of the fact that the rest of the play was a made up story with made up characters, developed to tell a story. I thank you so much for your hope and for your bravery. I’ll remember you as I write my play and need motivation to make someone proud.